Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Mood Swings


Wall3424

Recommended Posts

Wall3424 Newbie

I have recently been diagnosed with celiac disease. The people closest to me in my life have been telling me lately that my mood swings and irratability have been off the charts. I am not very careful about cross contamination and making sure everything is gluten-free when I go out to eat. Could this be why I am so irratable and snap very easily at the ones closest to me? I feel like I am not myself and can not get back to the person I once was. At some points I can not even look at someone without getting annoyed, I know there is no reason for the annoyance but still I can not help it at all. I do not know what to do and I am afraid of loosing people in my life because of these out burts. Is this Celiac related or should I seek out other cause?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cat3883 Explorer

Thats how I was. Go completely Gluten Free. You must do this. Within 2 weeks I was much better. Over Christmas I somehow got glutened even though I am very careful. I got so edgy and grouchy. It has been 5 days and I still feel bad. You have no choice but to get all gluten out of your body.

sbj Rookie
my mood swings and irratability have been off the charts. ... I am so irratable and snap very easily at the ones closest to me? ... At some points I can not even look at someone without getting annoyed, I know there is no reason for the annoyance but still I can not help it at all. ... Is this Celiac related or should I seek out other cause?

Please don't be offended by my well-meaning response.

Mood swings and unexplained irritability are hallmark symptoms of bipolar disorder. I have some experience with this and the way you are describing this really does sound like bipolar disorder - although I am not trying to diagnose you. Do yourself a favor and read up a bit on it to see if anything makes sense or sounds familiar.

flourgirl Apprentice

I had the same issues after I started the gluten-free diet. I think part of it was "withdrawal" from the gluten, part of it was the absolute seemingly unending sickness. With everything I was dealing with, I know I was depressed and not at all myself. For a long time I didn't like myself at all, and avoided people as much as I could because I felt no tolerance at all for them.

I'm doing much better as I'm healing and starting to absorb the nutrients I need, and have been able to avoid gluten. (At first it was hard, as I had so much to learn about it). I still have some health issues, and sometimes struggle with mood....but it's not the ugly dragon that it was. I think you'll find you are far from the only one here :D

Good luck, heal fast, be patient with yourself.

Wall3424 Newbie

Thank you so much for the input flourgirl that made me feel much better about what is going on. I have never been like this before in my life. I always have been fairly carefree and very easy going. Your response helps a lot :D.

*lee-lee* Enthusiast

i noticed a major improvement in my overall mood once i went gluten free. like many others, i was not strict enough at first and was getting glutened left and right. it took a couple of months to really start to understand what i had to do to be healthy. only then did i notice i wasn't as grumpy and overall down in the dumps as before. i still have my moments but mostly it's due to accidental CC.

you'll do yourself a world of wonders if you can fully commit to being on the diet. ask us questions if you're not sure how to handle something. we are here to help! and it gets easier...i promise!

dilettantesteph Collaborator

My son 11 and I are both celiac and we both have that problem when glutened. It is the first thing to show up when accidentally glutened. It is much more noticeable to others than to us. My son will deny vehemently that he could possibly have been glutened when it is so obvious to my daughter and I by his grumpy behavior. Me too, I have to admit. We both get rather unreasonable. It may be just like bipolar disorder. I had a good friend with bipolar disorder, and it doesn't seem the same to me. Fortunately it goes away when we avoid gluten completely. You need to be more strict. Not just to avoid being grumpy, but to avoid future cancer. My mother died of lymphomia at age 47.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wall3424 Newbie

Thank you all so much for your input and support ive gone five days now with no gluten at all and already starting to see a difference with my irritability. Does anyone have any vitamins or any other supplements that they could recommend?

ang1e0251 Contributor

The mood swings are incredible if I am glutened. I usually warn everyone around me and apologize in advance. It's well worth it to committ to the gluten-free diet.

dilettantesteph Collaborator

I tested low for vitamin D. That would be expected anyway since I live in the North and it is winter. The doctor recommended 2000 i.u. a day. I think it may have further improved my mood. Some of those mood swings are probably caused by various vitamin deficiencies caused by the intestinal problems.

celiacsoyfree Newbie

In addition to gluten withdrawal and gluten ingestion, eating too many high glycemic foods can make you "crash" and get irritable. It is common to turn to high glycemic foods when transitioning to gluten-free. I made the same mistake. The book Living Gluten Free for Dummies goes over this on pages 94-109. :)

Eric-C Enthusiast

Ditto to the above.

During the summer I am pretty rock solid with my mood. Winter is up and down but as someone said Vitamin D is a big factor.

I never took supplements until about 2 weeks ago. Last winter I was pretty good mood wise the entire summer but we had the sunniest winter on record and due to work I was driving 3 hours a day, mid day, 3 days per week so a lot of sun exposure.

When I get gluten in a certain manner, and I'm still narrowing it down as to what causes a straight stomach reaction which lasts a day or two, and what causes me to feel the mental effects of it, if its the mental effect almost immediately my shoulders tighten and I get this very mild panic attack.

I get a good bought of anxiety for about 1-3 weeks.

Its kind of tough to explain since I've been through this so many times I don't really let it bother me. I know its strange to say you have a panic attack and don't let it bother you. A panic attack, is a physiological response. One of the biggest things I've started to learn is I wonder how many problems traditionally referred to as mental are physically related.

For a long time I thought the brain fog and other feelings were 'mental' but if I do things to relieve sinus and head pressure, so goes the feelings with it.

So do I really have a panic attack if I am just having the physical response but realize completely what is going on and just ignore it?

I also very very strongly agree on the GI index part. We eat a very low GI index diet. I can cheat a little, but if I get into a bad habit of having say Coke or Pepsi 2-3 days in a row holy crap do I turn into a prick :)

Its the same deal...I get very short tempered but that one is a big harder to control because anger is a more natural feeling so it takes a bit to catch it.

Taking Vitamin B(mix of all) and Vitamin D has done an amazing job making things even more normal. I used to just deal with the feeling after having gluten but its really made it disappear entirely.

When I first read about Vitamin B here I was coming off a bad reaction to gluten and it was amazing. Within minutes of taking the Vitamin B my head cleared and I relaxed. I started taking it daily and everything leveled out.

I stopped taking it and it took about 3 days for things to creep back in, but as soon as I started taking it again everything went to normal.

I tried so long to figure out the pattern of food, even foods without gluten, that was causing what was happening to my mood and if look back at what I tracked and how I felt the supplements are filling in the gaps.

I know a lot of people find this entire thing a burden and in a lot of cases it has serious effects on people's lives but what I've learned is amazing. All the pain, annoyance, and before I was truly diagnosed what I thought at the time were some pretty life threatening situations what I've learned has helped not only myself but also others within my family.

So every time I get sick its just another data point to figure more out.

Good luck and it really does help to track this stuff. What you eat, how much you eat, how you feel, etc. For the LONGEST time I could never figure out, and it was the most frustrating part of this, was why even when I had the most severe problem you could have, after I ate I felt great for 45 minutes...now I know it was the vitamin B...we tend to eat foods higher in B but I was so deficient I never built up enough stores.

Running your body is like running anything else, just have to find the correct mix and things will work.

Good luck.

ravenwoodglass Mentor
Thank you all so much for your input and support ive gone five days now with no gluten at all and already starting to see a difference with my irritability. Does anyone have any vitamins or any other supplements that they could recommend?

Sublingual B12 is going to help a great deal along with the vitamin D that was mentioned. Make sure the B12 is sublingual, until you heal your not going to be able to utilize it from a vitamin that dissolves in the stomach. Something I also found helpful was Royal Jelly from bees. It is loaded with the B vitamins and lots of other good stuff. If you are not allergic to bees you might want to give it a try. I notice a difference almost immediately when I take it. The kind I use comes with a little dosage spoon I put the jelly on it then squeeze a bit of honey on top and flip the spoon over as it goes into my mouth. Royal Jelly can taste bitter to some and this keeps the bitterness from bothering me.

Meanwhile be a bear about staying gluten free, it does sound like you are going through withdrawl also and if you get glutened it will prolong the withdrawl period.

celiacsoyfree Newbie

This is very helpful to me as well. I accidentally ate gluten on the 24th and was in severe pain the next day. (Why there was SOY SAUCE in hummus, I'll never know) I've been pretty depressed and anxiety ridden ever since. I didn't realize it was because of the gluten. I also started taking apple cider vinegar which cleared out my sinuses and is helping with healing. This helps transition the body by balancing the body's PH level, purging toxins, and reduces high glycemic cravings. It also help acclimate the taste buds to nongluten foods we aren't used to.

I suggest organic apple cider vinegar. 2 teaspoons or capfuls diluted with water, drink with a straw. You can do this once a day, I've done as much as 3 times a day. As your ph balances, it does not taste as pungent.

home-based-mom Contributor
I have recently been diagnosed with celiac disease. The people closest to me in my life have been telling me lately that my mood swings and irratability have been off the charts. I am not very careful about cross contamination and making sure everything is gluten-free when I go out to eat. Could this be why I am so irratable and snap very easily at the ones closest to me? I feel like I am not myself and can not get back to the person I once was. At some points I can not even look at someone without getting annoyed, I know there is no reason for the annoyance but still I can not help it at all. I do not know what to do and I am afraid of loosing people in my life because of these out burts. Is this Celiac related or should I seek out other cause?

Eating out can be very tricky, especially when you are new and learning. Most people give it up entirely at first, and eat out rarely even once they have some experience under their belts. Nor being careful about cross contamination pretty much guarantees that you will get glutened. If you go for a time without gluten and then get glutened (no matter how small) you symptoms may be different and much more intense than before you initially went gluten free.

The only solution is to make sure you are gluten free all day, every day. If you have to seem paranoid and neurotic about it at first, so be it. Eventually it will be second nature to you and those around you. ;)

Wall3424 Newbie
Sublingual B12 is going to help a great deal along with the vitamin D that was mentioned. Make sure the B12 is sublingual, until you heal your not going to be able to utilize it from a vitamin that dissolves in the stomach. Something I also found helpful was Royal Jelly from bees. It is loaded with the B vitamins and lots of other good stuff. If you are not allergic to bees you might want to give it a try. I notice a difference almost immediately when I take it. The kind I use comes with a little dosage spoon I put the jelly on it then squeeze a bit of honey on top and flip the spoon over as it goes into my mouth. Royal Jelly can taste bitter to some and this keeps the bitterness from bothering me.

Meanwhile be a bear about staying gluten free, it does sound like you are going through withdrawl also and if you get glutened it will prolong the withdrawl period.

Thank you, I am going to try these out as soon as I can.

Wall3424 Newbie

Yah, eating out and cross contamination are the things I have been having the most trouble with. Thank you all so much for your suggestions and sharing your experiences. I have noticed that I have been getting very bad anxiety and panic attacks frequently. I am a quiet and shy person and I do not like to make myself a burden so I do not really let people know about cross contamination because I feel bad. I am just going to have to start speaking up and bringing my own food places. I appreciate everyones input so much.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.