Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If Something Has Been Missed

Amber M

Recommended Posts

Amber M Explorer
Amber M
Posted

Hi everyone, I have been (I am pretty sure) gluten free for over 4 months now and have been on a roller coaster. I start feeling better and then right back down hill. I am depressed and moody today. I feel like crap. My neuro symptoms are back and I have had a lower colon ache with lower back ache for 3 days. The only thing I could have been glutened or soyed by is Lays Potatoe chips.

They say they are gluten free, but made in the factory with other gluten. The equipment is washed, blah, blah, blah.......Does anyone else get a reaction from that?

Then I had a the annual Christmas party last night. Everyone brings something. My counters were covered with GLUTEN stuff. I had my own home made chicken drummets and fresh veggies. Oh Yea!!! I didn't think I'd be jelous, but I was because I felt like crap already. I guess if I felt better, I'd be less bothered by it. I made sure I washed me and my kitchen well, but I could smell the pizzas half the night even though they were out of the house.

I just want to be well and I woke up several times last night wondering if something has been missed and got full of worry like, am I full of cancer or something. I just feel so bad off and on and I don't understand this. How can I feel good and then so bad? I am just sick of being sick.

This is normal is it?? And what about the Lays Plain Chips? Any input? Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hi Amber,

I'm sorry that you're feeling so bad!

DQ7 is associated with gluten intolerance, casein intolerance, and grass/pollen allergies... Is there anything you started eating a lot more of when you went gluten-free? I noticed in your signature that you went soy-free 30 years ago... what about corn? You could also try things like dairy, nuts, citrus, nightshades, tapioca, coconut... or even go on the SCD or the anti-candida diet. Once your body heals you might be able to tolerate a lot more foods again.

When I stopped eating gluten I started eating a LOT more corn than usual... corn chips, corn cakes, corn bread. Plus a lot of the gluten-free goodies have cornstarch. When I stopped eating corn for my son's benefit I was amazed at how much it helped me too. :)

I know it can be hard to sleep when you're worried and thoughts are racing through your mind. What kind of pre-bedtime habits do you have? A cup of tea or a warm shower really helps me unwind so I can sleep better. If I'm exhausted life can seem so overwhelming.

Lisa Mentor
Lisa
Posted

Many people here react to Frito/Lays Products, even though they are gluten free,. The cross contaimination during manufacturing seems to cause a problem for some.

Amber M Explorer
Amber M
Posted
  • Author
Many people here react to Frito/Lays Products, even though they are gluten free,. The cross contaimination during manufacturing seems to cause a problem for some.

Thanks, I suspected the chips because I seem to recall the last few times I'd eaten them before this time, I had a reaction to. Well, there's one more thing down.

Amber M Explorer
Amber M
Posted
  • Author
Hi Amber,

I'm sorry that you're feeling so bad!

DQ7 is associated with gluten intolerance, casein intolerance, and grass/pollen allergies... Is there anything you started eating a lot more of when you went gluten-free? I noticed in your signature that you went soy-free 30 years ago... what about corn? You could also try things like dairy, nuts, citrus, nightshades, tapioca, coconut... or even go on the SCD or the anti-candida diet. Once your body heals you might be able to tolerate a lot more foods again.

When I stopped eating gluten I started eating a LOT more corn than usual... corn chips, corn cakes, corn bread. Plus a lot of the gluten-free goodies have cornstarch. When I stopped eating corn for my son's benefit I was amazed at how much it helped me too. :)

I know it can be hard to sleep when you're worried and thoughts are racing through your mind. What kind of pre-bedtime habits do you have? A cup of tea or a warm shower really helps me unwind so I can sleep better. If I'm exhausted life can seem so overwhelming.

I hardly eat any corn now because I was feeling less well after eating it. I only eat corn tortillas about every 3 or 3 weeks when I make tacos. I will have to think about that too. I am going to check out the candida thing, I don't know much about it.

I prepare all of my sweets myself so I know whats in them and never eat the prepared stuff. Most of the gluten free prepared stuff has soy, so I never got into it. I have used corn starch to thicken some things. Why does the corn bother?

I got tested on the dairy and came back okay.

I'm still feeling bad today, but better than yesterday. I just want to cry right now alot. Thanks for your help.

Mother of Jibril Enthusiast
Mother of Jibril
Posted
I hardly eat any corn now because I was feeling less well after eating it. I only eat corn tortillas about every 3 or 3 weeks when I make tacos. I will have to think about that too. I am going to check out the candida thing, I don't know much about it.

I'm still feeling bad today, but better than yesterday. I just want to cry right now alot. Thanks for your help.

Corn seems to be a common IgG allergen (just like gluten, dairy, and soy)... probably because it's difficult for the body to digest. The corn we eat today is very different from the original plant. It's also one of the most heavily genetically-modified foods <_< I'm checking into the candida thing too... I'm planning to try the SCD starting in January. Corn is in everything! If you get rid of corn syrup, corn starch, corn oil, etc... that eliminates a LOT of processed foods.

Another idea for you... vitamin D. I'm taking 4000iu per day and I feel a LOT more emotionally stable. :)

Amber M Explorer
Amber M
Posted
  • Author
Corn seems to be a common IgG allergen (just like gluten, dairy, and soy)... probably because it's difficult for the body to digest. The corn we eat today is very different from the original plant. It's also one of the most heavily genetically-modified foods <_< I'm checking into the candida thing too... I'm planning to try the SCD starting in January. Corn is in everything! If you get rid of corn syrup, corn starch, corn oil, etc... that eliminates a LOT of processed foods.

Another idea for you... vitamin D. I'm taking 4000iu per day and I feel a LOT more emotionally stable. :)

I am on the vit. D (400 IU) for the last 2 months. It is probably one the threads holding my brain together right now! LOLI

I am not eating any processed foods right now at all. Very basic seems to be the best, and I still screw up now and then. Like the Lays potato chips. Done with those! Rice seems to work the best on my stomach right now. (rice flower, pasta, etc.)

I started the "Oil Pulling" 3 days ago after researching it. I has already cleared my fluid biuldup out and whitened my teeth. When I start my dentist regimen in Feb., I'll be anxious to see if it changes my gum disease. It is suppose to detox the body too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

400iu of vitamin D is better than nothing, but that's just the RDA (which really needs to be revised). You need at least 2,000iu per day to raise your blood levels... depending on your weight you could take even more. Anything under 10,000iu is considered safe for long-term use.

Check out this website:

Open Original Shared Link

I'm glad to hear that the oil treatment seems to be helping! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Known1
      - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      When the pizza was dropped off she told me it had a Udi's certified gluten-free crust. Even so, I am trying to play things as safe as possible for at least the next 6-months. With that said, I returned the two slices to my neighbor and asked her to thank her mom for the pizza. 😊 I will likely bump into my neighbor's mom sometime next week. She sh...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      9

      Related issues

      Thankyou.
    3. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      11

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

      Both homemade vinegar and fermented pickles have wonderful flavors of herbs, spices and tartness. However, fermented pickles contain healthy probiotics whereas vinegar pickles do not! https://cleanfoodliving.net/fermented-pickles/
    4. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      1

      Barilla gluten free pasta

      @Colleen H, How are you doing? I hope you're improving. Yes, I react to gluten free products with corn in them. Segments of the protein in corn are the same as protein segments in gluten. So I react as though I've eaten gluten if I eat anything with corn. I take a combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 together. ...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Curious question

      I APPRECIATE you validating everything because this is a nightmare and the only reason why im fighting is because I don't want future generations to deal with this bs and medical should take responsibility for their lack of actions. Autoimmune disorder aka " food allergies " should be a mandated reportable disease for the safety of the patients.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,449
    • Most Online (within 30 mins)
      7,748
    KeSmith
    Newest Member
    KeSmith
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Known1
      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      By Known1 · Posted

      When the pizza was dropped off she told me it had a Udi's certified gluten-free crust.  Even so, I am trying to play things as safe as possible for at least the next 6-months.  With that said, I returned the two slices to my neighbor and asked her to thank her mom for the pizza.  😊  I will likely bump into my neighbor's mom sometime next week.  She shuttles my neighbor's son, a freshman, to and from high school.  As mentioned, she is very kind so I am sure she will understand.  Heck, at least it went back to her family members and not in the trash.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Thankyou.
    • knitty kitty
      Barilla gluten free pasta

      By knitty kitty · Posted

      @Colleen H, How are you doing?  I hope you're improving. Yes, I react to gluten free products with corn in them.  Segments of the protein in corn are the same as protein segments in gluten.  So I react as though I've eaten gluten if I eat anything with corn.   I take a combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 together.  These act as a pain reliever as good as any over the counter pain reliever.  They won't hurt the stomach like aspirin or acetaminophen.   Thiamine will help nausea, anxiety, constipation, and headache.  Pyridoxine B6 and B12 will help with the pins and needles.  Magnesium helps work with thiamine to relieve symptoms. I also take a B Complex to boost absorption not absorbed from foods.  Niacin B3 helps with the anxiety, too.   Best wishes.
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      I APPRECIATE you validating everything because this is a nightmare and the only reason why im fighting is because I don't want future generations to deal with this bs and medical should take responsibility for their lack of actions. Autoimmune disorder aka " food allergies " should be a mandated reportable disease for the safety of the patients. 
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my "new care",i thought. I had  scheduled appointment in March zoom call just to be dump, it was CANCELLED on their part! My appointment isn't there anymore! I do have appointment with Mayo clinic Tuesday on the phone. I also did talk to our local representative in Stanislaus office this past Friday, yesterday and ( Justin) thinks he knows about celiac disease. I don't think he understands because he told me he knows all about celiac! Well Justin why am I dealing with this bs in your county? Hintz the reason why I feel the need to go to city hall meeting yet I  don't have the medical  support....
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.