Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Celiac(s) From Canada

Gerri

By Gerri
in Introduce Yourself / Share Stuff

Recommended Posts

DougE Rookie
DougE
Posted

The list keeps growing.

I am originally from Moncton, now living in Halifax. To be more precise Cole Harbour (Sid Crosbyville). I was diagnosed 2 years ago. I am a silent Celiac, which means I don't get any symptoms. That is why I spend much time exploring this forum. I don't know if I am making mistakes unless I hear it from others.

Cheers,

DougE

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 133
  • Created
  • Last Reply
CarbQueen Newbie
CarbQueen
Posted

Hello from Northern BC.

Self diagnosed gluten , yeast, dairy, and sugar intolerant with multiple allergies, later confirmed by naturopath.

Allergic to grass and tree pollen for many years, and recently diagnosed by specialist with multiple connective tissue disease, and arthritis.

A vegetarian most of my life with return to meat eating for protein. 10 years ago noticed sensitivity to most items. I decided to do multiple elimination diets to pin point problem, eventually determined that I am most sensitive to gluten.

I will see allergist in Jan '10 for first time in 20 years to confirm what I already suspect.

I'm on a gluten free, dairy, yeast and sugar free diet by choice later encouraged by naturopath.

Feeling healthy and definitely wiser, and looking forward to a productive and prosperous new year and wish the same to everyone at Celiac.com.

  • 2 weeks later...
miche Rookie
miche
Posted
Toronto!

I are really annoyed about ontario not covering celiac testing. I think its just criminal.

If any of you have a good celiac friendly doc in Toronto (GI) please PM me.

miche Rookie
miche
Posted

Hi curious george,

I live in Hamilton Ontario , my test was covered , the secret is to get it done at a hospital lab, the insurance did not cover the test from the lab at my doctor's office , make a few calls , it must be the same in Toronto. Good luck!

Miche

MissKristy Newbie
MissKristy
Posted

Hi all, I'm new to the gluten free life and live in beautiful BC.

I haven't been officially tested for celiac disease or gluten allergy/sensitivity, but got tipped off to the gluten-free diet when a friend was diagnosed.

I've had multiple autoimmune issues since I was 9 (and more suspected since I've started to look at connections), and had a range of severe pain symptoms over the last year, some attributed to internal scar tissue, some to injury of the ureter.

Ultimately the Dr suggested my bloating and cramping was due to adhesions wrapped around the intestines, but merely days after avoiding gluten I've had pretty much zero bloating and pain after eating.

I don't know that I'll go for full testing at this point, everything I've read online suggest that I can still be healthy as long as I get enough grains and protiens.

I just wanted to say hi because I intend to follow the diet someone who has celiac's would and may go for testing in the future. I am confident this is the answerr for me, my brain is clearer, I'm WAY more calm and rational, I have no more digestional problems after eating, and my skin is no longer so itchy I cuould claw it off. I have noticed a bit of acne which is abnormal for me, but I'm hoping it's just any toxins leaving my body.

  • 2 weeks later...
J-Bo Newbie
J-Bo
Posted

Hi I'm Jen, I live in Qualicum Beach (Vancouver Island). I suffered for years with major stomach problems and was finally diagnosed as celiac about a year or two ago. Since I have been gluten free my life has changed completely. I was so sick and so toxic that I lost 25lbs in a month and was completely emaciated. Since going gluten free, I no longer suffer from flare ups and am very strict about what I put into my body. I am still learning and am always researching new recipes and trying to learn everything I can on how to keep myself safe.

Just wondering if anyone here attends Celiac support groups and if so, what are their thoughts on it??

Thanks,

Jen

  • 3 weeks later...
TobyinB.C. Newbie
TobyinB.C.
Posted

Hi, I am Toby, from Northern B.C. new here, just registered today.

Diagnosed as celiac as a small child. Re-diagnosed as celiac by biopsy in 1992, after three years of misdiagnosis by several doctors. In 1992 there were few choices available ( up here anyway ) for gluten free foods in the stores. Today, the selection and availability is nothing short of awesome. gluten-free beer, pizza, pasta, breads and mixes, life is good! One thing I have found that has not changed over the years is that most 'normal' people do not know what gluten is or whre it is present, and unfortunately this includes most people who work in restaurants. It has become second nature to decide what foods and ingredients are safe (not always right though!) but the issue of cross contamination is the most difficult thing we have to deal with. Bye for now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
sandiz Apprentice
sandiz
Posted

Vancouver Island, Chemainus, BC

Gluten free for 1 mnth. false/positive blood test last month. Doc said I could go back on wheat for 2 wks to do test all over again. I feel so much better, eating lots of fruit and veg, lots of energy. Eating breakfast, never did before because I always felt sick. I eat about 5x a day, small snacks and my reg. meals. I find it easy to not eat wheat because of how I feel if I do. find some people feel "sorry" for me because I can't have the regular bread and goodies, but have found really great products out there. Best way I can explain it is I have found that the wheat/gluten is POISON to me.

  • 2 weeks later...
poiuyanthony Newbie
poiuyanthony
Posted

QUEBEC MONTREAL OVER HERE ! :)

ive had celiac for 1 and a half years and still adjusting to the whole forever thing :(

anyone else from montreal or quebec for that fact send me a message i would love to talk :D

  • 1 month later...
New to This Newbie
New to This
Posted

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

New to This Newbie
New to This
Posted

Hi Krista,

I am from Toronto and diagnosed last fall. It is a challenge to say the least. I am finding some really good products though.

Last weekend I tried a new bread that my sister in law found for me to try. It is the closest thing that I have found to regular bread. I have found the website and you can order directly from them. The company is O'Doughs. I tried the Flax Bread and it is soft and fluffy and a decent enough size.

Some of the mixes are really good from Bob's Red Mill. They deliver to Canada and are really good. I have found Gluten Free Oatmeal from Cream Hill Estates out of Quebec. I can tolerate Oatmeal and it is good to bake with. I have also bought Pamela's All Purpose Baking flour and pancake mix. I did buy it in the States though. A big bag was about 18 dollars US and is enough for alot of products.

I am slowly finding out that I can substitute the gluten-free flour mix for regular flour in recipes. If you can find a cooking class for gluten-free cooking that is a good way to get started.

I have found that corn pasta is better then the rice pasta. I bought Mrs. Peepers corn pasta and it stays together and is not slimey like rice pasta nor does it become mush when you cook it.

I hope that this helps.

Lisa

New to This Newbie
New to This
Posted

Hi K Dawg,

I am here from Brampton. New to this as well. I have found a bread that is absolutely wonderful and it is produced here in Toronto. O'Doughs Flax Bread. They have a website and you can order from the factory.

It is soft and fluffy and a decent sized loaf. You could actually make a sandwich with this bread without toasting it.

I was diagnosed last fall and it is a challenge.

Good luck.

L

tobie Newbie
tobie
Posted

Hi I'm Mike, a Brit, living in Burlington, Ontario. Just joined this forum today.

Still awaiting diagnosis but been gluten free for nearly a month and feeling a million times better.

Kinda scared that I have to eat gluten again in the coming weeks ready for my biopsy.

Really lucky that there are two great health food stores just here in town who have been really, really helpful.

I'm learning to cook and loving it!

Good to be here! :D

Hi Mike, im just curious what brought you to burlington all the way from england?! Also, what part of England are you from? Yrs ago i first heard of gluten when i was working for M&S as a student in England (milton keynes to be precise) and now here i am, diagnosed with celiac a yr ago....

cheers ;)

  • 2 weeks later...
Nor-TX Enthusiast
Nor-TX
Posted

Originally born in Montreal, lived in Toronto for 49 years and now I am in Dallas Texas. I understand that Ontario Pizza Hut stores have gluten-free pizza - we don't. From what I've read, Ontario has many more options for gluten-free food than we do.

Stylo Rookie
Stylo
Posted

Burnaby, B.C. over here!

It's crazy to see so many people just a skytrain ride away.

I've been feeling sick for about two years ago, nauseous, stomach pain. It keeps getting worse. A year ago my fiance's best friend got a negative test for Celiac, but as his mom is a Celiac he went off gluten. He's been feeling great. It was my fiance who made the connection between our symptoms first, and now I find my mom who's been taking medication for IBS is now going gluten free after finding eliminating a lot of bread products has stopped her problems.

I had three vials of blood taken from me today, some sort of liver panel, and some sort of tissue test and a couple other things. Either way, I know the tests aren't always accurate and I plan on going gluten free.

And same with what others have said, I can't figure out sushi. I've found wheat free soy sauce brands to look for, but what about wasabi? And how would I find out what is exactly used in the preparation process that garuntees there is no gluten?

Nice to meet you all :)

miaryan Apprentice
miaryan
Posted

Hi,

from the east side of toronto, ON which is Oshawa (i know i know one day soon i will move from this dirty town) good to know there are alot of us from Canada.

Mia :)

BoyzMomma Newbie
BoyzMomma
Posted

Hello from Beachville ontaio! (near london)

Shell156 Apprentice
Shell156
Posted

Hi everyone

I live in Richmond BC, I have been gluten free since August 2006 after struggling with huge digestive problems, stunted growth as a child, depression as a teen and young adult, etc etc.

I hope I can help with Stylo and Miloandotis' sushi question. I am SUPER sensitive so keep that in mind. I have never encountered sushi rice that is a problem here, although when I was in Quebec they told me I could not eat sushi at all the restaurants I went to. It turned out the rice vinegar they use there contains barley malt. I suppose it's something that is common there and not so common here.

When I go out for sushi, I call beforehand and inform them of my allergy. When I am there an ask them to use a clean knife every time they cut my rolls and I ask about the wasabi and rice vinegar. I use Bragg's liquid aminos (pure fermented soy sauce) because it is less expensive than the wheat free soy sauce I can get here. I had a bad reaction to miso once so I don't do it. I used go to a sushi restaurant called Iki, on Broadway and MacDonald. If the owner of the restaurant is working (his name is Kyo) I feel really comfortable because he is quite knowledgeable.

I hope that helps you! Please feel free to ask anymore questions about Vancouver!

  • 3 weeks later...
sarahsmommy Newbie
sarahsmommy
Posted

i'm Jennifer here in the lovely fraser Valley of BC. So happy to have found an entire board just for us.

I'm not celiac but like i say in signature i'm pretty darn close. Its been a challenge especially with inlaws who refuse to understand, and am now at the point where i'm not eating at their house anymore. I'll bring my own food b/c i know whats in it. LOL

  • 2 weeks later...
eastvangal Newbie
eastvangal
Posted

Hi,

I'm in Vancouver, BC. I diagnosed myself a year and a half ago and have yet to meet another live person with Celiac Disease, but glad to find support here in the ether.

I haven't had any tests and my doc just said if I feel better than just stay gluten-free.

  • 2 weeks later...
Northern Celiac Newbie
Northern Celiac
Posted

Hi,

I'm in Vancouver, BC. I diagnosed myself a year and a half ago and have yet to meet another live person with Celiac Disease, but glad to find support here in the ether.

I haven't had any tests and my doc just said if I feel better than just stay gluten-free.

Hey, I'm in northern bc(ft nelson) there's a huge gluten free comunity in Vancouver. Just google gluten free vancouver

Cheers

Cloverstone Newbie
Cloverstone
Posted

In Vancouver B.C. here...actually just on the outskirts, recently moved to Cloverdale. Nice to meet you all!!! :)

  • 4 weeks later...
HalifaxMom Newbie
HalifaxMom
Posted

Hi all,

New here and looking for some info.

We recently learned that we have Celiac in my family. Looking at the symptom profiles, my daughter has a cluster of issues that seem highly suggestive of Celiac. I too have had some of the more subtle symptoms. My question is, we have made an appointment with our GP, but how long can we expect the process of diagnosis to take? We are originally from the States and still somewhat unfamiliar with the process of referrals and wait times here in Canada. We are currently in Halifax. Anyone have experience? I have a gut feeling about my daughter and would like to start the diet ASAP but I know I must wait until she has been tested.

Thanks!

  • 2 weeks later...
Big Belly Newbie
Big Belly
Posted

I am new to Celiac (54 year old female), even though I have watched what I ate for many years. I had Gluten problems for many years. Always sick at Christmas, and holidays, acid reflux problems getting worse, vitamin D deficiency, vitamin B12 low, and a list of other health issues getting worse.

Last year my doctor at the time told me to go Gluten Free for the rest of my life. He hoped it would stop the progression of other autoimmune diseases. Since going gluten free my diabetes is controlled, and my sleep apnea's pressure is coming down. I have since been diagnosed with Celiac.

I am from Ontario Canada, and wonder if there are there are others from Canada here.

Hugs

Gerri

Hi Gerri; I'm from North Bay Ontario Have been Biopsied Celliac Since 2005 WOW what a change in eating habits. SinceI now adherr stictley to my gluten free diet I've Gotten a big belly And can't control my weight very well So have trouble with Diabettes as well. But life goes on so have fun Live, Love&,Laugh Ron

marie1107 Newbie
marie1107
Posted

Hi fellow canadians! I'm from Montreal!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.