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Any Celiac(s) From Canada

Gerri

By Gerri
in Introduce Yourself / Share Stuff

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Gerri Explorer
Gerri
Posted

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

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  • Replies 133
  • Created
  • Last Reply
psawyer Proficient
psawyer
Posted

Hi.

There are a number of Canadians on here. I'm in Toronto here at work.

Gerri Explorer
Gerri
Posted
  • Author

I am in Kitchener, just west of Toronto. I see a naturopath in Toronto, and hopefully soon a Rheumy.

Don't work too hard. Hoping to talk again soon.

Hugs

Gerri

Hi.

There are a number of Canadians on here. I'm in Toronto here at work.

leadmeastray88 Contributor
leadmeastray88
Posted

Hi there!

I'm from Winnipeg, MB.

I have a cousin who is Celiac from Halifax also.

curiousgeorge Rookie
curiousgeorge
Posted

Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

psawyer Proficient
psawyer
Posted

Back in 2000, when I was diagnosed, the blood tests were still very new and were not commonly done. I had the endoscopy and biopsy, which was covered by OHIP.

elye Community Regular
elye
Posted

Hi, Gerri!

I'm in Ottawa, and share the anger over OHIP not covering the blood panel cost. It cost me ninety dollars four years ago, and my dad had it done last fall for $120.00. Expensive, and at times meaningless, for my dad's results were "negative", and I continue to suspect they were false. :(:angry:

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Gerri Explorer
Gerri
Posted
  • Author

Some of the test are oovered but not them all. I had to pay $180 for two test I believe out of 4. My tissue Transglutaminase (sp) came back low celiac, plus other health issues which are associated with Celiac, gave me my diagnoses of celiac. Get your doctor to order this test (tissue transglutaminase). If you have been off gluten for a while, it is my recommendation not to go for biopsy. Damage can be done in any area of the duoderum, and missed by the biopsy. You will know that your Celiac, by the way you feel off of gluten. To go back on Gluten, causes you to become very sick.

Hugs

Gerri

Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

  • 1 month later...
princesskill Rookie
princesskill
Posted

im in ottawa

debbiwi56 Newbie
debbiwi56
Posted

Hello from New Brunswick. I was diagnosed about 2 and 1/2 years ago. I am 52. I was completely thrown for a loop with the diagnosis. I am an ovarian cancer survivor (10 yrs. now) so I'm afraid to say I had been suffering for what seems like eons before I finally gave in and went to the doctor. (I was so afraid that I would be told I had cancer again...my reason for putting it off). I try very hard to watch what I eat but still seem to feel like the dickens most of the time. My GI specialist tells me to continue with the diet and that's all I can do. Seems like I should be doing more....any ideas? :)

  • 3 weeks later...
Tomkitchener Newbie
Tomkitchener
Posted

Hi There, I am from Kitchener,ON,CA.

I am new to the forum, and have not yet been tested but will and pretty well am am sure I have some form of gluten intolerance. I have been on a gluten free diet for almost 2 months now and symptoms have significantly improved.

I look forward to getting to know everyone and sharing my thoughts with people in the same situation as myself.

  • 1 month later...
Northern Celiac Newbie
Northern Celiac
Posted
I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

Hi Gerri,

you found another Canadian as well. I am in Northeast B.C. in a very remote community(ft nelson) but am learning to cope with whats going on with me. I was finally diagnosed in April this yr2009 and have been working on going gluten-free ever since. I have gone through my own personal hell like you did. The worst part of it was the family doctor I was using wouldn't refer me to a specialist until he had his turn at me.

This was the worst part of it as I kept getting sicker. But you must have courage I have met celiacs who by all appearances have returned to normal health, and that is what I am shooting for.

Best Wishes

Northern Celiac Newbie
Northern Celiac
Posted
Hello from New Brunswick. I was diagnosed about 2 and 1/2 years ago. I am 52. I was completely thrown for a loop with the diagnosis. I am an ovarian cancer survivor (10 yrs. now) so I'm afraid to say I had been suffering for what seems like eons before I finally gave in and went to the doctor. (I was so afraid that I would be told I had cancer again...my reason for putting it off). I try very hard to watch what I eat but still seem to feel like the dickens most of the time. My GI specialist tells me to continue with the diet and that's all I can do. Seems like I should be doing more....any ideas? :)

Hi Debbie,

I am a brand new celiac(hahaha, april 2009) and have come to terms with the disease quite quickly. I realize that if I want to get healthy and stay healthy the only way to do it is to stick to the diet. I keep telling myself"no dammit I don't want to be sick anymore.

Best wishes

Felidae Enthusiast
Felidae
Posted

Hi,

I'm from Alberta. I haven't been on here much lately. But hopefully I can get here more often.

nomentanus Newbie
nomentanus
Posted

Victoria, BC here, moving to Toronto someday.

Forget the test if you are avoiding wheat now. The test looks for anitbodies and assumes you are eating a lot of wheat right now. If not, the test doesn't work.

Everyone should be screened for celiac - it would save your province an immense amount of health care dollars. So says Fasano himself:

Gut. 2003 Feb;52(2):168-9. [bELOW]

Comment in:

Gut. 2003 Feb;52(2):170-1.

Gut. 2004 Jan;53(1):154-5.

Gut. 2004 Oct;53(10):1545-6.

European and North American populations should be screened for coeliac disease.

Fasano A.

Division of Pediatric GI and Nutrition, Center for Celiac Research, University of Maryland School of Medicine, Baltimore, USA. afasano@peds.umaryland.edu

PMID: 12524393

Open Original Shared Link

misshollydolly Newbie
misshollydolly
Posted

Hi Everyone! I'm Holly and I'm from a little town outside of Edmonton, AB! I'm 22 and was diagnosed in feb this year and am having a pretty hard time coping with the diet change...there's no one else in my family with celiac disease, although my little sister is being tested right now, we're waiting for her results :( we're hoping it's negative b/c this really sucks.... anyways i dont really know anyone else with the disease, so i guess i'm looking for some friends that know what i'm going through

cooki.dough Rookie
cooki.dough
Posted

I'm from Halifax. =) Representing the east coast.

  • 2 weeks later...
Melusine Newbie
Melusine
Posted

Hi

i'm in Lethbridge, AB. Not sure if its celiac or gluten intollerant or ....??? but gluten free makes me feel so much better! I can sleep. I can eat. I can live!

Pac Apprentice
Pac
Posted

Hi,

I just moved to Dawson City, Yukon. I'm originally from Europe and to be honest, I have hard times adjusting to the canadian-style gluten free diet. :( If anyone of you have time and patience to answer my probably trivial questions, I'd be really grateful.

Have a great day everyone!

Pavla

psawyer Proficient
psawyer
Posted

Hello, Pavla, and welcome to the board.

Living in Dawson City will pose some challenges. It is a lovely place, but is small and somewhat isolated. My wife and I visited in the summer of 1994, well before my gluten-free days. My brother and his wife spent three months in Dawson City in the summer of 2007.

If you are looking for specialty gluten-free items, you will probably need to order them online. But there are lots of mainstream products available in Canada that are gluten-free.

Here is a list of companies/brands that will always clearly disclose gluten if it is present in any of their products:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Zatarain's.

The list does not include every brand sold by the listed companies, but look closely at the label for the name of a large company such as Kraft or Unilever. Their brands can be trusted even if they are not on my list.

Soft drinks made by Pepsi and Coca-Cola are all gluten-free. Caramel colour in North America is safe, as is maltodextrin.

VH sauces are a ConAgra brand, and are only sold in Canada. Most (but not all) are gluten-free, and in particular, their soy sauce is widely sold in Canada and is gluten-free.

I've given you a start, but you will have many more questions. Ask away, we are all here to support you. :)

canadianalli Newbie
canadianalli
Posted

didnt see anyone from Saskatchewan, but i am! straight from saskatoon!

Pac Apprentice
Pac
Posted

Hello Peter,

and thanks for your warm welcome.

If you visited Tasty Byte Internet caffe while in Dawson, you might even know me. I was working there in summer 2007. Plus I was goldpanning for the Czech team, (still have the gold). :-)

The list of companies is exactly what I needed, thank you a lot. As for the specialty gluten-free products, I haven't found any breakfast cereals or biscuits, but I can't eat any starchy or too sweet stuff anyway, so it doesn't really bother me. For those celiacs who want to come here, there are gluten-free tortillas, puffed-rice bread, spaghetti and lots of flours - all purpose, corn bread, muffins, pancakes, chocolate cake from Red Mill company.

I still have two more questions. First one - are there any gluten-free beef jerky you can recommend? I've seen some that don't have any gluten in their ingredients list, but just don't know if I can trust them. The second is not related to gluten-free diet. I tried to find sour cream and cottage cheese that are made from milk only but I had no luck so far, all of them contain at least corn starch and guar gum. Should I search more or is this just the "purest" form I can get in Canada? I honestly don't know.

Well, need to go back to work. Hope you have a great day.

Pavla

Hello, Pavla, and welcome to the board.

Living in Dawson City will pose some challenges. It is a lovely place, but is small and somewhat isolated. My wife and I visited in the summer of 1994, well before my gluten-free days. My brother and his wife spent three months in Dawson City in the summer of 2007.

If you are looking for specialty gluten-free items, you will probably need to order them online. But there are lots of mainstream products available in Canada that are gluten-free.

Here is a list of companies/brands that will always clearly disclose gluten if it is present in any of their products:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Zatarain's.

The list does not include every brand sold by the listed companies, but look closely at the label for the name of a large company such as Kraft or Unilever. Their brands can be trusted even if they are not on my list.

Soft drinks made by Pepsi and Coca-Cola are all gluten-free. Caramel colour in North America is safe, as is maltodextrin.

VH sauces are a ConAgra brand, and are only sold in Canada. Most (but not all) are gluten-free, and in particular, their soy sauce is widely sold in Canada and is gluten-free.

I've given you a start, but you will have many more questions. Ask away, we are all here to support you. :)

dnwiebe Newbie
dnwiebe
Posted

Newly diagnosed (May 2009). 20 years old from Edmonton! :D

miloandotis Apprentice
miloandotis
Posted

HI, I'm from Vancouver Canada, and joined this site today. I got my world turned upsidedown just three days ago. I'm also blessed with a severe, severe dairy allergy, eggs, and sunflower seeds, just to name the most severe.

In the past three days I've come to understand that my carefree eating will now be very, very changed. Thank god I can have coffee still!!!!!!

I too will have a bunch of questions that will probably be repeats...like...I'm already confused...cornstarch is out as well? hmmm...is there a list of foods to avoid on here somwhere?

I think I'm very lucky. I live in a large city, so access to special diet items may be easier....and I work in a clinic with many fabulous professionals with great advice and experience with this. I guess life could be worse. lol

Anyone know how long it takes to start feeling relief from symptoms?

miloandotis Apprentice
miloandotis
Posted

opps double post...this forum and I are not getting along yet...sorry

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      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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