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Getting Frustrated With Daughter!


Juliebove

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Mother of Jibril Enthusiast

My daughter is only three, but she has a VERY strong mind of her own. She's going to make quite the spectacular teenager ;) She eats a lot of different foods, but within the last few months she has started to insist that each one be completely separate... no mixing foods (like soup or pizza with the toppings). I understand... I used to be like that too. I let her eat very simple foods for dinner... pieces of cheese, fruit, vegetables, waffles, macaroni and cheese, yogurt... it doesn't take long to prepare. "Treats" are off-limits until the real food is gone. My husband is really erratic about meal times (he does a lot on his own)... so when I cook, I cook for my own pleasure :P Tonight I made soup and there should be lots of yummy leftovers for at least a couple of days. Everybody's happy and honestly... I don't spend a lot of time in the kitchen.

As far as the supplements go... my daughter actually likes the Animal Parade multivitamins. I found a big jar of all PINK (her favorite). She also likes the Country Life "solar gems" vitamin D (cod liver oil)... it comes in little lemon-flavored gel tabs that you can chew like gummy candy.


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tarnalberry Community Regular
I won't play his games. He's an adult and I feel if an adult needs to do stuff like this, something is very wrong.

oh my! Julie, I should have mentioned that I mostly meant that for your daughter - your husband is old enough to voluntarily work with you on these things. You are already far more generous than I am with my husband - I'll make something I know he doesn't dislike, and that's it. If he wants something that I tend not to buy, he has to buy it. As you say - they're adults. You might try being a little more firm with him, so he can't set a bad example for your daughter? I don't know... Not having kids, this is all guess work for me.

Good luck! It sounds like you've gotten some good advice already.

Juliebove Rising Star

Although she is only 10, she is adult sized so according to her Drs. needs adult sized doses of meds. I bought her the teen vitamins, thinking they are more in line with what she needs. We do have the gummies. She's not overly thrilled with them. That's why I got the swallowables.

I did just buy a huge bottle of something that looked like gumdrops at the health food store after getting samples. We both tried one and liked them. However, what came in the bottle did NOT taste good like the sample. So I don't know there. Very sour. I threw them out.

shayesmom Rookie

This is what I dread....and that's because I KNOW that it is coming for us as well!

I'm currently getting over a cooking "rut" that has lasted several months. Like you, I've also gone to that crockpot site, with mixed reviews at best. My dd goes through eating phases where she likes something and then likes nothing. She's just 5. But I see the writing on the wall and with a very restricted diet, I often feel like we're out of options (which isn't necessarily true...but it sure does feel that way!). I am not looking forward to packing lunches for my dd next year.

That being said, there are a few things that I've begun doing that seems to be helping us get over the current rut. I've been making a fall-back meal/snack at least once or twice a week. In our case, it's been something like chicken noodle soup, baked chicken wings, chicken/turkey casserole or spare ribs. I make this one day and it's only for snacks or for when there are complaints about dinner. For the casseroles, I make my own dairy-free cream of mushroom soup as well as a "cheese" made with cashews. Spaghetti and meatballs is also another optional fall-back meal.

And I would recommend things like nutritional yeast or McCormick California style garlic salt to use on days when dairy isn't an option.

Other things we have done is make sliced organic hot dogs wrapped in organic bacon. I can then serve this with potato salad, home fries or beans. You can have your dd mix and match her own side dishes.

So she like olives? She can pack those as a side in her lunch. I often do that.

I also pack myself things like apple slices and sunbutter, tuna salad with crackers (in lieu of bread), seafood or chicken/broccoli alfredo (make the alfredo with cashews), etc..

We've recently discovered the Purely Decadent Coconut yogurts and ice creams. It sounds like this may be a viable option for your dd. Mine loves it with some safe "granola" to top it with. The ice cream could be used to make the occasional smoothie she can pack in a thermos.

I know that some of these aren't the most nutritious of foods. But it's been my experience that these ruts need to be conquered before any growth can take place. In short, you've got to get the car out of the ditch before punching the gas to drive it down the road. ;)

As for dh....he eats pretty much anything. And he knows that if he wants something "special", then it's in his best interest to make the request early in the day or in the least, leave the steak thawing on the counter before he leaves for work! lol!! Since I spend most of my time in the kitchen, I'm sure to get the hint!

I hope you work through this soon!

Juliebove Rising Star
This is what I dread....and that's because I KNOW that it is coming for us as well!

I'm currently getting over a cooking "rut" that has lasted several months. Like you, I've also gone to that crockpot site, with mixed reviews at best. My dd goes through eating phases where she likes something and then likes nothing. She's just 5. But I see the writing on the wall and with a very restricted diet, I often feel like we're out of options (which isn't necessarily true...but it sure does feel that way!). I am not looking forward to packing lunches for my dd next year.

That being said, there are a few things that I've begun doing that seems to be helping us get over the current rut. I've been making a fall-back meal/snack at least once or twice a week. In our case, it's been something like chicken noodle soup, baked chicken wings, chicken/turkey casserole or spare ribs. I make this one day and it's only for snacks or for when there are complaints about dinner. For the casseroles, I make my own dairy-free cream of mushroom soup as well as a "cheese" made with cashews. Spaghetti and meatballs is also another optional fall-back meal.

And I would recommend things like nutritional yeast or McCormick California style garlic salt to use on days when dairy isn't an option.

Other things we have done is make sliced organic hot dogs wrapped in organic bacon. I can then serve this with potato salad, home fries or beans. You can have your dd mix and match her own side dishes.

So she like olives? She can pack those as a side in her lunch. I often do that.

I also pack myself things like apple slices and sunbutter, tuna salad with crackers (in lieu of bread), seafood or chicken/broccoli alfredo (make the alfredo with cashews), etc..

We've recently discovered the Purely Decadent Coconut yogurts and ice creams. It sounds like this may be a viable option for your dd. Mine loves it with some safe "granola" to top it with. The ice cream could be used to make the occasional smoothie she can pack in a thermos.

I know that some of these aren't the most nutritious of foods. But it's been my experience that these ruts need to be conquered before any growth can take place. In short, you've got to get the car out of the ditch before punching the gas to drive it down the road. ;)

As for dh....he eats pretty much anything. And he knows that if he wants something "special", then it's in his best interest to make the request early in the day or in the least, leave the steak thawing on the counter before he leaves for work! lol!! Since I spend most of my time in the kitchen, I'm sure to get the hint!

I hope you work through this soon!

I need to find more coconut yogurt. She did like it, but the health food store has been out of it. I did see it at some other store but now I can't remember where.

I have done the bacon wrapped hot dogs. She liked them. Husband said he hated them, but again he ate tons. The last few times I have suggested buying hot dogs though, she told me they were disgusting and schreeched if I even looked like I was going to touch a package. Same thing for Kielbasa and Bratwurst.

This morning she was particularly cranky. So much so that I was really glad when the bus came. She said she could sleep for another 26 hours. I am beginning to think she is just not fully over this flu.

RiceGuy Collaborator

Well, I'm not sure I can offer anything which hasn't already been covered, in one form or another. But I do know that kids take cues from the people around them, and your husband is definitely not helping. Children will take every advantage of whatever others appear to "get away with". If they see how a parent will say or do something, which the other parent allows, they'll follow suit. Even if the food isn't so bad, if they think there's the slightest chance that the parent will buckle, or that they can weaken that parent's resolve for the next confrontation, that's exactly what they'll do.

Kids LOVE to push the limits set by their parents. Flu or no flu, allergy or not, super-taster or not, it just doesn't matter. They'll do it just to be defiant. I know people who grew up that way, getting away with all sorts of stuff as kids. And now, as so-called "adults", they're so maladjusted, it's pathetic.

My husband is not a picky eater at all. He is very controlling and manipulative. He used to play games with his mom. She would fix him a plate of food and he would say, "I don't want that! I want something else!" So she would cry and fix him something else. He would do this maybe 4 or 5 times with her finally hurling herself down on her bed in tears, which is exactly what he wanted. He would laugh and then proceed to eat all the plates of food.

It does sound your husband has not completely outgrown this sort of behavior. It may be somewhat modified, but it's still there, and it sounds like your daughter is definitely picking up on it.

I'm not saying your daughter is going to become that way. Most don't. I'm just pointing out that kids know how to play mind games. As long as you fall back, they keep pushing. So while she might have a perfectly legitimate reason for her current behavior, it can easily become a trend. She needs to know that you're a rock which she can lean on when she needs to, but you won't move no matter how much she pushes.

Given her dietary restrictions, which you've mentioned, I can understand how it can get tough. However, the rotation diet could actually help in some ways, because she won't have to be eating the same thing day after day. Thing is, new foods aren't always a welcomed thing, but the method of preparation can make a large difference.

A child's tastes can be very different from those of their parents. I recall times when the main dish on the table was some sort of sauce with squid in it. I don't care how much sauce is covering them, there's no way to make tentacles appear appetizing! There's no way to make them taste good either. My mom actually thought this was a wonderful dish, and just couldn't fathom how anyone would not like it. Same with the tripe. My stomach turns just recalling the memory.

There are so many ways to make foods, and preparing them can be fun. It may turn out that your daughter will like things that you'd never think of, but are still healthy. Sometimes it just takes a little spark to get the imagination going. For instance, there are literally several hundreds of ways to make salsa. Who knew?! Here are some sites which you and your daughter might get some ideas from (you'll have to modify according to restrictions of course):

Open Original Shared Link

Open Original Shared Link

You know, if Stevia tastes good to your daughter, you could do a lot with it. For example, a pumpkin pie made with Stevia instead of sugar is actually not so bad health-wise. After all, pumpkin is a type of winter squash, and you don't need any dairy or eggs for it either. Stevia works well in cookies, and all sorts of things. Obviously, there can only be so much indulgence, but if it can lead to a broadening of the foods she will eat, it may be well worth doing.

Do you and your daughter like to get creative with smoothies or anything? Is there any food which she'll take an interest in making with you? The way you approach the subject is also very important. If you make it sound like a fun thing, I'd think your chances of raising her interest are better.

RiceGuy Collaborator

Just thought of something. Have you looked into the possibility of a candida overgrowth? This made me very irritable and cranky as a kid, always felt icky, would change my mind about food from one moment to the next, etc. Candida can also cause food intolerances, or what seem to be allergies. And, it does make you crave certain foods too.


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Juliebove Rising Star

I don't generally make desserts. I'm diabetic and I don't consider them necessary. Since we never had them, except for special occasions like holidays and birthdays, she doesn't expect them. As for stevia, I don't believe it is a healthy thing to consume so would never buy it or anything containing it.

I do make the occasional apple crisp if I happen to have an abundance or apples and nobody has eaten them. Have tried pear crisp when we had a lot of pears on our trees, but nobody really liked it.

I have made Smoothies for her during the summer. And I get her one Jamba Juice per week, most weeks. She got two this week. She had that and salad for dinner tonight. She didn't put up a fuss. I told her that was what she was having and she selected what she wanted.

Juliebove Rising Star
Just thought of something. Have you looked into the possibility of a candida overgrowth? This made me very irritable and cranky as a kid, always felt icky, would change my mind about food from one moment to the next, etc. Candida can also cause food intolerances, or what seem to be allergies. And, it does make you crave certain foods too.

That's possible. I just went through this myself. Have been sick since Sept. She had an ear infection and I had a cough, but the Dr. thought both were viruses. She still prescribed antibiotics because whatever it was, wasn't going away.

Then she went to the Dr. repeatedly for what we thought was a UTI. Turns out it was not that at all but impacted feces. So she had a lot of antibiotics she didn't need.

Meanwhile I got an ear infection and had two rounds of antibiotics. Finally had to go to the ENT and it was yeast in my ears! Had a yeast infection elsewhere. So... It's possible she has this problem too.

Thanks!

RiceGuy Collaborator
As for stevia, I don't believe it is a healthy thing to consume so would never buy it or anything containing it.

Really? Wow. How did you come to that conclusion? Or are you thinking of aspartame by any chance? Just in case you've been misinformed, Stevia is a completely natural extract, with zero carbs, zero sugars, zero calories, and zero on the glycemic index. It is extracted with plain water, so there are no chemical residues. There haven't been any reported negative side effects from Stevia, and it has been extensively studied for decades. It's also heat stable, so it's great for baking. It comes from a herb native to Paraguay.

I'm not trying to convince you to use it. Just really surprised of your opinion of it, and want to make sure there wasn't some misunderstanding.

That's possible. I just went through this myself. Have been sick since Sept. She had an ear infection and I had a cough, but the Dr. thought both were viruses. She still prescribed antibiotics because whatever it was, wasn't going away.

Then she went to the Dr. repeatedly for what we thought was a UTI. Turns out it was not that at all but impacted feces. So she had a lot of antibiotics she didn't need.

Yes, that's certainly one way to end up with an intestinal yeast overgrowth, or to make one worse. You could easily try some caprylic acid capsules, or one of the other candida killers. These supplements aren't expected to cause any problems even if there is no infection, so I'd have no hesitation if I though I might need them.
Juliebove Rising Star
Really? Wow. How did you come to that conclusion? Or are you thinking of aspartame by any chance? Just in case you've been misinformed, Stevia is a completely natural extract, with zero carbs, zero sugars, zero calories, and zero on the glycemic index. It is extracted with plain water, so there are no chemical residues. There haven't been any reported negative side effects from Stevia, and it has been extensively studied for decades. It's also heat stable, so it's great for baking. It comes from a herb native to Paraguay.

I personally believe Aspartame is safe. As for the Stevia, I have seen online that it can change DNA. That can't be good. And it's why it is not approved for use as a sweetener in many countries. It was not approved for use here until recently. I've also been told by people who tried it that it tasted awful. Bitter.

I'm not trying to convince you to use it. Just really surprised of your opinion of it, and want to make sure there wasn't some misunderstanding.

Yes, that's certainly one way to end up with an intestinal yeast overgrowth, or to make one worse. You could easily try some caprylic acid capsules, or one of the other candida killers. These supplements aren't expected to cause any problems even if there is no infection, so I'd have no hesitation if I though I might need them.

There's no misunderstanding. As a diabetic, Stevia has long been discussed among the community. Some chose to use it. Most do not.

RiceGuy Collaborator
There's no misunderstanding. As a diabetic, Stevia has long been discussed among the community. Some chose to use it. Most do not.

That is very interesting! I shall definitely look on the diabetes boards to find out what it is that makes them decide not to use it. Everything I've read - and I mean everything - suggests that Stevia is the perfect sweetener for a diabetic (and everyone else).

Juliebove Rising Star
That is very interesting! I shall definitely look on the diabetes boards to find out what it is that makes them decide not to use it. Everything I've read - and I mean everything - suggests that Stevia is the perfect sweetener for a diabetic (and everyone else).

Do a search on stevia and DNA mutation. And I don't know about diabetes boards. I only post to the newsgroups.

Jestgar Rising Star

I put your search terms into pubmed.

Open Original Shared Link

I only scanned the first page, and this is the only report specific to genetics:

Open Original Shared Link

And this is their finding:

The majority of the findings show no evidence of genotoxic activity. Neither stevioside nor its aglycone steviol have been shown to react directly with DNA or demonstrate genotoxic damage in assays relevant to human risk. The mutagenic activity of steviol and some of its derivatives, exhibited in strain TM677, was not reproduced in the same bacteria having normal DNA repair processes. The single positive in vivo study measuring single-strand DNA breaks in Wistar rat tissues by stevioside, was not confirmed in experiments in mice and appears to be measuring processes other than direct DNA damage. Neither stevioside nor steviol-induced clastogenic effects at extremely high dose levels in vivo. Application of a Weight-of-Evidence approach to assess the genetic toxicology database concludes that these substances do not pose a risk of genetic damage following human consumption.

Juliebove Rising Star

Okay, thanks! It's still not something I wish to use though.

Jestgar Rising Star
Okay, thanks! It's still not something I wish to use though.

I don't actually like it - it leaves a bitter aftertaste. Wonder if that varies from individual to individual.

Juliebove Rising Star
I don't actually like it - it leaves a bitter aftertaste. Wonder if that varies from individual to individual.

That's what my mom said. She tried in in cranberry sauce and said it was inedible. From what I've read about it, you need a very small amount. Much less than you'd think.

The way I look at it... I don't eat much in the way of sweets to start with. I used to bake a lot and make my own candy. But since the diabetes diagnosis, that all went out the window. I learned to live without that stuff and my daughter was raised for the most part without it. I do buy her Enjoy Life cookies and chocolate bars for her lunch. She eats marshmallows. Sometimes some other candy like Skittles. And we occasionally find other safe baked goods at various stores around here.

I rarely ever make candy or bake any more. But when I do, I am going to make sure it tastes good and it will have real sugar in it. I have no problems with sugar in terms of health because it is not something I consume often.

I do drink diet soda. Tons of it. Once or twice a year I make a cranberry salad. In that case, I do use sugar free Jell-O and I do use some Splenda (or Aspartame) to sweeten the berries. Whatever I have in the house. It's usually Splenda. I buy one small package a year. Rarely ever use it for anything else. Tried it once in a coleslaw but the end result was inedible. I don't think it was the fault of the Splenda though. Seems the cabbage I get from my local farm is just very bitter.

ang1e0251 Contributor

I'm a little surprised that you feel stevia from plants is unsafe but you use aspartame in soft drinks and other things. Aspartame not only makes me sick but I've read some pretty scarey things about it.

I like agave nectar for sweetening too. It's very low glycemic and comes from the agave plant. I do use sugar but I like to control and switch that up toward the evening hours.

Jestgar Rising Star

I suppose it's all a balance, isn't it? I put stevia in my tea once in a while, drink diet pop, if I'm drinking any pop, buy treats made with agave or brown rice syrup, and use sugar when I bake (also rarely).

I would think, if something's going to cause a problem, it will be something you consume in excess, whatever the source.

Juliebove Rising Star
I'm a little surprised that you feel stevia from plants is unsafe but you use aspartame in soft drinks and other things. Aspartame not only makes me sick but I've read some pretty scarey things about it.

I like agave nectar for sweetening too. It's very low glycemic and comes from the agave plant. I do use sugar but I like to control and switch that up toward the evening hours.

I've read scary things written about Aspartame too. They're all written by one Betty Martini, aka Nancy Markle or one of her minions. If you look it up on Snopes.com or one of the other myth busting sites, you'll see just how wacky and how much of a liar this woman is. She dredged up the names of deceased Drs. and "quoted" them. Then she made the mistake of "quoting" a Dr. who is still alive. Turns out he never said what she claimed. He sued her.

I can't do agave. It spikes my blood sugar very badly and I don't much like the taste of it. I have used it in a few raw recipes but only used one little squirt.

The glycemic index means nothing to me. I get better results with things like white bread and potatoes. Things I shouldn't do well with.

Juliebove Rising Star
I suppose it's all a balance, isn't it? I put stevia in my tea once in a while, drink diet pop, if I'm drinking any pop, buy treats made with agave or brown rice syrup, and use sugar when I bake (also rarely).

I would think, if something's going to cause a problem, it will be something you consume in excess, whatever the source.

Maybe. Some might say I use a lot of Aspartame because I drink a lot of diet soda each day. But I don't generally have any other sweeteners than that.

RiceGuy Collaborator

I'm sorry to hear that you use aspartame, as it has been confirmed as a neurotoxin. Can't cook with it either, as it breaks down into other toxic stuff. This has been known even before it was put on the market.

It is amazing what companies will do to sell a product, which is why it is so important to research things yourself. Just Google "aspartame neurotoxin" and see what you get. All other artificial sweeteners are known to be toxic as well. This is just one reason why Soda companies have been pushing forward to put Stevia in their products.

Don't believe everything you read, obviously. There are people on all sides of every issue.

Here's a study done on aspartame and MSG, on PubMed:

BACKGROUND: Fibromyalgia is a common rheumatologic disorder that is often difficult to treat effectively. CASE SUMMARY: Four patients diagnosed with fibromyalgia syndrome for two to 17 years are described. All had undergone multiple treatment modalities with limited success. All had complete, or nearly complete, resolution of their symptoms within months after eliminating monosodium glutamate (MSG) or MSG plus aspartame from their diet. All patients were women with multiple comorbidities prior to elimination of MSG. All have had recurrence of symptoms whenever MSG is ingested. DISCUSSION: Excitotoxins are molecules, such as MSG and aspartate, that act as excitatory neurotransmitters, and can lead to neurotoxicity when used in excess. We propose that these four patients may represent a subset of fibromyalgia syndrome that is induced or exacerbated by excitotoxins or, alternatively, may comprise an excitotoxin syndrome that is similar to fibromyalgia. We suggest that identification of similar patients and research with larger numbers of patients must be performed before definitive conclusions can be made. CONCLUSIONS: The elimination of MSG and other excitotoxins from the diets of patients with fibromyalgia offers a benign treatment option that has the potential for dramatic results in a subset of patients.

Open Original Shared Link

From what I've read and heard, the FDA has received more reports of negative side effects from aspartame than any other product, period. To understand why the FDA continues to allow this junk on the market, just Google "fda revolving door". On the other hand, Stevia has been in use for hundreds of years, and there are no reports of negative side effects.

It is true that some people find Stevia to have a bitter aftertaste, but many simply aren't familiar with how little it takes to sweeten something with it, and they use too much. There are also the liquid formulas, which typically have grapefruit seed extract as a preservative, and that gives an aftertaste too. This is why many brands use fillers and such in the powdered formulations, to bulk it up so it measures like sugar. It is important to note that not all brands have a high purity, and this also leads to an aftertaste. Lastly, there are a few different compounds within Stevia which give it its sweet taste, and each brand is different in the proportions of those compounds. So anyone interested should really try a few different brands and formulations, to find the one they like best.

Juliebove Rising Star

I have Fibromyalgia, but it's related to thyroid and not Aspartame. As for cooking with it. Why would I need to? I said I don't eat sweets. I still believe it's safe. Like I said... I know who wrote the articles and she's a liar.

RiceGuy Collaborator
I have Fibromyalgia, but it's related to thyroid and not Aspartame.

Wow. Are you sure? If you Google "aspartame thyroid", you'll see that it does indeed have a negative effect on the thyroid. Either directly or indirectly, the relationship is clear.

I still believe it's safe. Like I said... I know who wrote the articles and she's a liar.

That person you mentioned isn't the only one to write about the dangers of aspartame. Far from it, in fact. Just one Google search revealed well over 200,000 articles. Many many studies have been conducted, and much research done, by credible scientists and health professionals.

Oh, and then there's the bit about the formaldehyde, but you are free to disbelieve that as well.

For those interested, here are just a few links:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Juliebove Rising Star
Wow. Are you sure? If you Google "aspartame thyroid", you'll see that it does indeed have a negative effect on the thyroid. Either directly or indirectly, the relationship is clear.

That person you mentioned isn't the only one to write about the dangers of aspartame. Far from it, in fact. Just one Google search revealed well over 200,000 articles. Many many studies have been conducted, and much research done, by credible scientists and health professionals.

Oh, and then there's the bit about the formaldehyde, but you are free to disbelieve that as well.

For those interested, here are just a few links:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Mercola? Ha! He has so many lies on his site it isn't funny. Don't know about your other links. They don't look to be what I would consider legit. As in true medical sites.

What caused my thyroid problems was soy. I am convinced of it. I used to eat a lot of soy, thinking it was good for me. Then I learned otherwise. I cut it out entirely, save for the occasional soybean oil in a restaurant and a few supplements and other things that contain soy lecithin. If I can find whatever it is without the soy lecithin, I'll buy it. But sometimes I can't. But no soy protein whatever. No more Edamame or Miso soup.

And guess what? No more thyriod problems. No more thyroid meds. No more Fibro. flares.

Am I sure? Yep! :D

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      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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