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So, What Can I Eat ?


LilyCeliac

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LilyCeliac Rookie

I think it has been two years now that I have been diagnosed with Celiac Disease and on the gluten free diet. I have found that Doctors and Dieticians and even GI Specialists have become pretty useless at this point and the only useful information I get is from this Forum.

After two years of being Gluten Free I am still feeling crappy. I go to the bathroom alot and I always need to go urgently. I don't think I need to tell you all how annoying this is and how much it interferes with my every day life. I am scared to go anywhere that wont have a bathroom nearby and I am embarrassed to go to someone


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RiceGuy Collaborator

Well, many of the top allergens are usually what people try cutting out first. Dairy, soy, corn, nuts, yeast, eggs, nightshades, etc. Some find they cannot eat legumes. For others, grains are a problem. It will vary greatly, so perhaps if you list some of the symptoms you're experiencing, others may be able to help you pin things down.

Generally speaking however, whole natural foods are best. Avoid processed foods. They usually aren't very healthy anyway. Whole veggies and fruits, nuts, seeds, bean, grains, plain meats, etc. I'm not sure what to recommend, not knowing how you are feeling.

You may also find some digestive enzymes to be very beneficial. Also, betaine HCL w/pepsin seems to work for those experiencing poor digestion, when the stomach isn't producing sufficient amounts of hydrochloric acid. But always read labels carefully to avoid gluten and anything else you cannot consume.

I use Stevia in place of sugars. It is a natural extract, with zero sugars, zero carbs, zero calories, and zero on the glycemic index. Some like it, others do not. There are many different brands and formulations, so you may need to try a few before finding one you like. The pure extract powder is the one I prefer. However, it is intensely sweet, which often confuses people when they first try it, because it does not measure like sugar. It only takes a tiny bit.

ang1e0251 Contributor

I think I would start out very systematically to identify the foods you really have a problem with. Why should you eliminate any food you only suspect? The way you can do this is with an elimination diet.

My friend's grandson is eating this way right now per the instructions from his allergist and pediatric gastroenterologist. This is how they do it for him. His mother has a list of suspect foods. The first is eggs. For two weeks he eats nothing containing eggs, they are on week one right now. After 2 weeks, they feed him eggs and see now he reacts that week. During this whole time she must journal all his food and medications and any reactions he has. After that they start on the next food which is nuts.

For you, starting with a very basic diet that you build from food by food might be the best way to go. There are many of these diets on the net to get you started. Then you add those foods one at a time and write down what you're eating and how you react.

You didn't mention if you eat dairy, if I eat dairy, I react the way you described.

Let us know how you are doing. I'm trying to identify some problem foods too so we're in the same boat!!

Greg56 Rookie

I do just fine UNLESS I eat sweets of any kind, fats, more than a small amount, and a few other odds and ends such as apple juice, raisons, prunes and more.

Honey is taboo. I used to eat lots of it as I was a beekeeper by trade but not more. Ice cream is a guaranteed flush out of the system!

But I can eat all I want of most fresh vegetables, many fruits, potatoes, popcorn, corn bread, and others.

Large quantities of any food are no good for me. Lots of gas pain if not diarrhea. Small quantities of wholesome, gluten free foods work well with me, and although it may not be what I might desire to eat it is what one should eat in the first place, whether you need to or not.

Jestgar Rising Star
Well, many of the top allergens are usually what people try cutting out first. Dairy, soy, corn,

Start with these, and go from there. Probably in that order.

ranger Enthusiast
I think it has been two years now that I have been diagnosed with Celiac Disease and on the gluten free diet. I have found that Doctors and Dieticians and even GI Specialists have become pretty useless at this point and the only useful information I get is from this Forum.

After two years of being Gluten Free I am still feeling crappy. I go to the bathroom alot and I always need to go urgently. I don't think I need to tell you all how annoying this is and how much it interferes with my every day life. I am scared to go anywhere that wont have a bathroom nearby and I am embarrassed to go to someone

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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