Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take You To Heal?


clnewberry1

Recommended Posts

clnewberry1 Contributor

I have been gluten free since December 1st. In November I had a very bad case of stomach flu - maybe glutened but either way I lost some weight. I am already a small/petite person 5'2" and 95 pounds. I am now 89 pounds. I thought I would start putting the weight back on. I am following a much healthier diet and the loose stools are gone.

I just wonder how long it will take before I can start putting some weight back on and when will my stomach heal. My goal is to be 100 pounds in 6 months. Possibly this is too aggressive.

I am drinking coconut milk smoothies in the morning and eating lots of almonds. I am not sure what else to eat I guess.

I can't have yeast so no bread and I may have a minor issue with milk. I need to get some further testing on the dairy party.

Thanks,

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Hi. :)

I appreciate that question, unfortunately I have no answer for you. :( Healing is very individual, if you have time to read some of the posts you will see that it varies, for some simply cutting (whoops I am sure someone doesn't think it is simple!) out gluten will make the difference, for others more intolerances seem to arise. Dairy, soy, corn, eggs are often a problem.

It also depends on how long you have been ill.

I too was very thin and it took time to gain weight, it seemed I could eat and eat and eat and still not gain, I ate almond butter by the half jar (a cup at a time), lots of coconut oil as I couldn't do dairy. Sometimes I would mix the almond butter and coconut oil together!

The important thing to do is pay attention to how you feel, keeping a journal is helpful.

I believe the general understanding is that it may take up to two years to heal your villi.

Piccolo Apprentice

Hi, and welcome to the club. I have been gluten free for about 2 1/2 years. It took me a year before I was fully healed. There is yeast free bread available. I get mine from Ener-G. It is very dense and the only thing it is good for is toast. Here is my typical breakfast.

Cooked cereal with brown sugar and milk (any kind)

toast with butter substitute, nut butter, and sweet

plus my beverage

This keeps me full till lunch time.

Hope this helps. I also am very petite. I have never weighed 90.

Susan

wschmucks Contributor

FYI they do make gluten free and yeast free bread-- and it's not bad, I actually like it. They have it at Whole Foods in the gluten-free section. If they do not have it in stock they will order it for you and it will be there in about 2 days :-)

digmom1014 Enthusiast

My test for beginning to heal was milk. I was able to drink it without a reaction in about 6 months. I am also gluten-free intolerant, not diagnosed celiac. You need to be pretty strict with yourself and eat "clean" foods until then. Figure on June/July to re-test yourself with the dairy.

However, everyone is different, as stated previously. I just know that it is a long and hard struggle to see when and if you can adapt gluten-free into a lifestyle your body is comfortable with. Sometimes people are also allergic to other items, even though they are gluten-free.

Believe me, once you are healed you will gain back the weight plus have a great deal of energy. I sometimes can't believe the way I feel now is how most people feel all the time!

Glutin-Free Man Rookie
There is yeast free bread available. I get mine from Ener-G. It is very dense and the only thing it is good for is toast.

Susan

Hi Susan,

I have some of the Ener-G bread in my pantry, and having eaten an entire loaf of it, I'd go even one step further than you, and say "The only thing I'd recommend using it for is a coaster."

I've been baking my own bread for a couple weeks now, mostly based on the recipes from Open Original Shared Link. I'd recommend trying her Open Original Shared Link if you've only been eating pre-packaged gluten-free bread.

For Crystal - no yeast doesn't mean you can't eat bread! It just makes it a bit harder. Irish Soda Bread doesn't use yeast as leavening. You can make it with baking soda and an acidic ingredient (buttermilk) to react together and provide the gasses to leaven the bread, or you can use a carbonated beverage (soda water) as a single, pre-gassed ingredient to leaven the bread.

I haven't tried any gluten-free versions of soda bread, but I enjoyed some wheat based versions of it before I became gluten intolerant. It's a bit crustier and denser than most yeast leavened bread, but still very good.

Here's some links to recipes that sound reasonable:

  • Gluten-free girl's (no relation <ahttps://www.celiac.com/uploads/emoticons/default_wink.png' alt=';)'> ) Open Original Shared Link sounds good.
  • Karina's Open Original Shared Link sounds very good.
  • This Open Original Shared Link has fewer ingredients, so it might be easier to start with, but I'm not a big fan of things baked with mostly rice flour. It tends to have a gritty texture, especially with the health food store flour, which is usually easier to find but tends to be coarser than most people like.

See my post here (scroll down to the bottom of the page) for cheaper places to get some of these ingredients.

Hope this helps!

sixtytwo Apprentice

Gluten intolerant too, going on five years now, my grandaughter has severe celiac disease for nine of her ten years of life. My only advice is not to think you can cheat here and there as YOU CAN'T. I started having lots of migraines and feeling yukky, and it probably was the fact that I though I could just have a little of this or that and get away with it. I went back to strictly gluten-free and I am much, much better now. My favorite bread is Bob's Red Mill bread that I bake myself and I make it into four small loaves rather than the one large one, much easier to get to rise and bake nicely. I also use their all-purpose flour mixture for all of my baking from scratch, a litte hint is to back off a little on the amount it calls for in the recipe as things tend to be a little dry, maybe add a little more moisture and always add 1 tsp of xanthun gum for every cup of flour. If a recipe is a really dry one, it doesn't adapt too well. When I made my own pumpkin bread recipe this last Christmas, I put in too much water by mistake and it turned out so moist and tasty using the gluten-free way. It is kind of trial and error using your recipes and changing them to gluten-free. Just keep working with your recipes and you will be surprised how well you can adapt them to gluten-free. If you don't tell people, they will never know they are your own special food.

Best wishes.........Barbara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
eleep Enthusiast

It really took me about a year and a half to begin to put on weight. I went through a nasty breakup right after my diagnosis, which definitely stressed me out and hampered the healing process -- it also made me lose my appetite for a while. Even after a year an a half, I hadn't gained a whole lot of weight - but I'd always been skinny, so I assumed that was the way it would be.

Actually -- that's changed a lot in just the past year -- I've gone from size 0 to size 4 -- and it's a very good thing, let me tell you. I've been gluten free for three years and about a year ago I started to see an acupuncturist every other week. Although I'd assumed that I was "healed" before then, the acupuncture has really accelerated the process even more and I have more energy and feel better than I ever though possible -- I've also gained a really healthy amount of weight since then and my weight seems to have balanced out.

Also -- I've been making a lot of Socca -- which is kind of a chickpea flatbread -- it's all olive oil, chickpea flour and water -- no yeast or dairy -- quite wonderful. I've been using Mark Bittman's recipe, which you can find by googling Bittman and Socca.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.