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Could This Be Celiac?


momtoo3

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momtoo3 Newbie

My nephew just got diagnosed with celiac. My sister called me to let me know the symptoms she was reading about fit my kids and I too a T. Can anyone relate?

Son 1- diagnosed with tourettes syndome, ocd, sensory integration at age 3. Terrible canker sores in his mouth all the time. Very skinny, cant gain weight well.

Son 2- sleep apnea so bad had tonsils adenoids removed age 3. Diagnosed with asthma 4 years ago with severe sinus infections and pnemonia every year. His asthma is not controlled. NOthing helps. He has terrible sleep issues now which I have no idea why or what causes it. Mood swings, extremely picky with food, only likes meat. Constant cough. Has had 4 different allergic reactions in the past 4 years for unknown reasons. Rash develops, trouble breathing, went to ER once and had api pen one other time. Benedryl helps now that we know what to look for. Was allergy tested but found nothing.

Me-asthma my whole life. ADD, ocd, anxiety, constant cough, sleep issues, reflux.

Husband (I know he's not blood related but this fits him too) extreme anxiety whole life. Underweight whole life. Diarhea when he would eat or get anxious. That seems to be under control somewhat now with anxiety meds but still gets bouts of depression and anxiety. His daughter is the exact same way. Sickly skinny, trouble sleeping, upset stomach all the time.

My kids and I do not have the terrible diarhea and stomach issues though. This whole thing amazes me because I am actually hoping we test positive for this disease so we finally have some answers to whats been making us sick for so long.


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flourgirl Apprentice

Hi! Yes, any and all of these things COULD be Celiac related, or maybe not. The only way to know for sure is to get tested, best bet biopsy. Your other alternative is to try the gluten free diet on your own without diagnosis, but please make sure you give it time enough to positively identify what, if any symptoms can be attributed to your diet. Either way, I invite you to read everything you can to educate yourselves. Not only here in the forum but on websites (trustworthy ones) and books.

Because it's in the family, you have a greater chance of having it too. I would also look at other causes just to rule them out.

Personal note: I was ill through out my childhood and teen years as well as my adult life. Many allergies, infections, anemia, "ulcers" migraines...you name it. I believe most if not all of the illness I had is attributable to Celiac. Can't prove it...but that's my belief.

Good luck in your search for answers and in finding healing :)

lovegrov Collaborator

A number of those symptoms could be celiac, but also a number of other things. I'd get the celiac panel done on everybody.

richard

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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