Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Side Effect Symptoms A Part Od Celiacs?


wykey

Recommended Posts

wykey Newbie

My husband had been finally diagnosed with coeliacs after 2 years of investigations, interspersed with broken limbs through osteoporosis.

My youngest (4yrs) son has similar toilet habits to my husband, he is a bit behind his peers developmentally (his older brother has always been top of the class but he is struggling with talking clearly) and average height despite an above average height father and above average height elder brother. So we took him to the pediatrician...

She asked me so many unexpected questions about his symptoms... I think I may have answered some wrong: 1) do his lips ever turn blue? and 2) is he very pail?

She ran a blood test and rang me before Xmas saying he has low blood platelets, which might be an indicator of coeliacs, but the coeliac test will take alot longer to come back... I am still waiting... but in the mean time I have had more time with him that I would normally get due to the holiday period, which led me to note 2 important things:

1) I have noticed his skin is more yellowy and pail, almost jaundice, compared to his elder brother, who has the same amount of exposure to the sun.

2) I also notice that his lips turn purple after running around for a little bit!

Are these coeliacs symptoms... possibly due to anemia as a result of coeliacs?

Should I ring the doctor to tell here I have noticed these things, in case it indicates another condition?

I really need some help and support, and you all seem so knowledgeable, and experienced. Please help.

Many thanks,

Lydia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoeB Apprentice

Lydia -

I have no medical background, but the symptoms you describe do not sound like celiac symptons. If anything, it sounds like your son is having trouble absorbing oxygen, which may indicate that there is a pulmonary problem. You may want to contact another physician to get another opinion.

Good luck.

ravenwoodglass Mentor

The symptoms you mention were one of the concerns for my DD. It scared me to death when she had gym the last period of the day. She would get into my car pale, excessively tired, trembling and with blue lips. It lead to them thinking at first that she had a bad heart and we got to do the holter monitor for a few days. It did turn out to be part of her celiac presentation.

NewNicole Apprentice

Lydia,

These are important things to mention to your doctor and I would call him. I have asthma and my lips will turn blue along with my face becoming blotchy when during an attack. It is from the lack of oxygen. I do also know that your lips can turn blue when you are cold so perhaps there is another very innocent reason for that reaction your son is having. But the yellowing of the skin is jaundice this is from the billirubin the liver produces. You will really see the change in color in the eyes. That will indicate and issue with the liver. I have 3 children and my daughter is as pale as a ghost naturally where my son looks almost italian. Both my husband and I are pale but somewhere down the line he got the great coloring. When you put the too together my son looks more yellow but he's fine. Also both of my boys had jaundice when they were born so I can tell you the eyes really give it away. So look at the whites of his eyes so check there and then in my opinion I would call the doctor. It's always important to mention all the details. Good luck.

wykey Newbie

Thank you all for your replies.

I am contacting the pediatrition about this. I feel alot more confident about it and reassured about the possible causes and corses of action. I will let you know how his tests turn out.

Lydia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

    2. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    3. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    4. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    5. 0

      Virtual Support Group: Living Gluten Free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,451
    • Most Online (within 30 mins)
      7,748

    emzie
    Newest Member
    emzie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      This is an older article, but still helpful:  
    • cristiana
      It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now.  Probably cutbacks, everyone's trying to save money now!
    • Scott Adams
      Eating grains typically depletes certain B vitamins, so I'm not sure why they decided to fortify with calcium and iron, but hopefully we'll see more B vitamin fortification in gluten-free products going forward.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.