Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work For Vitamin/mineral Deficiencies


Roda

Recommended Posts

Roda Rising Star

I was wondering if it would still be beneficial to have blood work run to check for vitamin/mineral deficiencies? I have had chronic low ferritin levels for about 1 1/2 years (has never been above 6) that lead me to get tested for celiac. I had a positive IgA tTg in Sept. 08 with a positive biopsy in Oct. 08. I went gluten free Oct. 30th. I never had any other blood work for vitamin/mineral before going gluten free. I thought my endocrinologist ran some in Dec. 08 but all she checked was vit. b12 and it was in normal range. Should I still get others checked and if so what ones? I do bruise easily and was wondering if that could be related to something. I am also curious about what I should do for the low ferritin. The only meds/supplements I take is levothyroxine, cytomel, and probiotics. I did note something interesting on my chemistry profile though. My calcium has gone back up into the normal range. Before it was always low. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Sure, why not? What were your B12 levels?

I ask because mine were at 228 and my doctor told me they were fine, she even prescribed medication that would have stopped all absorption of the B12. :o She is not my doctor anymore.

I was not fine, I was critically low in B12 but the test in front of her said that normal was anything above 178, NOT normal should be around 500.

Welcome. :)

rubyred Apprentice

I think it would be beneficial to get full bloodwork done. Just to check your levels, even if you are already gluten free. It's also good to get a baseline count, so then you can compare future bloodwork to your baseline to see if you are where you need to be (in regards to the diet).

Rinne - are the blood tests for B12 standardized? I got bloodwork done, which included B12 and my level was 582, but the range says 200-900. So, this should be well within normal rates, right? I got this done about 5 months into being gluten free.

rinne Apprentice

Hi, the range on the tests up here (Canada) said something like between 180 and 880 so very close to your figures, I think 582 sounds great!

Roda Rising Star

vit b12 was 315 ref range 180-914. I see the gi doctor the end of this month. After my diagnosis over the phone all I was told by him was to see him after 3 months on the gluten free diet. Now I am wondering if I should have had more things done before. Heck, I figured out it was celiac I shouldn't have to think of everything! Anybody have a bone mineral density test done? Should I have one? Is there any link with very low total cholesterol and triglicerides? I had those checked appx 4 years ago and had a doctor tell me she never seen a patient with as low triglicerides as mine before. I don't have the exact results but I am going to get them next week out of my medical record.

Mother of Jibril Enthusiast

The low cholesterol and triglycerides were probably from malabsorption of fats. I bet your numbers are climbing back to an appropriate level now. Interesting and easy to check. A lot of people (even doctors) are so worried about high cholesterol that they forget it's dangerous to have really low HDL cholesterol! It's recommended to have a level of 50 or higher.

I'm wrestling with the same question (about checking vitamins and minerals) especially since I couldn't get an official diagnosis. I think the big question is... how are you feeling? You could have some deficiencies that don't resolve on a gluten-free diet (like B-12 if you've developed pernicious anemia), but the rest should be returning to normal levels. If you're worried about certain symptoms you could always google the different vitamins and minerals and see what symptoms are expected when you have a deficiency.

Jestgar Rising Star
A lot of people (even doctors) are so worried about high cholesterol that they forget it's dangerous to have really low HDL cholesterol! It's recommended to have a level of 50 or higher.

I actually tried to look this up one time and couldn't find any reference for HDL being too low, when in conjunction with overall low total cholesterol. Do you have a reference for this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Hmmm... good question.

The American Heart Association and Mayo Clinic both mention low HDL as a risk factor for heart disease and stroke.

Open Original Shared Link

Open Original Shared Link

But... this seems to be based on HDL as a protective factor against high triglycerides and LDL. Looking at the issue of cholesterol from a different perspective, here's a recent abstract from the NIH database about low HDL and memory loss.

Open Original Shared Link

Jestgar Rising Star

Open Original Shared Link

Interesting article. Curiously, their memory did not improve, even if the HDL went up, but their memory DID improve when the triglycerides went down (Table 4) and those with high total cholesterol had a better memory than those with low.

I'd be interested to see the ratios of HDL to triglycerides to see if that made a difference. They also didn't relate HDL to total. Maybe someone else will do a more complete study.

neesee Apprentice
vit b12 was 315 ref range 180-914. I see the gi doctor the end of this month. After my diagnosis over the phone all I was told by him was to see him after 3 months on the gluten free diet. Now I am wondering if I should have had more things done before. Heck, I figured out it was celiac I shouldn't have to think of everything! Anybody have a bone mineral density test done? Should I have one? Is there any link with very low total cholesterol and triglicerides? I had those checked appx 4 years ago and had a doctor tell me she never seen a patient with as low triglicerides as mine before. I don't have the exact results but I am going to get them next week out of my medical record.

My cholesterol has always been pretty low due to the celiac. At it's lowest, it was 96 total. Several years later into the diet, my triglycerides tested at 28. Twenty-one years later my cholesterol stays at around 150. I don't know the hdl,ldl or triglycerides anymore. My newer drs choose not the share that with me. Makes me kinda mad. I like to know what's going on with me. :angry:

Roda Rising Star

I did a google search for abnormally low triglyceride levels and not a lot comes up. I did find a mention at this site

Open Original Shared Link

Interesting was the last paragraph. For some reason I think mine was in that range. Hind sight is 20/20. Any suggestions to raise ferritin levels. I'm not anemic.

rinne Apprentice
vit b12 was 315 ref range 180-914. ....

I read this as a very low score, it seems your doctor was doing as mine was and assuming that the "normal" range is healthy. Do you have any dizziness, or the feeling of walking drunk, or strange tingling?

Roda Rising Star
I read this as a very low score, it seems your doctor was doing as mine was and assuming that the "normal" range is healthy. Do you have any dizziness, or the feeling of walking drunk, or strange tingling?

I have been having (what I percieve) an issue with my blood pressure. It tends to be on the lower normal spectrum now. It was always aroung 112-118/75-80 so as normal as one can get. Now it depends what I am doing but it has gone as low as 96/58 before. It usually does this right after getting up from to fast from bed or resting. I have to be careful because it drops and I get light headed, dizzy and feel like I could fall down. The only tingling I get is in my arms that radiates to my last two fingers. I believe I have a rotator cuff problem since it usually happens when I raise my arms up. I took lopressor a for 4 mo starting in Feb. 2006 for tachycardia. Unfortunatly it had an effect on my bp and really made it drop. I don't know if that has affected it now or not. I wonder if lower blood pressure and celiac have any relation? Just curious.

Jestgar Rising Star
Interesting was the last paragraph. For some reason I think mine was in that range. Hind sight is 20/20. Any suggestions to raise ferritin levels. I'm not anemic.

Ferritin levels take a long time to change. If you eat meat, they'll go up over time. You might want to consider taking iron for a few months as well.

rinne Apprentice
.....I wonder if lower blood pressure and celiac have any relation? Just curious.

I don't know but my blood pressure was always normal until I got sick, it dropped then and I haven't had it checked recently. <_<

Mother of Jibril Enthusiast
I wonder if lower blood pressure and celiac have any relation? Just curious.

I don't know about celiac... but there's definitely a connection to thyroid disorders. My blood pressure has been as low as 70/40. I've also experienced dizziness when changing positions. My ten-month-old son is still breastfeeding at night and I keep his crib right next to my bed... even then, I worry about dropping him because I'm so dizzy <_<

Jestgar Rising Star
I don't know about celiac... but there's definitely a connection to thyroid disorders. My blood pressure has been as low as 70/40.

Is this with hypo- or hyper-?

Mother of Jibril Enthusiast

HypOthyroidism is associated with low blood pressure and a slow heartrate. A high level of thyroid hormones (hypERthyroidism) can lead to palpitations and an accellerated heartrate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.