Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work For Vitamin/mineral Deficiencies


Roda

Recommended Posts

Roda Rising Star

I was wondering if it would still be beneficial to have blood work run to check for vitamin/mineral deficiencies? I have had chronic low ferritin levels for about 1 1/2 years (has never been above 6) that lead me to get tested for celiac. I had a positive IgA tTg in Sept. 08 with a positive biopsy in Oct. 08. I went gluten free Oct. 30th. I never had any other blood work for vitamin/mineral before going gluten free. I thought my endocrinologist ran some in Dec. 08 but all she checked was vit. b12 and it was in normal range. Should I still get others checked and if so what ones? I do bruise easily and was wondering if that could be related to something. I am also curious about what I should do for the low ferritin. The only meds/supplements I take is levothyroxine, cytomel, and probiotics. I did note something interesting on my chemistry profile though. My calcium has gone back up into the normal range. Before it was always low. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Sure, why not? What were your B12 levels?

I ask because mine were at 228 and my doctor told me they were fine, she even prescribed medication that would have stopped all absorption of the B12. :o She is not my doctor anymore.

I was not fine, I was critically low in B12 but the test in front of her said that normal was anything above 178, NOT normal should be around 500.

Welcome. :)

rubyred Apprentice

I think it would be beneficial to get full bloodwork done. Just to check your levels, even if you are already gluten free. It's also good to get a baseline count, so then you can compare future bloodwork to your baseline to see if you are where you need to be (in regards to the diet).

Rinne - are the blood tests for B12 standardized? I got bloodwork done, which included B12 and my level was 582, but the range says 200-900. So, this should be well within normal rates, right? I got this done about 5 months into being gluten free.

rinne Apprentice

Hi, the range on the tests up here (Canada) said something like between 180 and 880 so very close to your figures, I think 582 sounds great!

Roda Rising Star

vit b12 was 315 ref range 180-914. I see the gi doctor the end of this month. After my diagnosis over the phone all I was told by him was to see him after 3 months on the gluten free diet. Now I am wondering if I should have had more things done before. Heck, I figured out it was celiac I shouldn't have to think of everything! Anybody have a bone mineral density test done? Should I have one? Is there any link with very low total cholesterol and triglicerides? I had those checked appx 4 years ago and had a doctor tell me she never seen a patient with as low triglicerides as mine before. I don't have the exact results but I am going to get them next week out of my medical record.

Mother of Jibril Enthusiast

The low cholesterol and triglycerides were probably from malabsorption of fats. I bet your numbers are climbing back to an appropriate level now. Interesting and easy to check. A lot of people (even doctors) are so worried about high cholesterol that they forget it's dangerous to have really low HDL cholesterol! It's recommended to have a level of 50 or higher.

I'm wrestling with the same question (about checking vitamins and minerals) especially since I couldn't get an official diagnosis. I think the big question is... how are you feeling? You could have some deficiencies that don't resolve on a gluten-free diet (like B-12 if you've developed pernicious anemia), but the rest should be returning to normal levels. If you're worried about certain symptoms you could always google the different vitamins and minerals and see what symptoms are expected when you have a deficiency.

Jestgar Rising Star
A lot of people (even doctors) are so worried about high cholesterol that they forget it's dangerous to have really low HDL cholesterol! It's recommended to have a level of 50 or higher.

I actually tried to look this up one time and couldn't find any reference for HDL being too low, when in conjunction with overall low total cholesterol. Do you have a reference for this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Hmmm... good question.

The American Heart Association and Mayo Clinic both mention low HDL as a risk factor for heart disease and stroke.

Open Original Shared Link

Open Original Shared Link

But... this seems to be based on HDL as a protective factor against high triglycerides and LDL. Looking at the issue of cholesterol from a different perspective, here's a recent abstract from the NIH database about low HDL and memory loss.

Open Original Shared Link

Jestgar Rising Star

Open Original Shared Link

Interesting article. Curiously, their memory did not improve, even if the HDL went up, but their memory DID improve when the triglycerides went down (Table 4) and those with high total cholesterol had a better memory than those with low.

I'd be interested to see the ratios of HDL to triglycerides to see if that made a difference. They also didn't relate HDL to total. Maybe someone else will do a more complete study.

neesee Apprentice
vit b12 was 315 ref range 180-914. I see the gi doctor the end of this month. After my diagnosis over the phone all I was told by him was to see him after 3 months on the gluten free diet. Now I am wondering if I should have had more things done before. Heck, I figured out it was celiac I shouldn't have to think of everything! Anybody have a bone mineral density test done? Should I have one? Is there any link with very low total cholesterol and triglicerides? I had those checked appx 4 years ago and had a doctor tell me she never seen a patient with as low triglicerides as mine before. I don't have the exact results but I am going to get them next week out of my medical record.

My cholesterol has always been pretty low due to the celiac. At it's lowest, it was 96 total. Several years later into the diet, my triglycerides tested at 28. Twenty-one years later my cholesterol stays at around 150. I don't know the hdl,ldl or triglycerides anymore. My newer drs choose not the share that with me. Makes me kinda mad. I like to know what's going on with me. :angry:

Roda Rising Star

I did a google search for abnormally low triglyceride levels and not a lot comes up. I did find a mention at this site

Open Original Shared Link

Interesting was the last paragraph. For some reason I think mine was in that range. Hind sight is 20/20. Any suggestions to raise ferritin levels. I'm not anemic.

rinne Apprentice
vit b12 was 315 ref range 180-914. ....

I read this as a very low score, it seems your doctor was doing as mine was and assuming that the "normal" range is healthy. Do you have any dizziness, or the feeling of walking drunk, or strange tingling?

Roda Rising Star
I read this as a very low score, it seems your doctor was doing as mine was and assuming that the "normal" range is healthy. Do you have any dizziness, or the feeling of walking drunk, or strange tingling?

I have been having (what I percieve) an issue with my blood pressure. It tends to be on the lower normal spectrum now. It was always aroung 112-118/75-80 so as normal as one can get. Now it depends what I am doing but it has gone as low as 96/58 before. It usually does this right after getting up from to fast from bed or resting. I have to be careful because it drops and I get light headed, dizzy and feel like I could fall down. The only tingling I get is in my arms that radiates to my last two fingers. I believe I have a rotator cuff problem since it usually happens when I raise my arms up. I took lopressor a for 4 mo starting in Feb. 2006 for tachycardia. Unfortunatly it had an effect on my bp and really made it drop. I don't know if that has affected it now or not. I wonder if lower blood pressure and celiac have any relation? Just curious.

Jestgar Rising Star
Interesting was the last paragraph. For some reason I think mine was in that range. Hind sight is 20/20. Any suggestions to raise ferritin levels. I'm not anemic.

Ferritin levels take a long time to change. If you eat meat, they'll go up over time. You might want to consider taking iron for a few months as well.

rinne Apprentice
.....I wonder if lower blood pressure and celiac have any relation? Just curious.

I don't know but my blood pressure was always normal until I got sick, it dropped then and I haven't had it checked recently. <_<

Mother of Jibril Enthusiast
I wonder if lower blood pressure and celiac have any relation? Just curious.

I don't know about celiac... but there's definitely a connection to thyroid disorders. My blood pressure has been as low as 70/40. I've also experienced dizziness when changing positions. My ten-month-old son is still breastfeeding at night and I keep his crib right next to my bed... even then, I worry about dropping him because I'm so dizzy <_<

Jestgar Rising Star
I don't know about celiac... but there's definitely a connection to thyroid disorders. My blood pressure has been as low as 70/40.

Is this with hypo- or hyper-?

Mother of Jibril Enthusiast

HypOthyroidism is associated with low blood pressure and a slow heartrate. A high level of thyroid hormones (hypERthyroidism) can lead to palpitations and an accellerated heartrate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    2. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    5. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.