Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Best Crew Ever


Treen Bean

Recommended Posts

Treen Bean Apprentice

I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Sounds like you have wonderful people around you, people who are used to working together to achieve a common goal.

home-based-mom Contributor
I travel with a touring Broadway show for 8 months out of the year. Eating on the road is very difficult and monotonous for me. Last night, our company threw a Christmas party since we weren't able to go home for Christmas. I was so annoyed because I didn't think I would be able to eat anything. Boy was I wrong! Our props head was in charge of the catering and set up for the party. He took me grocery shopping with him to buy all gluten free crackers and cheese, chips and salsa, veggies and hummus, and fruit. Then, when he set everything up, he made sure all of the gluten filled foods were kept far away from my safe foods. He also made sure that only uncontaminated hands touched the gluten free foods. Then, he went one step further, before I arrived he made an announcement to everyone to be extra careful not to cross contaminate anything due to my food allergies. It was a wonderful party! I was able to eat just like everyone else without any fear of becoming sick! I love my cast and crew!

That's really cool! Doesn't it make you feel good when somebody goes out of their way to be nice? :)

YoloGx Rookie

Wow! that truly is wonderful! A good thing to counteract some of the down political news right now ....

Bea

jlinc Rookie

I always get so uncomfortable when people go out of their way to accomodate me, but it sure feels good, doesn't it?! :)

Treen Bean Apprentice

My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

JNBunnie1 Community Regular
My cast and crew are amazing people! It's wonderful how they are always looking out for me. They are always telling me when they discover/see gluten free foods, etc.... I even get surprise gluten free gifts left on my bus seat (everything from gluten-free cheesecake to gluten-free pretzels)!

Wow! Those guys are awesome!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kkkkaty Rookie

It is no small thing to have people around who are so supportive! I have been counting my blessings lately as I realize I have 3 close friends (couples) who cook wonderful meals for me- they will sometimes call several times while they are preparing to cook and ask me if I can eat this or that and what pans should they use etc. My other friends may not go to such lengths but at least they do not try to push food on me or get mad at me if I don't eat a meal. My husband and boys are also wonderful as well- my youngest now automatically reads labels on foods and will announce if I can eat it or not.

Still a little dicey going to Mom's but she tries hard and always has a basket of gluten free products awaiting every time I visit.

It's disheartening to read of how little support some are getting from family and friends. On the other hand it's great to see the support available here.

ang1e0251 Contributor

I'm so happy you are with people that are so caring since you live with them for most of your year. Family members could learn a lesson or two from your crew!

Jenny (AZ via TX) Enthusiast

What a wonderful, loving group of friends you have!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    2. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    4. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    5. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,167
    • Most Online (within 30 mins)
      7,748

    Coldwpg
    Newest Member
    Coldwpg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.