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Genetic Factor's & Celiac Scary!

TiredofTums

By TiredofTums
in Coping with Celiac Disease

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TiredofTums Rookie
TiredofTums
Posted

Well family! First I got diagnosed and now my nephew got diagnosed so there are 2 official family members with Celiac Disease! Now my mom is getting tested for we think she too has it! Not to mention a few others in my family that I also think may have it because of certain symptoms!

My gastrologist told me that it can be genetic and other family members can also have this disease and advised that all get tested.

Every single child in the family and every single sibling! Wow! I just thought it was only me and everybody else in my family would have something else. But two of us now are positive results! Amazing!

First my mother told me she was already to far gone to get tested. Now after two of us got tested positive she is wanting the test! LOL! Funny how I tried telling my family to get tested and none would listen to me. Now that my nephew tested positive they are all going to get checked out.

Going to start my gluten free diet starting New Years Eve!

This should be interesting not having those Glutens anymore but am glad that I finally have a name of what has been going on with me!

But a bit sad! For now I wonder if my children are Celiac and my Grandchildren!That has me worried so badly. I just hope they listen to me too and get tested. I have a feeling two of them are positive Celiac disease. But hope and pray the rest are not!

Then I have a great Nephew that I think has Celiac also. He has ADHD and my niece suspects he is Bi-Polar! Could it be Celiac causing his behavior?

How many in here have more than one family member with Celiac? Just curious if I am the only family or if there are more just like my family!

Going to be tough but I plan on getting well! Ohh I can't wait to see myself feeling better! I hope I see that happen and the damage is not where it can't be reversed.

But at least my children and family have that chance that I may not get because they are younger.

Got some money for Christmas and getting ready to go gluten free shopping!

Linda

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taweavmo3 Enthusiast
taweavmo3
Posted

It is startling how strong the genetic factor is with Celiac. I ended up putting all of my children (and myself) on the diet after my daughter was diagnosed. We have all seen improvement. We also have loads of auto immune diseases in our family, autism, as well as family members with depression, ADD, and bi-polar disorder. I would love for everyone in my family to get tested....I think there would be several who came back positive.

lisa25 Rookie
lisa25
Posted

It is scary how genetic celiac is! I have celiac, I suspect my mom and grandpa do as well as a lot of other relative on my mom's side of the family. My mom doesn't want to get tested or change her diet. My fiance has celiac as well as his mom and two sisters, aunt, and they suspect his uncle and grandma do as well based on their symptoms. The only nice thing, is that we can all be gluten free together! It definitely helps a little bit to have other's support.

TiredofTums Rookie
TiredofTums
Posted
  • Author

My mom has been the stubborn one about getting tested after I told her what my doctor suggested. But when she found out about my nephew she called me today asking me about certain foods in her home! LOL! She knows I ordered the Gluten Shopping Guide! She actually tossed her wheat bread she has been eating over 40 years in the trash can! ROFL!

Two weeks ago she told me she was too far gone and nothing could help her feel better! Now she is ready to get tested!

Worse part! She gets up in the mornings and has Wheat Toast. Lunch time she has Wheat Sandwich, Dinnertime she ends up getting a Stouffors Lasagna~ And then tells me how bad she feels every day! I wonder why?

There is no doubt in my mind she too is Celiac! Her symptoms have been identicle to mine for years and she has been suffering alot longer than I!

I suspect a whole lot more in my family! Who knows we might all be on this site before long~ LOL! It's not funny but I have to laugh to keep from crying!

This stuff had me so scared that I actually thought I was dying! I have been one sick pup!

The vomiting for me has been terrible, not to mention the upset stomachs that felt like labor pains. Even caused a Hiatial Hernia that might have to be surgically repaired now. Seeing a surgeon the 14th of January with my regular doctor to decide my fate there! So I am not out of the woods just yet! My hernia is very large!

Well better get offline and get ready for Christmas! Merry Christmas to all!

Linda

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