Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intolerances To Other Flours?


MollyBeth

Recommended Posts

MollyBeth Contributor

So I made my own home made pizza crust about a week ago and had digestive issues for three days after. Last night I used some bread I had made for bread crumbs for some delicious cordon blue I made and now again this morning...my stomach is gurgling.

The only new ingredients I was exposed to were teff flour, xanthum gum, and apple cider vinegar.

I've done some searching and I think the xanthum gum is the culprit. Most of the searches I found though says intolerances to this develop over time. I'm pretty sure though that I haven't been exposed to xanthum gum that heavily...

Did anyone else have trouble with xanthum gum right off the bat?

Is guar gum a suitable substitute in recipes that call for xanthum?

As always thanks for the help!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

It might also be the teff flour. Did you get it from the Teff Co which is teff only? Did you get it from Bob's Red Mill? Are you sensitive to oats?

trents Grand Master

I haven't tried teff very often but the last two times I've eaten it I got very sick with severe stomach cramps. Teff kernels have a resin that if not thouroughly washed off can do this for some people.

MollyBeth Contributor
It might also be the teff flour. Did you get it from the Teff Co which is teff only? Did you get it from Bob's Red Mill? Are you sensitive to oats?

I got the Teff flour from Bob's Red Mill. I'm not sure if I'm sensitive to oats. My doc suggested I stay away from them too when I started the diet so I haven't really had them since going gluten free.

dilettantesteph Collaborator
I got the Teff flour from Bob's Red Mill. I'm not sure if I'm sensitive to oats. My doc suggested I stay away from them too when I started the diet so I haven't really had them since going gluten free.

I am pretty sure that they make then in the same facility where they process their gluten free oats. I reacted to their teff flour. I am sensitive to oats. I get it from the Teff Co. now.

Mother of Jibril Enthusiast

I've definitely had reactions to things that are supposed to be "safe." In January I decided to get really, really strict and stop eating all grains... with good results! I've slowly been able to add rice back in. Last week it was my son's birthday and I made a chocolate cake using a mix from Namaste... gluten, dairy, corn, and nut-free (although it did contain xantham gum). For a couple of days I thought I was fine. And then the abdominal cramps started :ph34r:

Hard to say if I was CC'd, have another food intolerance, or just need more time to heal, but I do know that my intestines feel great as long as I don't eat any processed food with grains ;)

MollyBeth Contributor
Last week it was my son's birthday and I made a chocolate cake using a mix from Namaste... gluten, dairy, corn, and nut-free (although it did contain xantham gum). For a couple of days I thought I was fine. And then the abdominal cramps started :ph34r:

This is why I think it was the xantham gum. The bread mix I used to make the bread I got the bread crumbs from was made from a Namaste mix. I don't know. I've only been on the diet for five months...maybe I'm just still healing.

I don't think I need to give up all grains... I eat this bread made from millet flour and flax seed all the time with out trouble.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Grains and especially flours are really susceptible to CC. Now I get them from places that only process the one grain, and I do better.

MollyBeth Contributor
Grains and especially flours are really susceptible to CC. Now I get them from places that only process the one grain, and I do better.

Do you have any companies you could recommend like this?

dilettantesteph Collaborator

Buckwheat: www.thebirkettmills.com

Millet: www.edenfoods.com

Montina: www.montina.com

Teff: www.teffco.com

Quinoa: www.quinoa.net

Sorghum: www.twinvalleymills.com

Corn Meal www.kinnikinnick.com

Xanthan gum and Guar gum: www.gfessentials.com

Couldn't find any pure amaranth.

ang1e0251 Contributor

I don't know about substituting Guar for xanthum, guar has laxative tendencies and I react badly to it.

Eliza13 Contributor

I react to millet the same way I react to gluten. Now I'm wondering if corn is a culprit too and am afraid to eat it.

I also ate chick peas this week and had severe diarrhea as a result. Sometimes I think that I should stop eating grains altogether.

C.S. Blogsmith Newbie

I also cannot eat any grains, but there were also numerous other starchy foods that bothered me--potatoes, beans etc. Open Original Shared Link guidelines were helpful for me. I now eat Fruitarian, but when I first learned about the SPD, it was helpful to understand why a person's body is sometimes sensitive to these things. Unless it is just an allergy, which I guess happens too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.