Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Side Effect Symptoms A Part Od Celiacs?


wykey

Recommended Posts

wykey Newbie

My husband had been finally diagnosed with coeliacs after 2 years of investigations, interspersed with broken limbs through osteoporosis.

My youngest (4yrs) son has similar toilet habits to my husband, he is a bit behind his peers developmentally (his older brother has always been top of the class but he is struggling with talking clearly) and average height despite an above average height father and above average height elder brother. So we took him to the pediatrician...

She asked me so many unexpected questions about his symptoms... I think I may have answered some wrong: 1) do his lips ever turn blue? and 2) is he very pail?

She ran a blood test and rang me before Xmas saying he has low blood platelets, which might be an indicator of coeliacs, but the coeliac test will take alot longer to come back... I am still waiting... but in the mean time I have had more time with him that I would normally get due to the holiday period, which led me to note 2 important things:

1) I have noticed his skin is more yellowy and pail, almost jaundice, compared to his elder brother, who has the same amount of exposure to the sun.

2) I also notice that his lips turn purple after running around for a little bit!

Are these coeliacs symptoms... possibly due to anemia as a result of coeliacs?

Should I ring the doctor to tell here I have noticed these things, in case it indicates another condition?

I really need some help and support, and you all seem so knowledgeable, and experienced. Please help.

Many thanks,

Lydia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoeB Apprentice

Lydia -

I have no medical background, but the symptoms you describe do not sound like celiac symptons. If anything, it sounds like your son is having trouble absorbing oxygen, which may indicate that there is a pulmonary problem. You may want to contact another physician to get another opinion.

Good luck.

ravenwoodglass Mentor

The symptoms you mention were one of the concerns for my DD. It scared me to death when she had gym the last period of the day. She would get into my car pale, excessively tired, trembling and with blue lips. It lead to them thinking at first that she had a bad heart and we got to do the holter monitor for a few days. It did turn out to be part of her celiac presentation.

NewNicole Apprentice

Lydia,

These are important things to mention to your doctor and I would call him. I have asthma and my lips will turn blue along with my face becoming blotchy when during an attack. It is from the lack of oxygen. I do also know that your lips can turn blue when you are cold so perhaps there is another very innocent reason for that reaction your son is having. But the yellowing of the skin is jaundice this is from the billirubin the liver produces. You will really see the change in color in the eyes. That will indicate and issue with the liver. I have 3 children and my daughter is as pale as a ghost naturally where my son looks almost italian. Both my husband and I are pale but somewhere down the line he got the great coloring. When you put the too together my son looks more yellow but he's fine. Also both of my boys had jaundice when they were born so I can tell you the eyes really give it away. So look at the whites of his eyes so check there and then in my opinion I would call the doctor. It's always important to mention all the details. Good luck.

wykey Newbie

Thank you all for your replies.

I am contacting the pediatrition about this. I feel alot more confident about it and reassured about the possible causes and corses of action. I will let you know how his tests turn out.

Lydia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

    2. - Jmartes71 replied to annamarie6655's topic in Super Sensitive People
      4

      Airborne Gluten?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,128
    • Most Online (within 30 mins)
      7,748

    Susan Wales
    Newest Member
    Susan Wales
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
    • Jmartes71
    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.