Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Is So Sad

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

Im connecting with old friends and looking at a lot of old pictures from way back before I developed all my digestive ailments and its depressing me because I used to be so healthy and could eat anything. Now I feel like damaged goods and just dont enjoy things the way I used to and never will again. I still to this day believe everything couldve been prevented if i took appropriate steps to reduce my stress and circumvented the events that destroyed my insides. how can i get past this and get on with my life? why do i always look back?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Jason, I don't know your circumstances, so I don't know about your health, but you can have a good life. Life is what we make it. Seeing how my son has adapted over the last year has been such an inspiration to me on so many aspects of life. Your life may never be exactly the same as it was, but that doesn't mean it has to be worse. By eating healthy you can regain some if not all of your body's strength and health. It's just food after all.

We all have "something" that keeps us from being what we perceive as "normal". I truly believe in accepting what ever "something" you have, learning to live with it, and then learning to love the life you have.

What is your favorite thing in the world to do?? What is your second? How about your third? Can you do at least one of them still? What is your favorite thing about yourself? Try to focus on these and be thankful for them. Try every day to be thankful for at least one thing. Try to find one "good" thing in every day. Some days it may be bigger than others, but at least if you're thinking about it you'll be thinking more positive thoughts. And if you think you don't have any "good news" for today or don't have anything to be thankful for, you're not looking hard enough!

And keep coming here. Find out what bothers you most about being a Celiac and see what others do to get around that. You're not alone!!

cattriona Newbie
cattriona
Posted

The thing that has helped me to cope with celiacs is this fact that I keep telling myself: even though you may not feel well, eating a gluten-free diet forces you to be healthy. Yeh, boring I know, but think of all the other health problems that you may be avoiding in the future. and eating gluten-free is all about substitution. the diet i have now is hardly different to the one i used to eat except for different ingredients. also, like Celiac Mom says, I don't know what your situation is but sometimes there are stresses in life that we can't avoid too much and if we could have now you've learnt. Be happy with the fact that you now know what is wrong with you and that you have a solution to your problem. many people will never know what's wrong with their health and the good thing about being celiac is that there's no nasty medications or treatments that we have to undergo in order to get better and survive.

YoloGx Rookie
YoloGx
Posted

In time you will more than likely feel better and better. If not, you may have other food sensitivities as well that you need to track down.

Meanwhile things like marshmallow root and slippery elm should help heal your digestive tract. And enzymes like bromelain/papain and pancreatin will help you digest your food more easily. Taking enterically coated acidophilus seems to be de riguer (sp?).

I know that for myself I overall feel better and actually am healthier than I ever have been. My only real limitation is socially dealing say with a new boyfriend. But I can get past that if its the right guy. Plus some family issues where some of my family is in deep denial. This condition helps eliminate the superficial people as well as those who really don't care. Travel is a little challenging, however do-able generally speaking by planning ahead. Otherwise its no problem usually since I just bring my own food.

Mainly have faith and patience. You will get better!

Bea

gabby Enthusiast
gabby
Posted

Hi,

Sorry that you are going through this. I personally was helped with a similar situation via a book that was recommended to me a few years ago. You should be able to find it in the library...or order it online somewhere. It isn't about celiac disease, instead it is about dealing with regrets from the past. I urge you to get your hands on this book, and read it through a few times. It helped me a lot, and I hope you'll find it helpful too!

The book is called:

"Woulda, Coulda, Shoulda: Overcoming Regrets, Mistakes, and Missed Opportunities", by Arthur Freeman

Hope that helps!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.