Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron Infusion


TrillumHunter

Recommended Posts

TrillumHunter Enthusiast

After about two years of trying to get my H/H up with oral iron, I finally saw a hematologist again. I pulled my old labs over the last two years and no matter how high my serum iron and ferritin levels were, my hematocrit never got over 11. She told me that inflammation of any kind raises the serum ferritin artificially. She drew blood and said my MVC indicated my iron stores were very low. This despite take 160mg of oral iron a day for two years. Strange, isn't it? My family dr and my GI never picked up on this. So, I'm going to have the infusion and then see my GI again to see what is causing the inflammation. I've two years "clean" ;) and am very careful.

Please tell me about this infusion as I'm a bit sketchy about doing this. :unsure: Also, what about this inflammation? Any tips on what direction to look?

Thanks to all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DakotaRN Newbie

Just finished my last iron infusion last week. I have had 11 of them. The way it was done for me is an IV was started with just saline running then the nurse started the iron, when that was done infusing the saline is run until the line is clear. It takes about an hour. Side effects I had were very severe headache and the chills. The pharmicist then recommended that it be run over 2 hours. That took care of the problem. I am not sure of the inflammation that your referring to. I hope this information helps.

Good luck,

DakotaRN

Canadian Karen Community Regular

When I have mine, it is administered over a 3 - 4 hour period, it's basically an all day trip to the hospital for me. I have absolutely no side effects from it. Make sure you bring a good book! lol

codyb87 Rookie

I have had on and off anemia for about 7 years with many infusions. Not sure about the inflammation but I know I've always had a pretty easy time getting infusions even with extremely low ferretin and/or Hemoglobin. the above poster explained it right, a quick saline drip for a bit and then they plug in the iron. There is a chance that you can feel woosy or nauseous when getting the iron and if it gets bad just tell them and they run the straight saline again and it evens you out then back on iron, which has happened to me once out of the many infusions I've had.

And ya, bring something to do and if your celiac bring food and drink! They used to serve me sandwiches back when I wasn't celiac which was great, now I bring lots of food and magazines and mp43 player.

Not sure about the inflammation. Your knowledge of iron and what you and your doctor are looking into is a lot deeper than what I know and went through.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,846
    • Most Online (within 30 mins)
      7,748

    Norah G
    Newest Member
    Norah G
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.