Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Improvement, But Still Have A Question!


I hate gluten

Recommended Posts

I hate gluten Apprentice

So we have been gluten free for a little over a week. My sons fine motor skills are improving drastically. I am so happy I could cry. He also is startiing to not feel like sand paper all over his skin. To beleive I struggled and fought for close to 6 years and all it took was a diet change. Do not get me wrong the road is long, but to see soooo much improvement in such a little time is unbeleivable to me. Thanks for all the support the last few weeks it has helped me get past alot of my anger. now for my question, after starting your child on the celiac diet, did the D get worse before it got better. He never had GI signs before, but the last couple days off and on he has had D. Any thoughts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliet Newbie

Everyone's experience with that varies. If a child has celiac disease, once going gluten free you may see almost immediate results in some areas, but the intestines take about 6 months to heal (quite a bit longer than that even if you're an adult). So, intestinal issues often become sporadic at the beginning, even if you never had to deal with them before. Plus, even if you don't have gluten problems, gluten free food is quite a bit easier to digest so it passes through more easily.

If no one has told you, dairy is difficult for most when you're first going gluten free because the enzyme that breaks down lactose is the first to go when someone has celiac. We didn't go dairy free (at the time, it was overwhelming enough to deal with telling him he couldn't have goldfish crackers anymore) so we gave him Lactaid before having any dairy. At least for him, within a month it wasn't needed. I know that for others who've been sicker longer, they've had to avoid dairy quite a bit longer or no more altogether.

F.Y.I. My son was diagnosed soon after turning 2, but was severely ill before diagnosis. If he hadn't been diagnosed in the hospital, he would not be around today. And the reason he was hospitalized and honestly dying was all because he was eating gluten. And 9 days after going gluten free he went from one day being awake a total of 3 hours to the next day walking until he was stumbling, refusing to take a nap, all because he could move again. I cried a lot that day, but at least it wasn't from depression anymore!

Amyleigh0007 Enthusiast

My son was always constipated. But, the first week of going gluten free he had terrible diarrhea. Everyone told me it was his body cleaning itself out and getting rid of toxins. I don't know if there is any truth to that but it makes sense.

I hate gluten Apprentice

That makes complete sense. Has anyone ever gone from eating horrible, to healthy. Its not fun the first week. (Like a new years resolution. ) He is starting to form up finally. I was actually impressed, my son and I catch every little cold that is going around the preschool and for some reason everyone but him caught it this time. May be a sign his system is healing. I hope at least. I was also talking to a few people that told me, since he is feeling better they would not doubt that he is acting out alittle more. at first it did not make sense to me. but now it does. He doesnt want to go to bed. I would not either if I did not know how i was going to feel in the morning. He wants to play non stop, he use to go from thing to thing to thing. Now he is one or two things but more into each of them if that makes any sense. His body is catching up for lost time I guess you can say. I guess over all, I am happy with his progress and can not wait to see what the future holds for him instead of worring about it now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.