Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Free


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

I called to make an appt for the kids' yearly checkup with the gastroenterologist. He called me back to see how things were going and I mentioned that our dd has been complaining of random stomachaches. They aren't consistant and I know she uses them to get out of things sometimes (like chores and bedtime), but I would feel horrible to ignore them and have it actually be an issue. Anyway, he called back again and asked that we completely remove dairy for 3 weeks prior to her appt and then monitor the stomachaches.

I know the obvious substitutions for milk, yogurt, cheese and I will make as much of an effort as I can to diversify the alternate sources--don't want to sub all soy for example. But I need to know what else to look for. Is being dairy/casein free as critical as being gluten-free? Is cc as important? I know for those 3 weeks I will do my darndest to make sure cc doesn't happen, but if this turns out to be the culprit, I need to know (I am SOOOOO praying this isn't the issue!!).

Any help from all you df'ers out there, I would so much appreciate your wisdom. I kind of feel like I'm starting all over again! :huh::huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast
But I need to know what else to look for. Is being dairy/casein free as critical as being gluten-free? Is cc as important?

I'm sorry that your son is having issues. It is so frustrating at times. I've been dairy-free for 3+ years and I have to be every bit as careful with dairy as gluten but that isn't the case for everyone. I find a lot of dairy cc in products so you'll need to research the brands and ask the same questions about processes, manufacturing, testing, etc. Lactose is a popular additive to medications so that's something to check too.

AliB Enthusiast

Well, you could be right - it might not actually be the issue - there are so many things that we can potentially be intolerant of, but dairy is certainly a contender.

When I was totally dairy-free (I can tolerate a little now my gut has healed somewhat) I had to avoid it completely or even a small amount would bung me up which was a sure sign it wasn't working through properly. In some people it causes D. My daughter has been trying to get our youngest grandson on DF but it is so difficult - on top of the being small for his age and having some learning delay his symptoms are wiry untameable hair and a fairly regular rash, but then he is not gluten-free and I wouldn't mind betting that is behind it.

Dairy is in so much, as you say, almost more difficult than gluten-free. As it is only for 3 weeks I think you need to try and give it your best shot, then at least you are more likely to know one way or another.

I am wondering if it might be an idea to keep a food diary of everything she eats and drinks to see if a pattern emerges? Reactions, as you know with gluten, don't always happen immediately. At least then if she is still getting the stomach pains whilst DF you may have a little more info to be able to pinpoint the real culprit.

taweavmo3 Enthusiast

I would definately stay away from replacing with soy like you said....it messes up my kids tummies as much, if not more, than dairy. We tried soy milk one night, and we were all up with bad stomach aches.

I think dairy is harder than gluten.....I know with my kids, so much of their "filling" foods were dairy. Most snacks were yogurt, cheese sticks, ice cream, etc. So it was quite an adjustment, but now we are used to it.

Here are a few of our staples:

Almond milk

Apples w/peanut butter & honey

Trail mix w/Rice Chex, raisins/craisins, and marshmallows

Delimex chicken taquitos for a quick snack...the beef ones have milk

Leftovers are essential.....I make huge batches, otherwise I never leave my kitchen!

Muffins and quick breads

For butter, I use Smart Balance w/olive oil. To bake, I use Earth Balance buttery sticks

And as for cheese, I haven't even bothered with replacements. There is only one I have found by Galaxy foods, and it was just okay. It wasn't worth the $5 for 8 slices when you have four kids!

As for ice cream, Purely Decadent makes a rice based ice cream that is pretty good. They also have a coconut ice cream that is supposed to be really delish, but I haven't tried it yet. Good luck with the trial, I hope you are able to figure out the cause of the tummy troubles.

lizard00 Enthusiast

I think dairy free can be harder than gluten-free, too. You really do have to look for it in places you wouldn't ordinarily think. I can't do soy either. In fact, if I had to chose, soy products make me sicker than their dairy counterparts.

I use rice milk for baking and stuff, ghee for butter, and goat cheese for cheese. Although your daughter may not like goat cheese... it's got a very disinct taste. I've recently started using nutritional yeast to add a "cheeselike" flavor. It's different, but adds a nice flavor.

I LOVE the coconut milk ice cream and yogurts. YUMYUM! They even have a gluten-free cookie dough flavor. :wub:

MaryJones2 Enthusiast

Liz's comments made me think of something else. You'll have to figure out the casein vs. lactose thing too. I happen to have issues with both so goat is out for me. I am a teetotaler but everyone has a different tolerance level.

celiac-mommy Collaborator

I'm having a little trouble trying to figure out the total difference between casein vs lactose vs dairy free. I'm thinking she should be all milk-product free for those 3 weeks, whether it's cow/goat/sheep~we eat a lot of specialty cheeses that are goat and sheep. I'm finding it really hard because like taweavmo3 said, my kids also eat quite a bit of dairy, snacks especially. She loves her cheese sticks and yogurt!! I know I can make my bread df, so she can still have that. She eats a large variety of foods and when I talked with her about this she seemed fine with it because she said I can always find substitutions for her. (she's such an amazing kid!) I think the thing that was most devistating for her is not being able to eat my homemade mac&cheese. It's a staple in our house and it's the only thing she ever asks me to make for her.

I don't cook a lot with dairy, so preparing meals isn't much of an issue either, it's the baking and the snacking. Also, it's the label reading. I was online yesterday for about 2 hours trying to plan menus and shopping lists and I agree to what was posted before~I think this is harder than going gluten-free-I think dairy hides in nutritional info more than gluten does! We really didn't have that much of an issue going gluten-free-all in all it was a very smooth transition. I am hoping this will be as well.....

For a milk substitute, which she doesn't drink a whole lot of, I will probably go soy. I know she likes Silk and it will mostly be for cereal anyway. What is the best alternate for baking? I've had rice milk once and wasn't a fan and almond milk didn't really taste to me, but maybe it would be good for cooking...?

Thank you all for your suggestions, I really appreciate it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast
Open Original Shared Linkfrom the Dairy Council covers casein vs. lactose and might help you out. I tend to associate stomachaches with lactose intolerance and I think that's the easier one to avoid. There are a lot of lactose-free products out there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,962
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.