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Michigan Eastsiders?

mimommy

By mimommy
in Introduce Yourself / Share Stuff

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mimommy Contributor
mimommy
Posted

Hello all! I am from the n. eastern suburbs of Detroit and am looking for a support group in this area. I know the tricounty group has a meeting in Farmington, but it is quite a hike from here. Is there anyone here from this area? Would you be interested in a group near R.O./Troy Beaumont or Henry Ford Macomb? I am seeking peer support for my young child.

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AMQmom Explorer
AMQmom
Posted

I have two Celiac daughters - 4 and almost 8 years old. We live near Clarkston but I go to the Troy Beaumont area for appt.s pretty regularly. Keep me posted if you find more. I also know one 1st grade little girl in Clarkston with Celiac.

mimommy Contributor
mimommy
Posted
  • Author
I have two Celiac daughters - 4 and almost 8 years old. We live near Clarkston but I go to the Troy Beaumont area for appt.s pretty regularly. Keep me posted if you find more. I also know one 1st grade little girl in Clarkston with Celiac.

Hello Clarkston! So nice to hear from you. I have been looking for a place where my 8 year old daughter can talk to and interact with other children with celiac. I did find the tccsg (tricounty celiac support group), but their meetings take place at a church at 11 Mile & Farmington Rd (I am near Lakeside mall.) Their web is tccsg.com. I am going to call the hospitals I mentioned and my pediatrician and Ped. GI to see if any one knows of any groups that meet closer to us or would help/support/give meeting space for a new group. Although I am hesitant to jump off and start from scratch, I will if I need to. I believe my daughter would benefit from this, and I know I would truly enjoy an outlet with face to face conversation with other parents--advice, experience. I am already interested in hearing your story--such as what doctors you see, how you handle school functions--because our children are the same age. I will do some legwork and post back later on this. One last note, I am considering starting a team for the celiac 5 mile walk/run in May. Check out the web address above to read about it. If you are interested, let me know. My husband and neihbor (neihbor, her daughter-in-law, and grandson have celiac also) said they would walk on the team if I start it.

MaryJones2 Enthusiast
MaryJones2
Posted

There are two R.O.C.K. (Raising Our Celiac Kids) chapters in Michigan. I don't know anything about Michigan so I don't know if they are close to you:

Macomb Township - ROCK'n MI Support Group

Contact: Kimberly Fanelli

Macomb Township, MI 48044

Tel: (586) 226-8480

E-mail: Open Original Shared Link

West Bloomfield - Support Group

Contact: Gail Smoler

Raising Our Celiac Kids (R.O.C.K.) - West Bloomfield Chapter

4358 Strathdale Court

West Bloomfield, MI 48323

Tel: (248) 851-9451

E-mail: Open Original Shared Link

AMQmom Explorer
AMQmom
Posted

I was all gung hoe to start a R.O.C.K. chapter closer to us, got all the paperwork then we had job loss. If you are interested, R.O.C.K. looks very simple to start!! MIMommy, PM me if you don't mind so we can exchange info - I did join Tri-County but never made it to a meeting despite my interest because of the drive (and since let the membership lapse).

Heads up - Kyle Dine is coming to Clarkston for a show in May. He has a C.D. out for kids that is really funny and all about food allergies. One song is about being gluten free (he unterstands that celiac is not an allergy - he faces food allergies and that is what got him started). There will be one show for kids up to grade 3 and one for 4-8. Pretty exciting!

Same age kids - can't beat that!!!! Hope to meet you and yours....

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