Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If Something Has Been Missed


Amber M

Recommended Posts

Amber M Explorer

Hi everyone, I have been (I am pretty sure) gluten free for over 4 months now and have been on a roller coaster. I start feeling better and then right back down hill. I am depressed and moody today. I feel like crap. My neuro symptoms are back and I have had a lower colon ache with lower back ache for 3 days. The only thing I could have been glutened or soyed by is Lays Potatoe chips.

They say they are gluten free, but made in the factory with other gluten. The equipment is washed, blah, blah, blah.......Does anyone else get a reaction from that?

Then I had a the annual Christmas party last night. Everyone brings something. My counters were covered with GLUTEN stuff. I had my own home made chicken drummets and fresh veggies. Oh Yea!!! I didn't think I'd be jelous, but I was because I felt like crap already. I guess if I felt better, I'd be less bothered by it. I made sure I washed me and my kitchen well, but I could smell the pizzas half the night even though they were out of the house.

I just want to be well and I woke up several times last night wondering if something has been missed and got full of worry like, am I full of cancer or something. I just feel so bad off and on and I don't understand this. How can I feel good and then so bad? I am just sick of being sick.

This is normal is it?? And what about the Lays Plain Chips? Any input? Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Hi Amber,

I'm sorry that you're feeling so bad!

DQ7 is associated with gluten intolerance, casein intolerance, and grass/pollen allergies... Is there anything you started eating a lot more of when you went gluten-free? I noticed in your signature that you went soy-free 30 years ago... what about corn? You could also try things like dairy, nuts, citrus, nightshades, tapioca, coconut... or even go on the SCD or the anti-candida diet. Once your body heals you might be able to tolerate a lot more foods again.

When I stopped eating gluten I started eating a LOT more corn than usual... corn chips, corn cakes, corn bread. Plus a lot of the gluten-free goodies have cornstarch. When I stopped eating corn for my son's benefit I was amazed at how much it helped me too. :)

I know it can be hard to sleep when you're worried and thoughts are racing through your mind. What kind of pre-bedtime habits do you have? A cup of tea or a warm shower really helps me unwind so I can sleep better. If I'm exhausted life can seem so overwhelming.

Lisa Mentor

Many people here react to Frito/Lays Products, even though they are gluten free,. The cross contaimination during manufacturing seems to cause a problem for some.

Amber M Explorer
Many people here react to Frito/Lays Products, even though they are gluten free,. The cross contaimination during manufacturing seems to cause a problem for some.

Thanks, I suspected the chips because I seem to recall the last few times I'd eaten them before this time, I had a reaction to. Well, there's one more thing down.

Amber M Explorer
Hi Amber,

I'm sorry that you're feeling so bad!

DQ7 is associated with gluten intolerance, casein intolerance, and grass/pollen allergies... Is there anything you started eating a lot more of when you went gluten-free? I noticed in your signature that you went soy-free 30 years ago... what about corn? You could also try things like dairy, nuts, citrus, nightshades, tapioca, coconut... or even go on the SCD or the anti-candida diet. Once your body heals you might be able to tolerate a lot more foods again.

When I stopped eating gluten I started eating a LOT more corn than usual... corn chips, corn cakes, corn bread. Plus a lot of the gluten-free goodies have cornstarch. When I stopped eating corn for my son's benefit I was amazed at how much it helped me too. :)

I know it can be hard to sleep when you're worried and thoughts are racing through your mind. What kind of pre-bedtime habits do you have? A cup of tea or a warm shower really helps me unwind so I can sleep better. If I'm exhausted life can seem so overwhelming.

I hardly eat any corn now because I was feeling less well after eating it. I only eat corn tortillas about every 3 or 3 weeks when I make tacos. I will have to think about that too. I am going to check out the candida thing, I don't know much about it.

I prepare all of my sweets myself so I know whats in them and never eat the prepared stuff. Most of the gluten free prepared stuff has soy, so I never got into it. I have used corn starch to thicken some things. Why does the corn bother?

I got tested on the dairy and came back okay.

I'm still feeling bad today, but better than yesterday. I just want to cry right now alot. Thanks for your help.

Mother of Jibril Enthusiast
I hardly eat any corn now because I was feeling less well after eating it. I only eat corn tortillas about every 3 or 3 weeks when I make tacos. I will have to think about that too. I am going to check out the candida thing, I don't know much about it.

I'm still feeling bad today, but better than yesterday. I just want to cry right now alot. Thanks for your help.

Corn seems to be a common IgG allergen (just like gluten, dairy, and soy)... probably because it's difficult for the body to digest. The corn we eat today is very different from the original plant. It's also one of the most heavily genetically-modified foods <_< I'm checking into the candida thing too... I'm planning to try the SCD starting in January. Corn is in everything! If you get rid of corn syrup, corn starch, corn oil, etc... that eliminates a LOT of processed foods.

Another idea for you... vitamin D. I'm taking 4000iu per day and I feel a LOT more emotionally stable. :)

Amber M Explorer
Corn seems to be a common IgG allergen (just like gluten, dairy, and soy)... probably because it's difficult for the body to digest. The corn we eat today is very different from the original plant. It's also one of the most heavily genetically-modified foods <_< I'm checking into the candida thing too... I'm planning to try the SCD starting in January. Corn is in everything! If you get rid of corn syrup, corn starch, corn oil, etc... that eliminates a LOT of processed foods.

Another idea for you... vitamin D. I'm taking 4000iu per day and I feel a LOT more emotionally stable. :)

I am on the vit. D (400 IU) for the last 2 months. It is probably one the threads holding my brain together right now! LOLI

I am not eating any processed foods right now at all. Very basic seems to be the best, and I still screw up now and then. Like the Lays potato chips. Done with those! Rice seems to work the best on my stomach right now. (rice flower, pasta, etc.)

I started the "Oil Pulling" 3 days ago after researching it. I has already cleared my fluid biuldup out and whitened my teeth. When I start my dentist regimen in Feb., I'll be anxious to see if it changes my gum disease. It is suppose to detox the body too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

400iu of vitamin D is better than nothing, but that's just the RDA (which really needs to be revised). You need at least 2,000iu per day to raise your blood levels... depending on your weight you could take even more. Anything under 10,000iu is considered safe for long-term use.

Check out this website:

Open Original Shared Link

I'm glad to hear that the oil treatment seems to be helping! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    2. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Scott Adams replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,263
    • Most Online (within 30 mins)
      7,748

    Fruitypebbles
    Newest Member
    Fruitypebbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.