Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd Support Group


Guest gfinnebraska

Recommended Posts

Guest gfinnebraska

Hi Cornbread ~ when I read the book I had the same reaction as you. I don't have D... what is it talking about??!! BUT, after starting the diet for a few days... I got D! And lots of it!! I think it is the bodys way of "cleaning out". After the D went away, I started adding the foods that the book allows, and I have never felt better. I have always had the constipation problem as well. Not now. No one on here can say definitely YES start the diet... it is hard and must be something you really want to do. Good luck!! :)

P.S. You may want to start after Thanksgiving!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 262
  • Created
  • Last Reply
jenvan Collaborator

Open Original Shared Link

just read my clan thompson and read about this new cookbook, based on the SCD. might want to ck it out ;)

cornbread Explorer
Hi Cornbread ~ when I read the book I had the same reaction as you.  I don't have D... what is it talking about??!!  BUT, after starting the diet for a few days... I got D!  And lots of it!!  I think it is the bodys way of "cleaning out".  After the D went away, I started adding the foods that the book allows, and I have never felt better.  I have always had the constipation problem as well.  Not now.  No one on here can say definitely YES start the diet... it is hard and must be something you really want to do.  Good luck!!  :) 

P.S. You may want to start after Thanksgiving!!  :)

<{POST_SNAPBACK}>

Thanks Kimberley - that's reassuring! To be honest, I am 99% grain free already, because rice, corn (well, ALL grains) cause me to be really bloated. The only big difference between the SCD and my diet right now is that I don't do any dairy, and the fruit and veg I eat is either raw (fruit) or steamed (veg). The big difference would be cooking the fruit etc., but I can see how that would help the stomach heal, ie: less work digesting.

How long did your SCD-induced D last?

  • 2 weeks later...
PreOptMegs Explorer

I think the book says that it should last no longer than a week... but everyone is different.

Guest gfinnebraska

Yes, it was around a week ~ more or less. Now, when I go off the SCD and then back on, I experience the D again. Not for long though. Just a day or two. I am going in for surgery on Dec. 27th, so I am trying to get as healthy as possible before then. :) Strictly SCD ~ then maybe I can baby myself with a gluten-free doughnut after surgery!! :)

jenvan Collaborator

good luck with your surgery...hope its nothing to serious!

  • 2 weeks later...
kitkat Newbie

Hi all!

I have just found this site and have been on scd for almost three months now. I thought it would be great to chat with some who are doing the diet as well. I am currently living in London, but make a move to the states next week! After months of gluten free dieting, and still having major symptoms, I found the SCD and this has been the only thing in my life that I have seen improvement on. Although I am not one hundred percent, I can actually have 'normal' days sometimes and it is such a relief. I still have bad bloating, trying to figure out why each week but have decided to stick with it since it is the only thing that has seemed to work.

Also, I am casein intolerant too and wondering if anyone knew of a probiotic that worked that is casein free...obviously I can't do yogurt and cheese on the diet which is a bummer!!! And I really think it is important to feed the gut with good bacteria.

It has been a rollercoaster of a year, to say the least, but it's great to finally see some light at the end of the tunnel. I also have microscopic colitis which is maybe why it is taking me longer to 'heal'. I still don't have normal bowel movements...but considering I was having 20 a day at one point, down to two is a remarkable difference!!! Wondering if anyone else has experienced the same?

Cheers!

KC


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skykat Newbie

Hello! I am new to the boards. I recently started following the scd. I am okay with finding food to eat, but I am confused when it comes to supplements. Would the following fish oil supplement be okay:

Anchovies, mackerel, sardines, non-genetically engineered Vitamin E (to preserve freshness), softgels (gelatin, water, glycerin)

I wasn't sure about glycerin. Gelatin is okay, right? Another question I have is regarding ibuprofen. Is there a brand that is safe to use? Thank you for any help.

Guest gfinnebraska

Welcome! Yes, gelatin is fine. The book suggests gelatin made with juice as a treat/snack. I make them into "jigglers". So, I am sure you can eat gelatin in vitamin form as well.

The motrin should be fine too ~ I believe the book said to use if necessary, but go without if possible. I need to read my book again ~ I haven't read it since March! :o

skykat Newbie

Thank you for the reply. That is good to hear. I might try the jigglers, too. I have the breaking the vicious cycle book, but don't remember seeing about motrin. I'll have to look for that, thanks!

  • 8 months later...
clay4me Rookie
What specifically is the SCD Diet?

SCD is specific carbohydrate diet

You can get all the information at the link below:

Open Original Shared Link

I have been following it for a week now, and feel much better already. My swelling has gone down, and I just feel better. :) Let me know what you think!

I have been on scd 2 years and I feel wonderful. gluten-free didnt do a thing for me except to get my candida and pain worse. It is very easy to be on this way of eating and heal my gut. Tried great recipes and can live this way forever. No turning back.

www.austinscdfriends.com

This is a wonderful site with much information .

clay4me Rookie

I probablly have all the same books you have, am looking for a good ginger cookie.

I just made the waldorf salad int he bTVC book and added chicken and instead of mayo I used yogurt and honey. mmm good!

I also bought myself a cusinart ice cream maker. I have made many sorbet. I like honey grapefruit and lemon sorbet. My granchildren love my frozen yogurt and they even help to make it.

I also like the many recipes, like a green bean salad and many other dishes. I made fried chicken the other night with grated parmasan cheese and almond flour.... mmmm good!

It is such a joy to cook now and eat!

clay4me Rookie

I never had (D) but I had major throwing up that was the problem was the digestive track.

I had major © :huh: but being on scd for 2 years I am doing much,much better. I never really did well on eating gluten-free products.

Been doing so much better on scd that it is actually fun to cook and I look forward to trying new recipes. Somebody gave me a german chocolate cake recipe all legal on scd which I have not tried yet,but soon will.

I love to make my own ice cream and frozen yogurt and sorbet. It also so much fun and eat and not get ill after eating. :)

Not really worth it to eat the illegals. The scd is very fullfilling. Never once have I ever wanted anymore. Dont eat the illegals and you will gain much more in better health :lol:

My question is does this way of eating scd help with osteoporis?

I take digestive enzymes, legal supplements :rolleyes: along with eating scd. Can I turn this around?

Any more suggestions to help myself. :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748

    Sally Garber
    Newest Member
    Sally Garber
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.