Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok So Now I Know What It Is, But How Do I Deal With The Symptoms Like Ringing Ears, And Blurred Visoin?


mr. moore

Recommended Posts

mr. moore Explorer

i guess the only treatment for tinnitus (i recently discovered that not everyone has a low, static sound in their ears) is dietetic, which basically make you pee more? and excersizing. all i DO is excersize, and i pee pretty up to standards. and the blurred vision (which used to be just slightly blurred but now it has fun little color dots, and whenever i move my head while looking there's a mirror image of what i saw for a second) my eye doctor said i'm fine and to just wear sunglasses since im increasingly sensitive to it. all of this added together makes a pretty weird experience for me, and some weird nightmares.

what can i do to alleviate these? i do avoid MSG laced products since i heard it can cause the problems. any hollistic approaches? thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 59
  • Created
  • Last Reply
tom Contributor

My tinnitus & vision issues cleared up w/in a few wks after I eliminated EVERYTHING troublesome from my diet. It's a long list, but includes soy, dairy, sugar/sweeteners, corn, potatoes etc etc

mr. moore Explorer

if i was allergic to those you said i would of known by now. the only thing irecently was diagnosed with was candida overgrowth (white tounge, only carbs seem t have taste). i have cleaned up my diet though. only thing left is the...lol well thats a whole nother topic. i still need relief though. at least with the buzz in my ear. very hard to differentiate noises.

tom Contributor
if i was allergic to those you said i would of known by now. the only thing irecently was diagnosed with was candida overgrowth

I'm not allergic to any of them either, and didn't realize any were a problem until I quit them for a couple wks and found seemingly unrelated problems vanishing.

I wasn't trying to say you have any of same intolerances as I, just that the problem could easily be diet-related.

I'm pretty sure that most celiacs who have candida also have Leaky Gut Syndrome, which can induce intolerances as partially-digested food sneaks through into the bloodstream where it's seen as a foreign invader.

Are you treating the candida overgrowth & on an anti-candida diet?

rinne Apprentice

B12 may help some of those symptoms but as Tom says diet changes may help also.

Who gave you the candida diagnosis?

mr. moore Explorer
B12 may help some of those symptoms but as Tom says diet changes may help also.

Who gave you the candida diagnosis?

i did try the diet, wheat free, dairy free, gluten free...

i was on the phone with a dentist, or scientist from DAMS (dental amalgam mercury syndrome) and i told him about all the problems ive been through and the misdiagnoses, and just mentioned that my tounge always has a white coating on it and mentioned my almost always bloated stomach no matter how much i work out. he said that's candida. i told him i also went on a diet change for it and he said mercury can somehow cause the overgrowth.

rinne Apprentice
i did try the diet, wheat free, dairy free, gluten free...

i was on the phone with a dentist, or scientist from DAMS (dental amalgam mercury syndrome) and i told him about all the problems ive been through and the misdiagnoses, and just mentioned that my tounge always has a white coating on it and mentioned my almost always bloated stomach no matter how much i work out. he said that's candida. i told him i also went on a diet change for it and he said mercury can somehow cause the overgrowth.

Interesting. So, I was not alone in thinking that. :)

Dr.Klinghardt has a theory that the body produces candida in order to protect itself from mercury. We are complex creatures!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mr. moore Explorer

yeah it s interesting but im still looking for relief at least with the vision. i heard Astaxanthin supplements would help but where do i find them? no one has it.

tom Contributor
i did try the diet, wheat free, dairy free, gluten free...

I think many of us would feel more optimistic for you if this said "I am on" instead of "I did try".

It takes time.

And sugar-free, yeast-free is a MUST for fighting candida.

ravenwoodglass Mentor
yeah it s interesting but im still looking for relief at least with the vision. i heard Astaxanthin supplements would help but where do i find them? no one has it.

The vision problems you describe sound an awful lot like ocular migraines. People don't always get a headache with these. When you say you tried the gluten-free diet do you mean for the a whole week or so or have you given it at least a couple of months? The diet will often get rid of these after a couple of months.

Also I would be really cautious about any medical person who says they can diagnose someone over the phone.

mr. moore Explorer
The vision problems you describe sound an awful lot like ocular migraines. People don't always get a headache with these. When you say you tried the gluten-free diet do you mean for the a whole week or so or have you given it at least a couple of months? The diet will often get rid of these after a couple of months.

Also I would be really cautious about any medical person who says they can diagnose someone over the phone.

yeast isn't in every bread product is it? i can avoid sugar, and have, but i thought it's carbohydrates that fuel candida. and if that mercury/candida connection is true, i won't see true relief till the end of the month. so what can i do about the eye pressure and tinnitus that doesn't involve diets? no offense.

ravenwoodglass Mentor
yeast isn't in every bread product is it? i can avoid sugar, and have, but i thought it's carbohydrates that fuel candida. and if that mercury/candida connection is true, i won't see true relief till the end of the month. so what can i do about the eye pressure and tinnitus that doesn't involve diets? no offense.

Ener-g makes a bread that is yeast free. Have you actually seen a doctor who has diagnosed you with candida? Are you still on the gluten-free diet or are you skipping from one diet to another? Whatever you are trying you need to stick with it for a couple of months before you start investigating others. If you are doing a whole bunch of stuff at once it is going to be really hard for you to tell what is working and you could be eliminating stuff without need because you aren't giving yourself time to heal. I hope your filling removal helps you but I am afraid your going to go through all the expense and discomfort and still not see any resolution.

rinne Apprentice
........If you are doing a whole bunch of stuff at once it is going to be really hard for you to tell what is working and you could be eliminating stuff without need because you aren't giving yourself time to heal. I hope your filling removal helps you but I am afraid your going to go through all the expense and discomfort and still not see any resolution.

I agree.

And if you are going to go through the removal process you need to be following a protocol prior to having the work done. I think Andrea wrote about this.

I did find vitamin B12, methylcolbamin, to be helpful with the dizziness I had and the ringing in my ears is gone though I wouldn't say it was because of the B12.

mr. moore Explorer
Ener-g makes a bread that is yeast free. Have you actually seen a doctor who has diagnosed you with candida? Are you still on the gluten-free diet or are you skipping from one diet to another? Whatever you are trying you need to stick with it for a couple of months before you start investigating others. If you are doing a whole bunch of stuff at once it is going to be really hard for you to tell what is working and you could be eliminating stuff without need because you aren't giving yourself time to heal. I hope your filling removal helps you but I am afraid your going to go through all the expense and discomfort and still not see any resolution.

i don't understand why know one believes this could help. ive done all the work in my head and ive been to countless doctors and given countless diagnoses and drugs. ive found a reason for all of it, so why i can't i get some kudos?

besides i could be psychotic and would switching foods really help that? i am not saying i am psychotic but i do wonder sometimess, (ive been given anti psychotics. deep down my thought process was just fine, but my vision was still weird and creepy and i still had noise in my ears, which made me think i was crazy.)

besides i KNOW it won't cure my depression or anything, but i have read so much on how it mercury messes with people. my mom's friend had a friend with MS who got a lot of relief when she had her's removed. not that i have ms but...you know.

i guess mostly im dissapointed at how people who believe in diets, food allergies and msg couldn't throw a bone to a desperate guy. has anyone here gotten their fillings replaced?

purple Community Regular
i don't understand why know one believes this could help. ive done all the work in my head and ive been to countless doctors and given countless diagnoses and drugs. ive found a reason for all of it, so why i can't i get some kudos?

besides i could be psychotic and would switching foods really help that? i am not saying i am psychotic but i do wonder sometimess, (ive been given anti psychotics. deep down my thought process was just fine, but my vision was still weird and creepy and i still had noise in my ears, which made me think i was crazy.)

besides i KNOW it won't cure my depression or anything, but i have read so much on how it mercury messes with people. my mom's friend had a friend with MS who got a lot of relief when she had her's removed. not that i have ms but...you know.

i guess mostly im dissapointed at how people who believe in diets, food allergies and msg couldn't throw a bone to a desperate guy. has anyone here gotten their fillings replaced?

I would get mine replaced if:

1. I had the money to do it

2. If my body was messed up

3. If they fell out (my mouth is full of them, sometimes my ear hurts, since I got a crown 8 yrs ago)

I have a good immune system that I don't want to get messed up by releasing the mercury (old saying-if it ain't broke, don't fix it). I know I have given my girls mercury and from their shots, so I am soon going to start them on oil pulling. They don't have any fillings. I want the mercury out of them before they start having kids-ages are 20/17. Both are allergic to wheat but not Celiacs. One dd has low glutathione levels which makes it hard to excrete mercury from what I heard on a video and several other minor symptoms. The other dd has a low metabolism which makes it hard to lose weight, could be caused by mercury. If I had the $$ I would have their mercury levels tested.

Did you get yours tested?

Jestgar Rising Star
i don't understand why know one believes this could help. ive done all the work in my head and ive been to countless doctors and given countless diagnoses and drugs. ive found a reason for all of it, so why i can't i get some kudos?

Deciding something is the cause is not the same thing as something being the cause.

I hope you discover that your decision is the correct one, and removing your fillings will solve your problems. If not, come back and discuss diets.

And yes, switching foods could help your psychosis

DingoGirl Enthusiast
i guess mostly im dissapointed at how people who believe in diets, food allergies and msg couldn't throw a bone to a desperate guy. has anyone here gotten their fillings replaced?

we've thrown lots of bones :) The most healthy answer to begin with is a strict gluten-free, whole-foods (not processed), balanced diet. Filling removal may help you to some extent but....if you're celiac, and you still eat gluten, filling removal or not, you'll still have "psychotic" thinking.....trust me.

mr. moore Explorer

do you guys think that it's a sign of weakness that im looking for all these cures?

anyways im thinking of buying this candida fighting stuff called Threelac, there's websites devoted to it, plus it should make my permamanent love handles go away, since im thinking it's just water (i work out a LOT).

anyone heard or used Threelac before?

DingoGirl Enthusiast
do you guys think that it's a sign of weakness that im looking for all these cures?

Not remotely is it a weakness. But, are you celiac? are you on a STRICT gluten-free diet? I think that's what we're most concerned about at this time. Because without that, nothing else will really help you.

purple Community Regular
do you guys think that it's a sign of weakness that im looking for all these cures?

anyways im thinking of buying this candida fighting stuff called Threelac, there's websites devoted to it, plus it should make my permamanent love handles go away, since im thinking it's just water (i work out a LOT).

anyone heard or used Threelac before?

I think you really care about your health and others health too and are willing to try everything to feel normal. However, trying so many things at once could be a "shock" to your body. You gotta have patience. How will you know what works if you try several things at once? Listen to your doctor (if he is a good one). Have you been tested for mercury or heavy metals yet?

Don't give up ;) Those that persevere win the prize! Others on here feel better after a long road. Slowly healing.

mr. moore Explorer

has anyone had success with any candida treatment besides the diet? (it seems harder than gluten free) mostly im talking about probiotics.

ravenwoodglass Mentor
do you guys think that it's a sign of weakness that im looking for all these cures?

No it is not a sign of weakness but you do have to be more patient with each thing you try. Were you ever diagnosed with celiac? Have you had a panel done? Are you still doing the diet?

rinne Apprentice
i don't understand why know one believes this could help. ive done all the work in my head and ive been to countless doctors and given countless diagnoses and drugs. ive found a reason for all of it, so why i can't i get some kudos?

besides i could be psychotic and would switching foods really help that? i am not saying i am psychotic but i do wonder sometimess, (ive been given anti psychotics. deep down my thought process was just fine, but my vision was still weird and creepy and i still had noise in my ears, which made me think i was crazy.)

besides i KNOW it won't cure my depression or anything, but i have read so much on how it mercury messes with people. my mom's friend had a friend with MS who got a lot of relief when she had her's removed. not that i have ms but...you know.

i guess mostly im dissapointed at how people who believe in diets, food allergies and msg couldn't throw a bone to a desperate guy. has anyone here gotten their fillings replaced?

Mr. Moore, you are not paying attention!!! Look at your postings and look at the number of people who have responded to your questions with information and support!!! You have been given a feast!!!

If you want people to simply agree with you then I suggest you find a site that specializes in mercury poisoning and everyone there will confirm that yes it is your fillings, sorry I don't know of any sites like that.

Here on this site, as you can tell, diet is understood as being enormously important. Many of us are thirty, forty and fifty ....years old and we have been ill for a long time. Many of us have tried to find one solution to our problems and have learned that there is not one solution.

What I hear you repeating is what pill will cure me? Am is wrong? Do you hope for one simple solution, as in have your fillings out and suddenly everything will be fine? If you persist in this kind of thinking then I sincerely hope having your fillings out will change your life BUT if that is not the case and you ever are prepared to change your diet then there is lots of information here.

As to Kudos, congratulations on figuring out that you are ill and that mercury is toxic and should not be in our bodies. :)

mr. moore Explorer

well for me since i was like 13 i've had worsening brain fog and anxiety. so it's like, i have all this nervous energy, but im in such a confused state of mind i don't know what to d with it. ive tried meditation, excersizing, but i can't i feel so confused...

rinne Apprentice
well for me since i was like 13 i've had worsening brain fog and anxiety. so it's like, i have all this nervous energy, but im in such a confused state of mind i don't know what to d with it. ive tried meditation, excersizing, but i can't i feel so confused...

:(

I'm sorry it is such a struggle for you and I admire the effort you are making to try and figure out what you can do to help yourself. I genuinely hope that having the mercury out of your mouth makes a big difference.

I found that one of the things that really helped me was acupuncture and the funny thing is that the most helpful thing was simply lying still for one hour twice a week. I found that just lying still and following my breath helped to bring me a sense of ease in the midst of being in a lot of pain and distress. Perhaps you could try that, imagine that you are a stone sinking to the bottom of the river and your thoughts and sensations are like the river's surface rushing above you but you are still and calm deep below.

Have you heard of epsom salt baths? They are known be helpful in detoxing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,406
    • Most Online (within 30 mins)
      7,748

    Kbradway
    Newest Member
    Kbradway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.