Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Am I Supposed To Get Better?

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

Ok the gluten has been addressed and eliminated from my diet, as well as dairy soy and eggs. Now I am supposed to focus on healing my gut and getting my system back on track. the problem is that all of the supplements I am supposed to take for my recovery exacerbate my IBS.

I have IBS with constipation and a lazy bowel and have been struggling for years to find something to get me regular again. Im working closely with an integrative medical specialist and he really wants to get my thyroid numbers up as well as correct my flora and other GI imbalances. every single supplement he has given me only makes my constipation worse. he tried 2 different thyroid meds and they gave me severe constipation, various GI support formulas and probiotics...all made my constipation worse.

SO...how the hell am I supposed to recover if all these things make me feel lousy? I just dont know what to do. I can load up on laxatives so that i can at least take the supplements, but thats not good either.

any of u have similar issues? I hear about people with constipation all the time...family members, friends, etc...and they are all able to manage it with conventional treatments...however I am the freak and seem to have the worst kind of all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Hi Jason,

Maybe this link to info about gastroparesis will help. Seems there is a link between gastroparesis and thyroid levels. I saw in one of your other threads that your doc thinks your thyroid levels are low The link talks about the vagus nerve and stomach emptying and gut motility.

Open Original Shared Link

rinne Apprentice
rinne
Posted

Hi. :)

I sympathize. I have had issues with C for my entire life, unfortunately because it was the norm for me it really never occurred to me that I had a problem until I was thirty or so when taking laxatives occasionally became part of my life because it was becoming problematic.

When I became ill my digestion collapsed, I recall one week where nothing moved, it felt like a dead zone between my sternum and hips and this was when I was taking 4 or 5 laxatives a night.

Because of my symptoms and a history of Celiac in my family I went on a gluten and dairy free diet and that seemed to help some but I was still suffering from C. I had reached the point where I was beginning to accept that I was just going to have this problem for the rest of my life and then I discovered a diet that my body is happy with and suddenly I no longer have C.

Our digestive system is not just some food/fuel tube that we fill up at one end and if it doesn't come out the other then the answer is to put something else in to push it through. Constipation is not normal so how come so many people are?

Perhaps the answer is not adding something to your diet but taking away something that you are having difficulty digesting, what is your diet like?

Gfresh404 Enthusiast
Gfresh404
Posted
Ok the gluten has been addressed and eliminated from my diet, as well as dairy soy and eggs. Now I am supposed to focus on healing my gut and getting my system back on track. the problem is that all of the supplements I am supposed to take for my recovery exacerbate my IBS.

I have IBS with constipation and a lazy bowel and have been struggling for years to find something to get me regular again. Im working closely with an integrative medical specialist and he really wants to get my thyroid numbers up as well as correct my flora and other GI imbalances. every single supplement he has given me only makes my constipation worse. he tried 2 different thyroid meds and they gave me severe constipation, various GI support formulas and probiotics...all made my constipation worse.

SO...how the hell am I supposed to recover if all these things make me feel lousy? I just dont know what to do. I can load up on laxatives so that i can at least take the supplements, but thats not good either.

any of u have similar issues? I hear about people with constipation all the time...family members, friends, etc...and they are all able to manage it with conventional treatments...however I am the freak and seem to have the worst kind of all.

There must be some other food that is causing your constipation. I was constipated my entire life (only 19 years) but like other people did not realize since I always thought it was just the way I am. But ever since removing dairy and gluten from my diet I have not had a single problem.

Too many probiotics can also cause constipation and excess bloating.

I'm also curious as to what your diet is like. Fats and sugar help to stimulate the bowels. So I'd recommend some fruit and nuts. Nuts especially. Also, try some low fiber vegetables like lettuce. Avoid grains as much as possible as I have found these to be the most constipating. Also try to drink more fluids if you aren't already.

Good luck

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

And don't forget exercise!! Yeah, I know it's hard to exercise when you feel lousy, but if YOU don't move, neither do your bowels.

Walk, swim, or (if you're up to it) run for 30 minutes a day. If you're walking, outside is best--being out in the sunlight (even if it's cloudy) will help you to synthesize vitamin D.

jasonD2 Experienced
jasonD2
Posted
  • Author

Ive been taking herbal supplements (to help me go) on and off for a while and am concerned that I may have damaged my colon. I actually took whole leaf aloe for a year but discontinued after i found out it contained stimulants. i take CleanseMore on occasion as well but just found out that it contains stimulants. can lazy bowel syndrome be reversed?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I suffer from Dermatitis Herpetiformis, too.  Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up.  I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins.  (Meat and liver are great sources of B vitamins.)  Low levels of certain B vitamins ( B12, Thiamine, Pyridoxine, and Niacin) can affect the nerves, resulting in itching and tingling.  Niacin especially helps with the itching and healing the blisters.  Tallow Balm helps with the healing, too.  Zinc and Vitamin A also help with skin health.   I've gotten such good results with Niacin and the other vitamins mentioned that I've never had to go on Dapsone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.