Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hilton Hawaiian Village gluten-free/ Cf Experience


Lisa16

Recommended Posts

Lisa16 Collaborator

I just got back from a week in Honolulu and I had a great experience at the Hilton Hawaiian Village.

If you call ahead, they can get you what you need for every meal. They took good care of me and made arrangements for every meal. You can eat at the Tapa cafe, the Hau Tree grill, Bali by the Sea and the Village Steak and Seafood Grill. They are even able to accomodate you through room service. The chefs spoke with me and checked on every meal and they were very knowledgeable about celiac disease.

I give them top marks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Also great to hear. The last time I was there about 3 years ago it was questionable so we went across to Nicks Fish Market which was great. I still think you should have come to this island <G>

Ken

I just got back from a week in Honolulu and I had a great experience at the Hilton Hawaiian Village.

If you call ahead, they can get you what you need for every meal. They took good care of me and made arrangements for every meal. You can eat at the Tapa cafe, the Hau Tree grill, Bali by the Sea and the Village Steak and Seafood Grill. They are even able to accomodate you through room service. The chefs spoke with me and checked on every meal and they were very knowledgeable about celiac disease.

I give them top marks!

elonwy Enthusiast

Yay that is so awesome, anything that spreads more good info in HI is fantastic.

I agree with Ken, the Big Island is the best (I'm soooo homesick).

Lisa16 Collaborator
Also great to hear. The last time I was there about 3 years ago it was questionable so we went across to Nicks Fish Market which was great. I still think you should have come to this island <G>

Ken

The funny thing is that I did go to the Big island. I flew into Hilo and drove to Akaka Falls and then down to the Volcano National Park. I did not know how rural it was, nor did I know that there were no restaurants in that area. Luckily I stopped at a natural foods store and bought fruit andgf ginger snaps, which I lived off of the whole time I was on the big island!

I stayed at the Volcano House and they only had a buffet. I took one look at it and went back to my room to eat ginger snaps. :( By the time I was finished with the park, I was so tired that I didn't have it in me to drive the 30 miles back to Hilo to look for a restaurant.

My memories of the Big Island will always revolve around HUNGER. :lol:

elonwy Enthusiast

Heh. I eat at home when I'm there (my mom lives in Volcano) because Hilo side is kinda limited that way. My mom has done a good job at getting the health food stores in Hilo to start carrying more gluten-free foods, but you get out side of town and you're pretty much on your own. I wouldn't eat at Volcano House if you paid me even before gluten-free.

Lisa16 Collaborator
Heh. I eat at home when I'm there (my mom lives in Volcano) because Hilo side is kinda limited that way. My mom has done a good job at getting the health food stores in Hilo to start carrying more gluten-free foods, but you get out side of town and you're pretty much on your own. I wouldn't eat at Volcano House if you paid me even before gluten-free.

Dang Elonwy-- thank your mom for me (Mahalo!) :lol: I got the snaps at the Natural Foods store that is in the Walmart mall, turning left out of the airport. If it weren't for that little store I would have been in REAL trouble. The supermarkets were not so good-- I stopped in several and found very little that I could take without having a way to cook.

What is strange is that in that NF store they had prepared foods like scrambled eggs hat I would have gotten. But I asked how they were cooked and the girl held up the most disgusting wok I had ever seen in my life. :blink: I abandoned the agg idea then and there.

The volcano house was not what I thought it was-- but I did have a view of the crater. Oh well.

The Hilo side is beautiful, but pack a lunch. And dinner. And breakfast too. :lol:

kenlove Rising Star

Well maybe its good you didnt call me otherwise you would have been stuffed and unable to get back on a plane!

Did a lot of experimenting last week since we had guests from Chicago here. YOu could have eaten your fill. I'd tell you some of the recipes but dont want to make your mouth water too much <G>

ken

The funny thing is that I did go to the Big island. I flew into Hilo and drove to Akaka Falls and then down to the Volcano National Park. I did not know how rural it was, nor did I know that there were no restaurants in that area. Luckily I stopped at a natural foods store and bought fruit andgf ginger snaps, which I lived off of the whole time I was on the big island!

I stayed at the Volcano House and they only had a buffet. I took one look at it and went back to my room to eat ginger snaps. :( By the time I was finished with the park, I was so tired that I didn't have it in me to drive the 30 miles back to Hilo to look for a restaurant.

My memories of the Big Island will always revolve around HUNGER. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa16 Collaborator

Hi Ken!

I actually did send you an email with the flight info and everything but you must not have gotten it. So I just kind of thought either you were super busy or you didn;t want to meet in person because of the whole internet aspect. I was kind of bummed.

But then it turns out that Kona is about 95 miles away and that it takes kind of a long time to even go 30 miles. I wasn't expecting the whole "only one road" situation either. Plus it was raining and they kept stopping traffic for "mowing" (which looked like it meant hacking out whole giant sections of vegetation.

They told me the Kona side is really built up.

But you do live in paradise!

Lisa

kenlove Rising Star

Hi,

Yeah I thought you were going to call to and then figured maybe the same as you.. internet etc. Never did get the email.. to bad

but now you have an excuse to come back. The volcano is 98 miles from my house but I do have to go over there at times. The roads here are terrible so I usually leave at 4am and get to see the sun come up over Hilo which can be nice. Did it Dec 31 as I had a meeting. Six hours of driving for a 30 min. meeting. Would have been worth it to see you. Next time for sure! Parts of Kona are built up but this is farm country. Some places dont even have indoor plumbing. -- I do <G>

take care

Hi Ken!

I actually did send you an email with the flight info and everything but you must not have gotten it. So I just kind of thought either you were super busy or you didn;t want to meet in person because of the whole internet aspect. I was kind of bummed.

But then it turns out that Kona is about 95 miles away and that it takes kind of a long time to even go 30 miles. I wasn't expecting the whole "only one road" situation either. Plus it was raining and they kept stopping traffic for "mowing" (which looked like it meant hacking out whole giant sections of vegetation.

They told me the Kona side is really built up.

But you do live in paradise!

Lisa

Lisa16 Collaborator

Hi Ken!

You know, at the Volcano House they had one of your tropical fruit posters up by the door that goes out to the observation deck. That was pretty cool.

Yes, I kept puzzling over why it was taking so long to drive places-- it was like a time warp. Maybe there is such a thing as Hawaiian miles! 3 hours to go 98 miles is really something. A HI mile must be longer that the mainland kind by a factor of 1.5 (at least).

But I got to see the lava flowing into the sea! When I was little I saw a documentary about it and ever since then I had wanted to go. I think the coolest part was where it had flowed over the road, but I like the lava tube too. That is really a very nice park.

Next time I will fly into Kona and visit your flea market :-)

Lisa

kenlove Rising Star

Ok, As long as you come to Kona next time!

it only takes 2 hours to go 15 miles when school is out every afternoon<G> Glad you saw the poster! Working on 2 others now too, more than 100 types of citrus and over 100 types of avocados.

Before you come here you can get a sneak peak at my test field on the upcoming PBS show Gourmet's Diary of a Foodie.

They filmed us for 12 hours straight for a 15 minute segment but i'm pretty sure they will show me dragging my chef buddy around the field and then in the kitchen using some of the wierd fruit. I also talked about celiac during the interview part but not sure how much if any of it they will leave in the show.

Take care

Hi Ken!

You know, at the Volcano House they had one of your tropical fruit posters up by the door that goes out to the observation deck. That was pretty cool.

Yes, I kept puzzling over why it was taking so long to drive places-- it was like a time warp. Maybe there is such a thing as Hawaiian miles! 3 hours to go 98 miles is really something. A HI mile must be longer that the mainland kind by a factor of 1.5 (at least).

But I got to see the lava flowing into the sea! When I was little I saw a documentary about it and ever since then I had wanted to go. I think the coolest part was where it had flowed over the road, but I like the lava tube too. That is really a very nice park.

Next time I will fly into Kona and visit your flea market :-)

Lisa

  • 2 weeks later...
amber Explorer
I just got back from a week in Honolulu and I had a great experience at the Hilton Hawaiian Village.

If you call ahead, they can get you what you need for every meal. They took good care of me and made arrangements for every meal. You can eat at the Tapa cafe, the Hau Tree grill, Bali by the Sea and the Village Steak and Seafood Grill. They are even able to accomodate you through room service. The chefs spoke with me and checked on every meal and they were very knowledgeable about celiac disease.

I give them top marks!

Good to hear of your positive gluten-free experience in Hawaii. We have thought about going to Hawaii but have also heard that the knowledge of celiac disease and availability of gluten-free food is not so good there which makes us think twice about going there.

kenlove Rising Star

HI Amber,

I work with chefs on the Big Island in Kona and they all know about celiac now. Most resort hotels here keep gluten-free items in stock

and we just had the largest healthfood store open in downtown kona with gluten-free items I never saw before!. I spent way to much there last Friday! Some of the smaller restaurants are not too aware but the good ones are.

If you have any questions I'll be glad to try an answer them.

Ken ( in Kona)

Good to hear of your positive gluten-free experience in Hawaii. We have thought about going to Hawaii but have also heard that the knowledge of celiac disease and availability of gluten-free food is not so good there which makes us think twice about going there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.