Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Always Have To Be Underweight With Celiac Disease?

Jamie

By Jamie
in Related Issues & Disorders

Recommended Posts

Jamie Contributor
Jamie
Posted

I am 4'10'' and 1/4 I am about 104 lbs... I am average weight... I look healthy. I do have a big butt and a little gut that I am constantly trying to lose... but weight loss for me has always been very hard for me.... After I was diagnosed... (Last Tuesday by the way)... I read up that many people lose a lot of weight are are usually very skinny and malnurished by the time of their diagnosis. I eat about 1700 calories a day to sustain my heavy work outs and I am at a healthy weight... body fat 19.5 and a BMI of 21.... The only indication that I had celiac disease was through a blood test I had. Should I get an endoscopy just to be sure before I make this life change?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hi Jamie and Welcome to the Club!

BTW, can I have some of your butt please. :D My stomach is bigger than my bottom. If you turned my torso around, I'd have a pretty good figure. :P

Yes, those with malabsorption issue can be thin, but not always. Some can be overweight and still have malabsorption issues.

Curious though, what made you test for Celiac? Some members here are silent Celiacs and have no symptoms. An endoscopy exam can also serve as confirmation as well as look for damage. This might be important, especially if you are a silent Celiac.

MELINE Enthusiast
MELINE
Posted
BTW, can I have some of your butt please. :D My stomach is bigger than my bottom. If you turned my torso around, I'd have a pretty good figure. :P

lol.... :D :D :D

Jamie Contributor
Jamie
Posted
  • Author
Hi Jamie and Welcome to the Club!

BTW, can I have some of your butt please. :D My stomach is bigger than my bottom. If you turned my torso around, I'd have a pretty good figure. :P

Yes, those with malabsorption issue can be thin, but not always. Some can be overweight and still have malabsorption issues.

Curious though, what made you test for Celiac? Some members here are silent Celiacs and have no symptoms. An endoscopy exam can also serve as confirmation as well as look for damage. This might be important, especially if you are a silent Celiac.

I have been having bad stomach problems since last January... I am a hypoglycemic, I have hypothyroidism and I get terrible migranes... so I see a neurologist, an endocrinologist and a gastro.... No one could figure out what the stomach pains linked to. I would up in the emergency room last January.. had a bunch of tests done.. they found nothing. I had a colonoscopy.. nothing.. Small bowel series.. nothing.. Blood work.. nothing. .. Cat scan.. nothing. regaurdless of nothing showing up.. every 3-4 months I would have these random attacks.. it would last about 7 hours and would be so bad it would wake me from my sleep.. I couldnt go to work... I would have to curl in a ball.. I would cry from the pain. On regular days I just have chronic constipation, gas and bloating. I finally found a new doctor.. an internist.. I gave him all the files from all the doctors I've been seeing, he gave me blood work and he said my antibodies were high to gluten. I've been on this diet fully since Wed. I don't feel any different. I have so many questions. He told me the results over the phone in 1 minute... but its a life change. I need more details.. I have more questions.. and I want to get the endoscopy.. just to see.. just to make sure this is def it.

dandelionmom Enthusiast
dandelionmom
Posted

I was overweight when I was diagnosed.

Jamie Contributor
Jamie
Posted
  • Author
I was overweight when I was diagnosed.

Now that you are on the diet... have you lost weight, gained? still the same?

mushroom Proficient
mushroom
Posted

Hi Jamie: I was overweight when I diagnosed myself a year ago; have lost 44 lbs.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
nw0528 Apprentice
nw0528
Posted

I love the question for this thread of comments. Apparently the first GI I went to subscribes to this thought - that someone with Celiac MUST be underweight.

I went to see him a few weeks ago. I explained my symptoms (oily stools, frequent bowel movements, severe urgency to "go" within 15 min. after most meals) and he said, "You have IBS, take 1 Immodium every day and if that doesn't work, take 2 Immodium every day." I've had IBS for 24 years (I'm only 35) and I kept telling him that my symptoms are totally different from the IBS symtoms I've had in the past, especially the fact that I had never had oily stools before. (I've had no symptoms of IBS in over three years, then this past summer I started with my current symptoms.) Anyhow, at the end of our appt., the GI looked at me and said, "Well by looking at you I can tell that clearly you aren't sick." I was so PISSED! (The last time he saw me was in 2002 and I weighed 135 pounds. I'm 5'8". Since then, I became pregnant in 2006 I weighed about 145. Then, I was on bedrest for FOUR MONTHS, and at the end of my pregnancy I weighed 245 pounds! My son is now two years old. I'm now at 175 pounds. Sure I've still got a ways to go, but still...) This GI just took one look at me and made his own mind up. I guess to him you must be skinny to have Celiac! Hmm...I'm considering sending him an informative letter once all my results are back. (I've since switched to a different GI.)

Anyhow, the question you posed made me chuckle, since a trained MD apparently thinks it is true!

Nicole

mushroom Proficient
mushroom
Posted
Anyhow, at the end of our appt., the GI looked at me and said, "Well by looking at you I can tell that clearly you aren't sick."

How typical! My PCP responded much the same way when I was complaining that I had trouble digesting food. She said, "Well, clearly, digestion iS taking place." :wacko:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.