Help Please

[KaidensMummy]

Hi there, I am desperate for advice about my 2 yr old son.

When my son was a baby we switched him Soy formula because he was reacting to regular & the doc said he must have been allergic to milk. So, the symptoms seemed to go away until he started eating solids.

We have been now suspecting Celiac disease and the doc suggested starting a gluten free diet. We started it 3 days ago & today was his 1st official solid poop.....YAY! Ive never been so happy to see poop before ..Lol

Anyway, not 5 mins, later I layed him down for a nap & he always has a drink of his soy milk & takes it to bed. He dranks his milk & then came out & said "mommy poop" I couldn't believe he would have pooped again. So, this poop was liquid. Could it be that he is allergic to the Soy milk???

For lunch he had a grilled cheese sandwich on gluten free bread.(about 1/2 hour before his nap) Now, the doc said to me that I can't cut dairy out of his diet, he told me just to cut the milk out. Could this be from the cheese?? or the soy??

I am SO frustrated with the doc & this whole situation!!! Can anyone offer some advice of what I should be doing now?? I was SO super happy that I thought the gluten free diet was the answer but now Im not so sure....but then why did he have his 1st solid poop of his life today?? COul he be allergic to soy & be a celiac?? or maybe he is allergic to dairy? Do you think I should be insisting on an allergy test?? TIA for any help

[ShayFL]

I know it can be frustrating. I think your instincts are right on and the solid poop is a first sign. But just cutting the gluten isnt the answer for everyone. For many, dairy must go at least for a little while until the villi in his intestines are all healed (try removing the dairy for a few months and then challenging it to see if he reacts). If he reacts, you can try goat or sheep dairy (some tolerate them much better than cow.)

Your Doc. probably doesnt want you to remove dairy because most believe it is the only source of calcium. Not so!!! Here is a list:

Open Original Shared Link

And you can give him a calcium supplement during the elimination trial. It s only for a few months.

Unfortunately SOY is one of the top 10 allergens. It is very hard to digest even for a healthy person. Asians have been eating soy for eons, but they "ferment" it to make it digestible. Americans invented "soy milk" and "soy formula".

Be careful when looking at cheese "alternatives" as most contain casein (the milk protein that is the problem).

It can seem daunting, but there are perfectly healthy people who grew just fine without ANY dairy, gluten or soy.

[AliB]

I agree with Shay. You don't need dairy. Ironically, the nations who drink the most milk also have the highest incidence of Osteoporosis.

You might like to try your little one on the Specific Carbohydrate diet. Many of us who cannot tolerate either gluten or many other carbs are doing well on it. It is a healing diet, not for weight-loss.

There is an SCD thread on this section, but the best sites to look at are 'breaking the vicious cycle' and 'Pecanbread'. Pecanbread is designed to help kids, specifically with autism but the SCD helps children and people with so many other health issues that it is a mine of info for all.

Most processed soy and corn products are pretty evil. Processed soy products are very mucous-forming. I love chocolate soy milk but it makes me sick and I get instant catarrgh.

Other options instead of milk is pure well-diluted fruit juices (better still home-juiced as the commercial ones are devoid of valuable enzymes for digestion), water of course, almond milk, and the one I love, coconut milk. I make that myself and have posted the instructions on the SCD recipe page in the recipe section. It is gorgeous. Give me a glass of coconut milk over dairy any day. You can buy it in cans, dried in powder form, make it from fresh coconuts or dessicated (try to find a source of that with no preservative if possible) or from the hard blocks of coconut cream you can buy which can be chopped up and mixed with hot water.

[bear6954]

Hi there, I am desperate for advice about my 2 yr old son.

When my son was a baby we switched him Soy formula because he was reacting to regular & the doc said he must have been allergic to milk. So, the symptoms seemed to go away until he started eating solids.

We have been now suspecting Celiac disease and the doc suggested starting a gluten free diet. We started it 3 days ago & today was his 1st official solid poop.....YAY! Ive never been so happy to see poop before ..Lol

Anyway, not 5 mins, later I layed him down for a nap & he always has a drink of his soy milk & takes it to bed. He dranks his milk & then came out & said "mommy poop" I couldn't believe he would have pooped again. So, this poop was liquid. Could it be that he is allergic to the Soy milk???

For lunch he had a grilled cheese sandwich on gluten free bread.(about 1/2 hour before his nap) Now, the doc said to me that I can't cut dairy out of his diet, he told me just to cut the milk out. Could this be from the cheese?? or the soy??

I am SO frustrated with the doc & this whole situation!!! Can anyone offer some advice of what I should be doing now?? I was SO super happy that I thought the gluten free diet was the answer but now Im not so sure....but then why did he have his 1st solid poop of his life today?? COul he be allergic to soy & be a celiac?? or maybe he is allergic to dairy? Do you think I should be insisting on an allergy test?? TIA for any help

My son is 2 1/2 and when we went gluten free he had his first solid poop! I was thrilled. A few months later I noticed his poops were getting softer and it was burning his bottom. After the process of elimination, I found that sugar and fruit causes his to have very runny poops and it burns his bottom. I do not give him juice and he has never really liked fruit. I also use crystal light instead of koolaide. My son does not like milk, but he will eat yogurt and grilled cheese sandwiches. Try keeping a recored of when he eats, what he eats and when he poops and the type of poop. This helped my with my son. Good luck

[Ken70]

I would keep him off milk, wheat and soy. You are not a bad parent if you don't give your kid a creamy white liquid to drink several times a day. I know from experience you will feel like one but rest assured you are not.

Your child also needs enough sunshine and probiotics to begin the gut healing process. I gauge my children's health based on what's in the twins diapers and what's in the bowl for the older two. Sugar absolutely destroys my older twos poop. I think sugar causes inflammation in the gut but I can't be sure. It does it to both of them. It is remarkable what you can learn from poop though isn't it?

Good luck.

[AliB]

I agree very much about the sugar. I have just been reading about it. It is evil stuff. In its pure form as molasses, raw honey, maple syrup, etc., and in the form that is in fruit and vegetables it is full of nutrients and enzymes and is beneficial, but in the refined form it is evil.

It robs the body of essential nutrients, encourages pathogens like Candida, contributes to many health issues and diseases, like diabetes, feeds Cancer and tumours, and just takes from the body without giving anything except an addictive craving.

It takes tremendous willpower to resist the stuff - especially when we are surrounded by it, by other people stuffing it down their throats (oblivious to the damage they are doing to their bodies), and food containing it, all of which is designed to tempt us every time we see or smell it.

[curlyfries]

Ditto on the sugar. I get major bleeding.........and I've had my share of colonoscopies. Unfortunately, fruit does it , too.

[nasalady]

Could it be that he is allergic to the Soy milk???

For lunch he had a grilled cheese sandwich on gluten free bread.(about 1/2 hour before his nap) Now, the doc said to me that I can't cut dairy out of his diet, he told me just to cut the milk out. Could this be from the cheese?? or the soy??

I am SO frustrated with the doc & this whole situation!!! Can anyone offer some advice of what I should be doing now?? I was SO super happy that I thought the gluten free diet was the answer but now Im not so sure....but then why did he have his 1st solid poop of his life today?? COul he be allergic to soy & be a celiac?? or maybe he is allergic to dairy? Do you think I should be insisting on an allergy test?? TIA for any help

My daughter is allergic to both dairy and soy; we don't allow her to have cheese or any dairy products. She drinks rice milk and does well on it. You do have to read labels with rice milk to make sure it's gluten free (Rice Dream is not gluten-free but Trader Joe's rice milk is).

You may want to try what the previous posters said: no gluten, dairy, soy, or sugar.

Good luck!

JoAnn

[AliB]

Ditto on the sugar. I get major bleeding.........and I've had my share of colonoscopies. Unfortunately, fruit does it , too.

If your gut was healed you likely would not have the issues with fruit. Gradually over the years I lost the ability to tolerate most fruit apart from an occasional banana, but over the last 9 months since I have been on the Specific Carb Diet and my gut has started healing properly I have gradually been able to reintroduce more fruit.

I can now eat bananas, apples, grapes, lemon, pears, blueberries, a little orange, and some of the more exotic fruits like kiwi, persimmon, dragon fruit, etc.