9 Month With Celiac?

[krepe28]

My son has had a lot of eating issues since birth...he was diagnosed with acid reflux at 4 months. Then at 6 months he was put on a laxative because he was constipated all the time. He is not the best eater - doesnt always have an appetite - never has...really hates baby food and prefers solids. Now at 9 months they would like to test for celiac. I just mentioned to my dr at his 9 month check yesterday that he has diarrhea now but still gets constipated and that his diarrhea is foul smelling. We go Sat for our blood test but of course now i am nervous. My husband's aunt and cousin have celiac disease. Autoimmune diseases are prevalent in my family - my niece has addison's , my sister has thyroid and my grandmother had lupus. Anyway - What does a baby at about 9 month act like with Celiac? He gets very irritable and fussy for a good hour before he finally has a bowel movement...

[Genna'smom]

Not sure if I can help or not ut my daughter who was diagnosed at almost 2 years had a horrible early childhood. She was like yours never wanted to eat and went from baby foods to solids at 9 months old, she was always constipated (never got the D symptoms and still is constipated). She would scream at night for periods of time and was unconsolable. The drs then disgnosed her with acid reflux and she is n prevacid. She does have it as we did a study. She also has slow stomach emptying which makes her not so hungry. Well long story short after 2 hospital stays at different hospitals within 3 months and spent 2 3/4 months in the hospitals for failure to thrive as she stopped eating and drinking all together they did found she has celiac disease after doing biopcies. Blood work said no and so did allergy testing as she has no allergies to anything. Also she never slept through the night till about 4 months ago after her 2nd birthday and now she does after going gluten free.

Good luck and do what you feel is best for your child and push for it. We really had to do it.

Bonnie

[EmmyLouWho?]

Like Bonnie my 2 year old who was diagnosed also had a rough early childhood. He didn't sleep through the night until he was over a year and a half. He refused baby foods and didn't go to solids until a year, among other symptoms like pale skin, diarrhea, fatigue, low weight, etc. (these symptoms weren't from the start, they developed slowly).

My other son (9 months) has not been tested but I'm suspicious. He has many of the same symptoms as my other son did. We'll have a better idea once he starts on solids (he's refused ANY baby food just like my other son).

Good luck! Hopefully, no matter what, you'll get some answers.

[krepe28]

I appreciate your posts!! My 2 1/2 year old was so easy to feed - everything about feeding my younger son is a chore - takes very little formula and very rarely wants eat - so frustrating... It appears that most people on this forum found that bloodtests dont really show celiac in children that young.. i certainly hope he doesnt have it but at least i would know why it's been so difficult -

[bear6954]

My son was diagnosed 2 with celiac. He had very classic symptoms to the point that he quit growing for almost a year. He fell off the growth chart and was so clingy and grumpy. He threw up several times a week and had 7-9 messy, poopy diapers a day. he had awful diaper rash. He was blood work negative, DNA positive for both DQ2 genes and bioposy positive. They said his blood work was negative because of his age. You may look into a DNA test. I was able to get my covered by insurance for the entire family. They run about $300-400 and you can do them yourself (cheek swab) if your dr is not cooperating. The one thing I learned about this whole process is to go by your gut feeling. Its a very helpless feeling when you cant make your child feel better. Before he was diagnosed, I had never heard of celiacs (by the way I am DNA positive but bioposy negative). Good luck.