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New Endocrinologist

mef

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mef Newbie
mef
Posted

Hi all,

I was diagnosed with celiac about a year ago and have been feeling better since going gluten-free. However, I decided to go see an endocrinologist and I wanted to hear if you all, being fellow non-gluties, had suggestions for tests to run. I am going because I had low cortisol and high TSH indicator. The T3/T4 came back normal, though.

I'm concerned that being ill for so long and being on seriously wrong medication might have thrown my system out of whack.

I have profound exhaustion and an unreal craving for salt. General anxiety and trouble sleeping. I tend to run hot with sweats. Oh, and the migraines. Yep, I'm one hot mess :)

Anyway, I would appreciate any advice or experiences you all could give me. Thanks!

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mamabear Explorer
mamabear
Posted

Hi mef,

I would suggest 24hr urine cortisol,8A & 4P serum cortisols,and thyroid antibody panel with free(unbound)T4 and T3 to start. Any wet behind the ears endocrinologist should run these tests. Their recent literature is peppered with articles about celiac disease and endocrime comorbid conditions. Hopefully you'll have one who reads!

georgie Enthusiast
georgie
Posted

I used to get a lot of migraines until I was dx as Adrenal Insufficient and got my replacement cortisone. I don't seem to get them now. I also crave salt Make sure your Dr also tests your electrolytes ( salt/ potassium etc ) as that may show why you crave salt. Also make sure Dr checks your BP and checks it from lying down to standing up. That may show something. Have you had Thyroid antibodies tested ? Good luck!

Amber M Explorer
Amber M
Posted
I used to get a lot of migraines until I was dx as Adrenal Insufficient and got my replacement cortisone. I don't seem to get them now. I also crave salt Make sure your Dr also tests your electrolytes ( salt/ potassium etc ) as that may show why you crave salt. Also make sure Dr checks your BP and checks it from lying down to standing up. That may show something. Have you had Thyroid antibodies tested ? Good luck!

I see in your signature that you had a negative blood test and yet you have DQ 2 gene. It confirms what my allergist says, "the blood tests are unreliable." I pays to have the gene test doesn't it? I hear so many stories about this. It makes you wonder just how many people are walking around out there with all kinds of health problems and getting diagnosed with auto-immune diseases when all the time it's the gluten!! Health insurance needs change!!

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