Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance


eeyore

Recommended Posts

eeyore Collaborator

What are the symptoms of soy intolerance?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I believe they wil probably be different for each person. For me, I developed a bright red itchy rash on my torso from my neck down. This was from all the soy in the gluten replacement foods I consumed.

eeyore Collaborator

Are things like sharp abdominal pains symptoms? And would there be anything special associated with things like constant back pain and joints cracking, or constant fatigue? I'm already off gluten and casein.

AliB Enthusiast

Soy gives me backache and stomach discomfort. It is getting better since I started the Specific Carb Diet(SCD) but then soy is one of the things that is not permitted on the diet for the very reason that a lot are intolerant of it.

Processed soy stuff is pretty evil. The Japanese eat a lot of it but they have it fresh and fermented in the way of miso, tempeh and tofu. We just have it 'mucked about with'!

I also find it VERY mucous-forming.

I see this all the time on here - people asking about intolerances to other foods - it is so common I wish we could put a banner at the top of the page to just direct people straight to the SCD. It would cut all those constant unrelenting questions from those who just don't know where to turn!

Whilst there are a few that may get better after dropping gluten, by far the majority don't, or improve a little then get stuck or even go backwards. Gut dysbiosis and rogue bacteria in the digestive tract, whilst initially knocked back after their gluten food source is removed soon transfer and adapt to new ones like soy, or corn and come back with a vengeance.

We've all been there. The SCD, by removing the long-chain carbs that feed them helps get them under control and encourages the body to heal. Much of the gluten-free foods out there just keep the damage going - it is only by removing it all that we stand any chance of recovering properly.

There is a lot of testimented evidence that the SCD works and those of us on here who are following are gradually getting better. Check out the SCD thread on this section and for more info 'breaking the vicious cycle' and 'Pecanbread' are the best sites about the diet itself and why it works.

nutrifoodie Apprentice
Soy gives me backache and stomach discomfort. It is getting better since I started the Specific Carb Diet(SCD) but then soy is one of the things that is not permitted on the diet for the very reason that a lot are intolerant of it.

Processed soy stuff is pretty evil. The Japanese eat a lot of it but they have it fresh and fermented in the way of miso, tempeh and tofu. We just have it 'mucked about with'!

I also find it VERY mucous-forming.

I see this all the time on here - people asking about intolerances to other foods - it is so common I wish we could put a banner at the top of the page to just direct people straight to the SCD. It would cut all those constant unrelenting questions from those who just don't know where to turn!

Whilst there are a few that may get better after dropping gluten, by far the majority don't, or improve a little then get stuck or even go backwards. Gut dysbiosis and rogue bacteria in the digestive tract, whilst initially knocked back after their gluten food source is removed soon transfer and adapt to new ones like soy, or corn and come back with a vengeance.

We've all been there. The SCD, by removing the long-chain carbs that feed them helps get them under control and encourages the body to heal. Much of the gluten-free foods out there just keep the damage going - it is only by removing it all that we stand any chance of recovering properly.

There is a lot of testimented evidence that the SCD works and those of us on here who are following are gradually getting better. Check out the SCD thread on this section and for more info 'breaking the vicious cycle' and 'Pecanbread' are the best sites about the diet itself and why it works.

Being allergic to soy is hard.

I get very uncomfortable, make me feel wicked sick, gastro/intenstine symptoms.

and I feel like crap.

lol. being soy free is so nice though

eeyore Collaborator

I never thought about the mucous -I've had a constantly stuffed nose and just assumed it was allergies. I guess it might not be.

I think that's exactly what's happening to me. I got a little better, then started getting worse and came to a standstill. A lot of the things I'm eating now have soy in them.

Bell Apprentice

I've been reading the SCD thread with great interest, but wouldn't it make sense to have a whole forum for SCD discussions? At 67 pages the one thread feels in danger of collapsing under the strain! and it's hard for newbies to find the basic info in there.

anyone else agree?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I think we might need some suggestions from the moderators in terms of the best way to manage. SCD belongs in this forum because it is gluten free, but how to organize it in this forum is the question. We've already started a dedicated thread for recipes for SCD.

AliB Enthusiast

Hear, hear, Sherry. There are of course, dedicated SCD websites with their own forums, but there are so many struggling on here that would benefit from the diet that it would be hard to abandon it for other climes.

I just wish we could put a banner at the top of every section to direct people to it first before they end up posting yet another desperate question or plaintiff cry!

An SCD section on its own would be the best option, then those who are curious could investigate and those who know about it would be able to go straight to it.

It would be good to have some kind of description at the top of the section somehow to describe what the diet is and how it can help those who are still sick after going gluten-free.

Perhaps if enough of us appeal to Scott, he might just consider it............

mftnchn Explorer

In terms of soy intolerance, I agree that symptoms will be individual. What I did at about the 3 month mark Gluten-free Casein-free, was do some elimination testing. I eliminated all the grains first and then challenged them one by one. Rice seemed pretty ok, just a mild response. Corn was pretty iffy. I added in rice, and then eliminated all the legumes. I retested peanut, soy, and lima bean, maybe another couple. Soy made me ill for 24 hours. Don't remember all the symptoms, I'd have to review my notes. Peanut also was a problem.

My next idea was to eliminate the nightshades but I never got around to it.

After eliminating soy, I improved. I also went corn lite, and avoided peanut.

At the 15 month mark, my doctor put me on SCD. I had another very clear jump forward in healing. It was the most distinct of all the changes, including gluten-free.

All that to say, probably you will have to eliminate and challenge soy to see if it makes a difference for you.

eeyore Collaborator

Would really dry skin be a symptom?

kschauer Rookie

Soy gives me some stomach and back pain. And usually has a laxative effect on me as well. I had been gluten free for a year and doing fine until one week were I consumed a significantly larger amount of soy, combined with an out of the ordinary amount of stress. I then figured out that soy was a problem for me. I am on the SCD and doing much better.

AliB Enthusiast

Dry skin could be linked - it is difficult to say as we all react differently.

Are you getting enough good fats? The body needs enough fat to work effectively - the brain is apparently at least 60% fat.

Contrary to popular opinion some fats that are considered good, like corn oil and sunflower are actually not beneficial to the body as they are usually highly processed.

Good fats conversely include some mainly condemned by the 'experts' - butter, animal fats, coconut oil and olive oil are beneficial. We need a certain amount of saturated fat. What controls cholesterol is not fat, otherwise those cultures that exist on 50% or more fat like the Inuit, would have high cholesterol, which they don't - what pushes cholesterol up is carbohydrates and refined sugars. Fats can contribute to it but only when eaten with high-carb and/or high-sugar.

Sorry, you may already know this but I thought I would post it for the benefit of others reading this thread!

dollamasgetceliac? Explorer

I just posted about having severe bloating and distention, I realise that I have been eating mostly CARBS and MEAT and SOY , the more I eat the sicker I get so then I cant stand in the kitchen chopping vegitables. So What is the Diet? I stay away from Dairy and all nuts , Fish due to severe food alergies.

thnx

LL

AliB Enthusiast
I just posted about having severe bloating and distention, I realise that I have been eating mostly CARBS and MEAT and SOY , the more I eat the sicker I get so then I cant stand in the kitchen chopping vegitables. So What is the Diet? I stay away from Dairy and all nuts , Fish due to severe food alergies.

thnx

LL

Hi LL.

The Specific Carbohydrate Diet is based on good basic food groups - meat, fish, poultry, veggies, fruit, nuts, raw honey and plain live yogurt for gut flora restoration. It removes grains and starches that contribute to the gut damage and encourage rogue bacteria, yeasts and parasites. Anything processed or 'mucked about with' is not permitted, either.

Many of us have problems with carb digestion and often very low stomach acid which inhibits the digestive process and contributes to all kinds of health issues. As Hippocrates said, "all disease begins in the gut". Get the gut right and everything else will follow. For those with a very poor digestion the diet starts with gentle foods like cooked carrots and chicken then gradually increases the range as the gut starts to heal and is able to cope with more.

If you would like to know more there is an SCD thread on this section (up to 71 pages and still going!!) and two good sites to look at are the official SCD site 'breaking the vicious cycle' and 'Pecanbread', which although it is aimed for kids with autism has a lot of interesting info for the benefit of all with many health issues. There are quite a few SCD websites popping up now too as the diet gains popularity, with loads of tasty recipes.

There is also an SCD recipe thread in the 'recipes' section on this forum.

Hope this helps. Please feel free to ask anything on the SCD thread - we are all 'muddling' through together and discovering the benefits of the diet as we go. Certainly we are all much better on it than off it! Most people who follow this diet are able to achieve recovery eventually, although it may take some time depending on the degree of damage. Better slow recovery than no recovery!

Ali.

dollamasgetceliac? Explorer

Thank you so much. Problem is I am allergic to so many things. That is also the Cross contamination issue. So i need to find people whom also have all these food allergies and are on this diet.

thnx

ll

AliB Enthusiast

Many of us suffer with different food intolerances and allergies - they are not going to necessarily be exactly the same as yours, but that doesn't matter. We all react differently because we are different. We all react slightly differently because we have issues with different foods. We all react differently because we are dealing with slightly differing gut dysbiosis, and bacteria, and gut damage, and Leaky Gut issues. Collectively we will all have all of the issues but we will not all have the same ones at the same time!

The point is that they are all down to the same thing, so whatever your health issues, intolerances and allergies are, they can all be helped by the SCD. The important thing is to get the gut healed and once it is no longer permeable and letting the allergens through the allergies will very likely diminish or even stop.

There is nothing to be suspicious of. There is no ulterior motive. You don't have to pay for any expensive remedies or treatments. The only thing that is required for the healing process to start, is a change of diet. The type of diet we eat can very much contribute to getting us into the mess and diet can also get us out of it.

If you really want to know if others on the SCD have similar issues to you, then try posting them on the SCD thread and see what others come back with.

B'sgirl Explorer

Is it possible to tolerate Soy Milk (Silk) and not tolerate Soybean Oil (vegetable oil)? It seems that may be the case with my toddler.

AliB Enthusiast

It may be highly likely - although they are both highly processed, the oil is processed in a different way to the milk so there could be some chemical or changed element in the procedure that affects him.

Personally I would rather avoid anything with processed soy of any kind in it. Although soybeans used in the traditional way by the Japanese of soaking and fermenting (tofu, tempeh and miso) is reasonably good food, processed soy is not. The phytates are not removed during the process either and the whole process can render it at best a food empty of vital nutrients and enzymes, and at worst, toxic to the body.

Almond milk and Coconut milk may be better options (I make my own Coconut milk, and delish it is too - my method is in the SCD recipe thread in the Recipes section if you are interested in trying that). Rice milk and oat milk may be other options although fairly high carb and possibly fattening.

  • 6 months later...
wendysc Newbie

Soy definitely cause chronic fatigue for me. If I eat too much soy I feel like something is choking me. Too much soy oil and I have terrible indigestion or vomiting. The fatigue is the worst. I am usually full of energy but soy can make so tired I can't get out of bed. Sometimes I get joint pain with it. I haven't found anyone who takes my problems with soy oil seriously because they say that you can't be allergic to soy oil - my body says otherwise.

Are things like sharp abdominal pains symptoms? And would there be anything special associated with things like constant back pain and joints cracking, or constant fatigue? I'm already off gluten and casein.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,258
    • Most Online (within 30 mins)
      7,748

    Tdodge
    Newest Member
    Tdodge
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.