Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else With Celiac And Ee?


codyb87

Recommended Posts

codyb87 Rookie

Ever since I went gluten free I have been experiencing symptoms of EE. If I don't chew my food enough, larger pieces seem to get stuck at the back of my throat. It happens on random days and I'm trying to link it to something I'm eating maybe (heard food allergies can trigger it). Bananas are the only thing I can think of that I ate on those problematic days, but, bananas? too weird.

Anyone else going through this? not only do I now have to pick out gluten, but I now have to focus on soft foods just to keep it down!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Yes. My daughter was diagnosed with EE on December 17th after for suffering months.

She went for allergy testing and nothing showed up. If you can find part of the allergic reaction that triggers this you are so extremely lucky! You will have some control over the problem. I have been doing a food journal to try and track down anything that could be the trigger for her. She is weaning off of the steroid and the sporadic vomitting is coming back. Some nights she can't sleep at all because of the pain.

Popsicles and Slurpees really help. Another adult with EE suggested freezing small pieces of fruit to help with the discomfort too.

nora-n Rookie

Mine got better after changing toothpaste to natural salt toothpaste.

I did not manage to get a diagnosis, but I was scoped an biopsied for ee.

I suspect milk and traces of milk do me in.

Maybe they use ingredients originally derived from milk in ordinary toothpaste, I do not know.

nora

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.