Feeling Frustrated Today...

[spinsterwitch]

I suppose it doesn't help that I have a cold.

I've been doing the gluten-free diet for about a month, and I am planning to convince my doctor to go forward with testing. The past couple of weeks, I've gotten glutened 3-4 times. Today, I realized that it had happened again.

I'm pretty sure that I know what it was (which is sad because I really like these particular California Rolls ), but feeling sick brings up another issue for me. I don't like to cook when I'm sick. But it's almost impossible, when I've just been glutened, to imagine how I would get food otherwise that might not be cross contaminated. I live alone, so the con of that is that there is no one to cook for me. (The pro is that I don't have to worry about that CC.)

How do people cope with this?

Also, when you are glutened, do you find that you react immediately? I know I haven't had anything with gluten today, so I'm assuming that it was food I ate last night, but I didn't feel sick until this afternoon. I know this may vary, but it would be reassuring to hear the variations.

[Lisa]

California rolls can contain artificial crab meat, which is not gluten free. Most soy sauces contain gluten, except LaChoy and Wheat Free Tamari.

Peoples reaction time varies widely, for almost immediate to several days. You just h ve to feel your way through it. Mine is about 24 hours.

[GFqueen17]

yeah sushi is tricky...sometimes it has gluten, sometimes not. i used to love this one japanese restuarant but i kept getting sick whenever i ate their sushi...so i finally asked how it was made and apparently they used some sort of vinegar on the rice that had gluten...idk...but some foods are weird like that.

a good thing that you could make pretty easily when your sick is Thai Kitchen soup bowls...theyre kinda like gluten-free ramen...just put them in the microwave.

[wschmucks]

Hi there,

First thing-- you need to go to a Dr who will give you the blood panel test and the endoscopy. If you're Dr wont agree, go to a new Dr. THEN you will have to go back on eating Gluten for about 6 weeks to get a positive test (this part sucks...try to look at the good-- eat whatever ur favorite gluten food is, cause you'll never have it again). I think its really important to get diagnosed.

After I was diagnosed (it hasnt been long-- 2 months), I refuse to eat out, and most Celiacs eat out maybe once in a blue moon. I want to give my body the best opportunity to recover. If i do not personally make my food I will not eat it, cause you really don't know whats in it or what has touched it. Its SO easy to get glutened especially when you first start cause it's really every where. I continue to get glutened even though I only eat food i make, i keep finding it hidden or some sort of cross contamination, and eating out just cause more confusion (Sushi-- really!? see what i mean).

If you dont feel like cooking, then grab a bowl of Rice Chex cereal or some fruit etc. We all know how frustrating this is, thats why this board is as popular as it is. We are here to support each other because other people just dont understand. My advise would be to get diagnosed and then stick to whole food that you have been in complete control over during the cooking process. Good Luck and I hope you feel better soon!

[spinsterwitch]

Thanks, ya'll. This board is very helpful. I actually think that my sickness today might have been both the sushi from last night and the TJ Organic Mayo (which isn't on their gluten free list). If that's the case, I was feeling it like 10 minutes after I ate it.

I live in the Bay Area, so I feel a bit lucky. We have a great gluten-free bakery really close to my house and work. There's a pizzeria that makes a gluten-free crust (although I know that CC will probably be an issue there). And of course there's Whole Foods.

I can't imagine how people did this before the internet!