Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take Your Symptoms To Appear?


mindaugas

Recommended Posts

mindaugas Rookie

I took a blood test and was diagnosed with Celiacs disease. If I eat gluten I get the symptoms in about 30 minutes. I've heard some people don't get them for hours. Just curious to hear about different people's reactions to it and how long it takes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

I think you'll find a wide variety of responses to this. I think I used to respond more immediately, however, 4 years in, if I get gluten now, I suspect it's a miniscule amount from cc. I could react right away or take anywhere from hours to days. Makes it sometimes tricky to find the culprit even when I've kept a DETAILED food/symptom log for almost 3 years now.

Others will post-

take care,

lisa

ravenwoodglass Mentor

I get the neuro effects within a couple of hours along with stomach pain, gurgling and gas. Within 24 hours I will have joint and muscle pain that will usually last at least 2 two weeks. The D that hits doesn't hit until about 3 days later and is usually gone within a few hours. Usually within the same 3 day period my hair will start to drop and that also continues for a couple of weeks. What used to be my first sign is now my last, a DH breakout. Now though it is slight and short lived, thank goodness.

sugarsue Enthusiast

My 6 yr old usually gets diarrhea and gas within 15 minutes of eating it. Often before she even finishes the meal. She usually will then have symptoms for 2-5 days.

But then, sometimes, she will have trouble out of the blue, obviously a gluten problem, but I can't trace it back to anything. These are the confusing times when it's not clear what happened.

s

.:* Lou *:. Newbie

About 1/2 hour or so.. then can last for anywhere up to an hour (intense nausea, tummy gurgles etc) or a day (headaches, lethargy, general tummy unsettle)

*ginger can really help nausea for me I find.. there's a co. called buderim if you're in Aus/NZ that makes some really good glace ginger called "naked ginger" ~ so it's not sticky and not crystallised- with all those sugar crumbs!

MELINE Enthusiast

takes me 5-8 hours to feel really exhausted. Then I will have nightmares the same night, and next morning an awful headache and eczema in the corners of my mouth. But I think I am lucky, the whole thing lasts just 1 day. No D, no bloating, no gas.

Meline

julirama723 Contributor

My symptoms and onset times differ with each accidental ingestion, BUT most of the time it hits me about 30 minutes after eating. I get bloating, gas, cramping, and I feel like I'm going to explode. Usually about 8-24 hours later is when the D comes. I'm usually exhausted for at least 3 days. I might get a migraine the next day, or when the gluten finally gets out of my system.

I did a gluten challenge (a few months ago) for as long as I could stand, and eating gluten everyday and all day produced new and horrifying symptoms that I hadn't had before. Nausea, unexplainable rage, dizziness, irritability, brain fog, confusion, something that felt like a thyroid storm, and the scariest by far--after eating toast one morning, I felt like I couldn't move my arms, almost like a temporary paralyisis. That lasted for about 5-10 minutes.

I'll never purposely ingest gluten again, as those weeks were the WORST in my entire life. It was torture.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gfresh404 Enthusiast
I took a blood test and was diagnosed with Celiacs disease. If I eat gluten I get the symptoms in about 30 minutes. I've heard some people don't get them for hours. Just curious to hear about different people's reactions to it and how long it takes.

Depends on amount of gluten consumed. The more I eat, the faster symptoms appear and vice versa.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    2. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    3. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.