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Got The Test Results Back

Mysw11

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Mysw11 Newbie
Mysw11
Posted

Hi Everyone. I am a 45 year old female. My mother has two sisters with celiac. I am hypothyroid as are my mother and my daughter. I am of Irish decent. For the past three years I have had IBS-D symptoms. I am trying so hard to get to the reason why. I was convinced it was celiac. I get the bloating pain. I am also on Nexium for reflux. I had my General practicioner und the celiac panel and its all negative. Can you tell me if its a little off?? Or should I be looking else where for my solutions?

Tissue Transglutam AB IGA <3 RANGE <5U/ml

Gliadin AB (IGA) 5 RANGE <11

Gliadin AB (IGG) 3 Range <11

Thank you for your help. Im at a loss as to what to do next.

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lizard00 Enthusiast
lizard00
Posted

Did they do a total IgA serum with the celiac panel? If your IgA is low, the two IgA tests are worthless. I have low IgA, and my doc did order a total serum, but didn't order any IgG tests. By the time I went to a GI who knew this was a problem, it was too late.

Given your family history, it would be worth investigating. Have you tried a gluten-free diet to see if it alleviates any of your symptoms? A word of caution though, if you wish to be retested, don't stop eating gluten.

Testing for celiac is improving, but still not where it should be, so false negatives are not all that uncommon.

BTW, welcome to the forum!!

Mysw11 Newbie
Mysw11
Posted
  • Author
Did they do a total IgA serum with the celiac panel? If your IgA is low, the two IgA tests are worthless. I have low IgA, and my doc did order a total serum, but didn't order any IgG tests. By the time I went to a GI who knew this was a problem, it was too late.

Given your family history, it would be worth investigating. Have you tried a gluten-free diet to see if it alleviates any of your symptoms? A word of caution though, if you wish to be retested, don't stop eating gluten.

Testing for celiac is improving, but still not where it should be, so false negatives are not all that uncommon.

BTW, welcome to the forum!!

I guess that they did not test the total Iga. I posted all that they gave me. My aunt has convinced me to try the gluten free diet. I have beed doing it for three weeks with great results. I guess my question is what are the odds if my blood came back good that I have celiac? Thank you so much for your help.

ravenwoodglass Mentor
ravenwoodglass
Posted
I guess that they did not test the total Iga. I posted all that they gave me. My aunt has convinced me to try the gluten free diet. I have beed doing it for three weeks with great results. I guess my question is what are the odds if my blood came back good that I have celiac? Thank you so much for your help.

The NIH estimates that 30% of us will show negative on a blood panel. My doctors relied on the panel for years while my health went rapidly downhill. None even told me what 'sprue' was or to try the diet. If your dietary results are great your body is telling you what you need to know.

curiousgeorge Rookie
curiousgeorge
Posted

My friend and I see the same doc and she had very similar bloodwork. He said she was def gluten intolerant with numbers like that. She has been gluten-free since the beginning of the year and says she feels way better.

Mysw11 Newbie
Mysw11
Posted
  • Author
My friend and I see the same doc and she had very similar bloodwork. He said she was def gluten intolerant with numbers like that. She has been gluten-free since the beginning of the year and says she feels way better.

But my results are negative?? Right?

maile Newbie
maile
Posted
But my results are negative?? Right?

You may be negative for a dx of "Celiac Disease" but not necessarily for gluten intolerance. Unfortunately there is no medically sanctioned test for gluten intolerance but there is a practical test and that is a gluten free diet (as mentioned above). If you have a positive response to the diet (you feel better, symptoms decrease or disappear when off gluten, reappear when you have it) then you can consider yourself "non-Celiac gluten intolerant" or simply gluten intolerant. there is some thought (and much debate) that non-Celiac gluten intolerance may just be the early stages of Celiac Disease.

as mentioned by ravenwoodglass the blood test is false in 30% of cases....negative results can mean a variety of things: you were avoiding gluten b4 the test and therfore didn't produce enough antibodie, or you don't have enough damage to the villi in your intestines that the antibodies (?) show up in the blood test or it could indeed simply mean that you don't have gluten intolerance.

but if you are continuing to have the symptoms described then it would be worthwhile to try a gluten-free diet to see what happens ;) afterall feeling better is what's most important!

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