Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Genetic Factor's & Celiac Scary!


TiredofTums

Recommended Posts

TiredofTums Rookie

Well family! First I got diagnosed and now my nephew got diagnosed so there are 2 official family members with Celiac Disease! Now my mom is getting tested for we think she too has it! Not to mention a few others in my family that I also think may have it because of certain symptoms!

My gastrologist told me that it can be genetic and other family members can also have this disease and advised that all get tested.

Every single child in the family and every single sibling! Wow! I just thought it was only me and everybody else in my family would have something else. But two of us now are positive results! Amazing!

First my mother told me she was already to far gone to get tested. Now after two of us got tested positive she is wanting the test! LOL! Funny how I tried telling my family to get tested and none would listen to me. Now that my nephew tested positive they are all going to get checked out.

Going to start my gluten free diet starting New Years Eve!

This should be interesting not having those Glutens anymore but am glad that I finally have a name of what has been going on with me!

But a bit sad! For now I wonder if my children are Celiac and my Grandchildren!That has me worried so badly. I just hope they listen to me too and get tested. I have a feeling two of them are positive Celiac disease. But hope and pray the rest are not!

Then I have a great Nephew that I think has Celiac also. He has ADHD and my niece suspects he is Bi-Polar! Could it be Celiac causing his behavior?

How many in here have more than one family member with Celiac? Just curious if I am the only family or if there are more just like my family!

Going to be tough but I plan on getting well! Ohh I can't wait to see myself feeling better! I hope I see that happen and the damage is not where it can't be reversed.

But at least my children and family have that chance that I may not get because they are younger.

Got some money for Christmas and getting ready to go gluten free shopping!

Linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taweavmo3 Enthusiast

It is startling how strong the genetic factor is with Celiac. I ended up putting all of my children (and myself) on the diet after my daughter was diagnosed. We have all seen improvement. We also have loads of auto immune diseases in our family, autism, as well as family members with depression, ADD, and bi-polar disorder. I would love for everyone in my family to get tested....I think there would be several who came back positive.

lisa25 Rookie

It is scary how genetic celiac is! I have celiac, I suspect my mom and grandpa do as well as a lot of other relative on my mom's side of the family. My mom doesn't want to get tested or change her diet. My fiance has celiac as well as his mom and two sisters, aunt, and they suspect his uncle and grandma do as well based on their symptoms. The only nice thing, is that we can all be gluten free together! It definitely helps a little bit to have other's support.

TiredofTums Rookie

My mom has been the stubborn one about getting tested after I told her what my doctor suggested. But when she found out about my nephew she called me today asking me about certain foods in her home! LOL! She knows I ordered the Gluten Shopping Guide! She actually tossed her wheat bread she has been eating over 40 years in the trash can! ROFL!

Two weeks ago she told me she was too far gone and nothing could help her feel better! Now she is ready to get tested!

Worse part! She gets up in the mornings and has Wheat Toast. Lunch time she has Wheat Sandwich, Dinnertime she ends up getting a Stouffors Lasagna~ And then tells me how bad she feels every day! I wonder why?

There is no doubt in my mind she too is Celiac! Her symptoms have been identicle to mine for years and she has been suffering alot longer than I!

I suspect a whole lot more in my family! Who knows we might all be on this site before long~ LOL! It's not funny but I have to laugh to keep from crying!

This stuff had me so scared that I actually thought I was dying! I have been one sick pup!

The vomiting for me has been terrible, not to mention the upset stomachs that felt like labor pains. Even caused a Hiatial Hernia that might have to be surgically repaired now. Seeing a surgeon the 14th of January with my regular doctor to decide my fate there! So I am not out of the woods just yet! My hernia is very large!

Well better get offline and get ready for Christmas! Merry Christmas to all!

Linda

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Adeling commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - Sue7171 replied to Ginger38's topic in Related Issues & Disorders
      24

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    4. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    5. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,177
    • Most Online (within 30 mins)
      7,748

    Charlene Kearley
    Newest Member
    Charlene Kearley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Sue7171
      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral.  Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every 6 hrs. Hope this helps  The lidocaine cream is by tylenol and is available in a large tube on Amazon or at Walmart 
    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.