Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Realized What Food Caused All Of My Problems


knowurgluten

Recommended Posts

knowurgluten Rookie

As some of you may know, I recently had some HORRIBLE stomach and liver problems to where I thought I was dying again, as I did when first diagnosed with celiac disease.

I was almost certain that I was gluten-free, but someone here said to go back and look at EVERYTHING.

I had been eating these protein bars and nothing on the package made me think they had gluten, but I called the company and YUP...I've been eating gluten protein bars for a year.

I just wonder why I got sick only now and not a year ago. Why do some get symptoms right away and some not?

Anyway, since starting the digestive enzymes (I get mine cheapest at viteaminz.com) and manuka honey, and avoiding the protein bars, I am 99% better.

I called the company who made these gluten filled protein bars (MXI/Xocai) and told them they NEED to make it clear on their packaging because I was very sick!

Thank you everyone for your help. This forum saved me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weeza Newbie

Good for you!! Glad your feeling better. I am new at this so reading labels are still confusing for me but I will remind myself that when in question, call the company. Thanks for sharing.

JNBunnie1 Community Regular

I just looked at it online, and I think it was either the 'isomaltulose' (probably barley) or the 'natural flavors' that got you. That, and they put themselves forward as a superbly healthy, forward-thinking, better-than-the-rest kind of company, but they're still using isolated soy protein. Nope, not eating their stuff!

knowurgluten Rookie
I just looked at it online, and I think it was either the 'isomaltulose' (probably barley) or the 'natural flavors' that got you. That, and they put themselves forward as a superbly healthy, forward-thinking, better-than-the-rest kind of company, but they're still using isolated soy protein. Nope, not eating their stuff!

What makes me so mad is that the average person, like me, did not know that isomaltulos was bad or isolated soy protein. They should have it more clearly labeled. We are not chemists' for pete sakes!

bigbird16 Apprentice

Cake decorator chiming in here: Isomaltulose (and its derititive isomalt), in spite of the malt in the name, is not derived from barley. It's a naturally occuring sugar (found in honey and sugar cane). Isomalt is a sugar alcohol that, like xylitol, does not promote tooth decay, though if too much is eaten, causes icky digestive things to happen. It's commonly used in sugar sculpting for its stability.

I'd point the finger at "natural flavors" or that they're produced on shared equipment.

Kat

JNBunnie1 Community Regular
What makes me so mad is that the average person, like me, did not know that isomaltulos was bad or isolated soy protein. They should have it more clearly labeled. We are not chemists' for pete sakes!

Bigbird- thank you for clearing that up.

Knowurgluten- I think you misunderstood me. I wasn't saying isolated soy protein equals gluten, just that it's bad for you (in my opinion) in general. I think bigbird is right, either natural flavors or shared equipment got you.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.