Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Starving In Nc


valeriek

Recommended Posts

valeriek Apprentice

I went to Boston Market and got mashed potatoes , corn and green beans but when I try to eat I feel sick. Maybe because I havent eaten in so long. I just feel weird and dizzy. I know things will get better but right now I am in hell. I want to eat but I cant. I only weigh 115 now so i dont want to lose weight for sure. How long untill I feel normal and why is my head so weird. I was fine with all this last week and just yesterday and today I am a wreck. I am going to drive my family crazy. I just feel so tired. I dont even want to go to the store. I need honest opinions....am I hust being a baby about all this or has any gone through this. Thanks so much for listening to me whine. Can any one give me an idea of what they eat during the day. I used to eat yogurt for breakfast, fried chicken, beans and tea for lunch. And what ever for dinner. But I did eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



maile Newbie

Hi Valerie,

if you've not been eating then it's quite possible that that's the reason for feeling "weird and dizzy", combine this with D and you could be out of balance and dehydrated.

my suggestion, try and get something into yourself. If you can't eat "real food" then I believe there are types of Ensure that are gluten free (I've seen a thread on that here) which only requires sipping. Another choice (if it's available in your area) is young coconut juice, this has similar properties to Gatorade but is all natural and gluten free. (note: not sure on the gluten-free status of Gatorade) Young coconut juice has been used in southern areas as emergency food for children etc....another suggestion would be Pedialyte either drink or freeze pops.

Once you can get some nutrition into your system you may find those feelings diminsh and your appetite will return.

Good luck

ravenwoodglass Mentor

At first you really need to be cooking your stuff at home. There is a risk of CC in any restaurant or cafe sort of thing.

If it helps here is what I typically eat:

Breakfast

Rice Chex or Bakery on Main Granola with Rice Milk, Yoplait or Wegmans yogurt and coffee, eggs and Kinnickinnick toast with Jones All Natural Sausage, Pocono Cream of Buckwheat cereal with lots of cinnamon and a piece of fruit

Lunch,

Pnut butter and jelly sandwich, Hormel turkey or ham sandwich, Dinty Moore Beef stew, Tuna with helmans mayo stuffed in a tomato

Dinner, Rice cooker cooked rice with veggies and leftover meat or shrimp in the steamer basket, Roast with potatoes and veggies, Rice pasta with tomato sauce and ground beef, stir fryed veggies in olive oil and garlic with rice pasta

I know others will have some ideas for you too. It will get easier.

GFinDC Veteran

Hi Valerie,

I saw your other thread where you said you just ate spinach for a week. While that worked well for Popeye the Sailorman it probably isn't too great for most other people. Don't tell Popeye I said that though! :D

Your body needs time to adjust to your new diet, so you may experience some GI symptoms as you change your way of eating. I suggest you start as others have said, with a simple diet of homemade foods vs packaged processed foods.

What I do is make a big batch of rice or quinoa with lentils, veggies and meat. Quinoa has more proteins than rice so it's a good choice for that reason. You can probably eat eggs for breakfast. Maybe add a little meat to the eggs for extra protein to help you heal. Bob's Red Mill makes a hot cereal that is gluten-free though. Tastes fine with some banana slices, raisins, dried fruit etc. added in.

I suggest limiting sugar and salt also to start out. Your gut has lots of little critters running around that can tend to get out of control with too much sugar. I think this tends to be more likely during the diet adjustment.

You might want to get some vitamin D, Vit B-12 liquid form, some calcium, and some pro-biotics also. Your doctor can test your blood for vitamin deficiencies. Dairy is a problem for lots of us special diet peeps too.

I also like to make guacomole and eat it with Tostitos corn chips. Some people have a problem with corn also. I also eat oats but some people have problems with them also, especially at the beginning of the diet.

Stew is easy to make in a pressure cooker.

For a treat I like to make something like peanut brittle, but use an assortment of nuts, seeds dried fruit etc.

To find your previous posts you can click on the My Assistant link and choose My Last 10 posts. Then click the post preview link, usually a number.

TES Newbie
I went to Boston Market and got mashed potatoes , corn and green beans but when I try to eat I feel sick. Maybe because I havent eaten in so long. I just feel weird and dizzy. I know things will get better but right now I am in hell. I want to eat but I cant. I only weigh 115 now so i dont want to lose weight for sure. How long untill I feel normal and why is my head so weird. I was fine with all this last week and just yesterday and today I am a wreck. I am going to drive my family crazy. I just feel so tired. I dont even want to go to the store. I need honest opinions....am I hust being a baby about all this or has any gone through this. Thanks so much for listening to me whine. Can any one give me an idea of what they eat during the day. I used to eat yogurt for breakfast, fried chicken, beans and tea for lunch. And what ever for dinner. But I did eat.

I got to the point that I could not eat anything and was losing almost a pound a day. Started drinking Ensure, has the nutrients your body is probably needing, and while I didn't like the taste, I drank 4-5 a day and slowly was able to start putting real food back in my diet. Drank them for about three weeks, getting down to a couple in between meals, slowly didn't need them anymore.

Durntootinnoglutin Rookie

Hi again Val....

some valuable advice from the previouse posters.

I too lost a lot of weight and was frantic to stop the decline. Here's what i learned......the Ensure drink is a good way to go, to use as a suppliment, that one or Equate, both sold at Wal-Mart and both gluten free and lactose free. It goes down easier if drunk cold. Unfortunatly i discovered i was soy sensative too and could not use them.

The other thing is to choose food which is calorie dense, that is rich in calories. Especialy if you don't have much of an appetite or fill up fast, use the stomache space wisely. And count calories to make sure you are getting what you need to survive, i use this one Open Original Shared Link online. Check into the weight controle and calorie intake featured in blue on the first page...it will give you a blanks to fill in info with your age, higth and activity as to how many calories you will need in a day.

Get a foodscale and weigh your food.

Use the good oils, those rich in Omega 3, olive oil, canola, to name two, sneak em into food, eat potatos, sweet potatos, brown rice, converted or otherwise, and if you do meat, do lots of it, and dairy. Eat beyond feeling full....that's what it takes to begin with, and with no appetite it IS work, stay with it, that appetite WILL come back. First you will be eating to live with little enjoyment in it, but that will change.

Learn to bake your own bread, there are some marvelouse recipies on this forum...use the search engine to track down what you want, there is a great fococcia (Sp?) bread recipie here somewhere. If i can find the time i'll post the one i use almost exclusivly.

Keep up the good work, posting here and asking questions is your beginning to gaining your recovery.

Maura Newbie

Hi and welcome. I too would avoid eating in restaurants till you're better at the diet. It is so easy to make mistakes when first starting the diet. I also shop at Wegman's because they have such a large variety of gluten free foods. And... they make it easy to identify safe foods.

When I was first diagnosed and began the diet my appetite was ravenous when I began to feel better. I ate large amounts of food but still only gained about a pound or two a week. It took about 6 months for me to gain back the 35 or 40 pounds I lost when I was sick. Your gut needs time to heal and it will if you are vigilant about being gluten free. The diet is difficult however and gluten hides especially in restaurants.

I eat Wegman's gluten free cereal for breakfast with skim milk.

I take leftovers to work for lunch and reheat in the mic. I also have a stash of snacks at work in case we stay late and I get hungry. Many times I eat yogurt, fruit and cottage cheese, hard boiled eggs etc for lunch.

We have a great dinner at night (which provides great leftovers). We often have rice or potatoes, any kind of veggies cooked in olive oil, broiled chicken etc.

When I was recovering I often was still very hungry after eating lunch at work. I brought a bottle of "Boost" (strawberry was best) with me and kept it in the fridge at work. I often drank it after my lunch and then finally felt satisfied. After a few weeks the hunger subsided and I no longer drink any supplements.

Hope this helps ... give it time ... good luck


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacMom2008 Enthusiast

You mentioned that you used to have yogurt for breakfast. You still can, Yoplait is gluten free and I'm sure there are many others as well (we eat Yoplait though, so I don't know about others). I think Stoneybrook Farms is, but you'd have to check to be sure.

You lunch is still doable. Instead of fried chicken, bake up a whole chicken and then eat off of it for a few days. Not sure what sort of beans you had, but Bush's Original Baked are gluten-free. Green beans are of course gluten-free.

If your old foods are the only thing that are sounding good, I think you can use the above to get by for a few days until you get enough calories in to feel a little better. Then maybe you'll feel up to being more adventurous.

Hang in there, it gets easier and the rewards (feeling good!) are very worth the effort!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.