Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So, What Can I Eat ?


LilyCeliac

Recommended Posts

LilyCeliac Rookie

I think it has been two years now that I have been diagnosed with Celiac Disease and on the gluten free diet. I have found that Doctors and Dieticians and even GI Specialists have become pretty useless at this point and the only useful information I get is from this Forum.

After two years of being Gluten Free I am still feeling crappy. I go to the bathroom alot and I always need to go urgently. I don't think I need to tell you all how annoying this is and how much it interferes with my every day life. I am scared to go anywhere that wont have a bathroom nearby and I am embarrassed to go to someone


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, many of the top allergens are usually what people try cutting out first. Dairy, soy, corn, nuts, yeast, eggs, nightshades, etc. Some find they cannot eat legumes. For others, grains are a problem. It will vary greatly, so perhaps if you list some of the symptoms you're experiencing, others may be able to help you pin things down.

Generally speaking however, whole natural foods are best. Avoid processed foods. They usually aren't very healthy anyway. Whole veggies and fruits, nuts, seeds, bean, grains, plain meats, etc. I'm not sure what to recommend, not knowing how you are feeling.

You may also find some digestive enzymes to be very beneficial. Also, betaine HCL w/pepsin seems to work for those experiencing poor digestion, when the stomach isn't producing sufficient amounts of hydrochloric acid. But always read labels carefully to avoid gluten and anything else you cannot consume.

I use Stevia in place of sugars. It is a natural extract, with zero sugars, zero carbs, zero calories, and zero on the glycemic index. Some like it, others do not. There are many different brands and formulations, so you may need to try a few before finding one you like. The pure extract powder is the one I prefer. However, it is intensely sweet, which often confuses people when they first try it, because it does not measure like sugar. It only takes a tiny bit.

ang1e0251 Contributor

I think I would start out very systematically to identify the foods you really have a problem with. Why should you eliminate any food you only suspect? The way you can do this is with an elimination diet.

My friend's grandson is eating this way right now per the instructions from his allergist and pediatric gastroenterologist. This is how they do it for him. His mother has a list of suspect foods. The first is eggs. For two weeks he eats nothing containing eggs, they are on week one right now. After 2 weeks, they feed him eggs and see now he reacts that week. During this whole time she must journal all his food and medications and any reactions he has. After that they start on the next food which is nuts.

For you, starting with a very basic diet that you build from food by food might be the best way to go. There are many of these diets on the net to get you started. Then you add those foods one at a time and write down what you're eating and how you react.

You didn't mention if you eat dairy, if I eat dairy, I react the way you described.

Let us know how you are doing. I'm trying to identify some problem foods too so we're in the same boat!!

Greg56 Rookie

I do just fine UNLESS I eat sweets of any kind, fats, more than a small amount, and a few other odds and ends such as apple juice, raisons, prunes and more.

Honey is taboo. I used to eat lots of it as I was a beekeeper by trade but not more. Ice cream is a guaranteed flush out of the system!

But I can eat all I want of most fresh vegetables, many fruits, potatoes, popcorn, corn bread, and others.

Large quantities of any food are no good for me. Lots of gas pain if not diarrhea. Small quantities of wholesome, gluten free foods work well with me, and although it may not be what I might desire to eat it is what one should eat in the first place, whether you need to or not.

Jestgar Rising Star
Well, many of the top allergens are usually what people try cutting out first. Dairy, soy, corn,

Start with these, and go from there. Probably in that order.

ranger Enthusiast
I think it has been two years now that I have been diagnosed with Celiac Disease and on the gluten free diet. I have found that Doctors and Dieticians and even GI Specialists have become pretty useless at this point and the only useful information I get is from this Forum.

After two years of being Gluten Free I am still feeling crappy. I go to the bathroom alot and I always need to go urgently. I don't think I need to tell you all how annoying this is and how much it interferes with my every day life. I am scared to go anywhere that wont have a bathroom nearby and I am embarrassed to go to someone

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    2. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    3. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    4. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

    5. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,128
    • Most Online (within 30 mins)
      7,748

    PiscesSillyac
    Newest Member
    PiscesSillyac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.