Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worried!

caek-is-a-lie

By caek-is-a-lie
in Coping with Celiac Disease

Recommended Posts

caek-is-a-lie Explorer
caek-is-a-lie
Posted

I've done so well over the last couple of months, but tonight I made dinner and afterwards I wanted more, so I cooked more and put it on what I thought was my plate because it was exactly where I put my plate. But while I was eating it I picked off what looked like bread or egg. Weird, right? Turns out my boyfriend put his used plate on top of mine and I ate off of it for seconds!! He had his burger on bread and that's what I ate off of. I'm horrified! I didn't eat the big piece of bread leftover but I ate off a gluten plate. I'm so worried I'll get sick tomorrow and won't be able to work. It's terrible!! What can I do? Even if I puked I'd still get sick tomorrow. I guess I have to resign myself to the suffering. I just can't take it. I'm going to have seizures and paralysis and GI problems. What can I do?? I will NEVER eat off a used plate again if I can't trust my own boyfriend.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

I hope today finds you well. If you are reacting, I hope it's mild. You know slip ups are going to happen, you may as well get used to the idea. We can't be perfect 24/7. Your boyfriend didn't put his plate their thinking to sabotage you, he was just laying his plate down. It's true you alone are responsible for checking your plates, foods, implements, spices and medicines. Sometimes that really sucks but that is the celiac life. Accept that sometimes things happen and do the best you can.

That may not be a nice rosy answer but it is just how we live. We do our best to stay gluten-free and when there's a slip we get mad and rant a bit then deal with the symptoms and live on, having learned another lesson in our personal care.

Be well and again I hope your exposure was minimal and symptoms mild.

zero Newbie
zero
Posted

Most celiacs can tolerate exposure to 30 mg of gluten per day without any long term effects. That is about a pinch or so of flour. So the way I look at it, if I can't see anything on the plate, spoon, pan, ... then it is good enough.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Zero,

Where did you find the information on 30 mg per day? I've never been able to find a specific amount like that before.

zero Newbie
zero
Posted
Zero,

Where did you find the information on 30 mg per day? I've never been able to find a specific amount like that before.

"The gluten-free diet in Finland is considered to have up to 30 mg of gluten per day (a slice of regular bread has 2.25 grams). In a recent Finnish study, all celiacs on this diet improved and showed a normal longevity without an increased risk of cancer."

from "Celiac Disease A Hidden Epidemic" by Green and Jones. IMHO this should be required reading for all celiacs.

caek-is-a-lie Explorer
caek-is-a-lie
Posted
  • Author

Thanks for your replies. My reaction was very mild and over by noon today. I know my boyfriend wasn't trying to hurt me or anything. I just have to be so careful and I wasn't paying attention. It was totally my fault. I just got emotional about it.

I know accidents will happen but I hate them so much I really go out of my way to avoid them. I don't know how I get away with as much as I do (and by that, I mean trying to do anything considered 'normal' like eating out...lol) It scares me when I try a slice of cheese at the grocery store free samples table without checking the ingredients, or pick up a plate I thought was mine and find out it's not. It's sometimes hard to understand why I'll have more reaction from a buffet table where I only ate the cheese and fruit than I do from eating off my boyfriend's bread crumb plate. Such is life with gluten intolerance I guess.

Tallforagirl Rookie
Tallforagirl
Posted
Most celiacs can tolerate exposure to 30 mg of gluten per day without any long term effects. That is about a pinch or so of flour. So the way I look at it, if I can't see anything on the plate, spoon, pan, ... then it is good enough.

It's good to hear someone make this point. There seems to be a lot of hysteria around the ingestion of microscopic amounts of gluten, and while this might be reasonable for those who are very sensitive, for the rest of us (probably the majority of Celiacs), if we do our best to be vigilant about CC, and not go around deliberately eating gluten, then we'll be just fine.

I'm glad you feel better caek!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CeliacMom2008 Enthusiast
CeliacMom2008
Posted

I'm adding this reply not because I want to start a debate on the acceptable levels of gluten consumption, but because I worry about newbies doing a search and pulling up this thread. I believe everyone needs to decide for themselves what level of gluten they find acceptable in their diet. The following article gives some insight into this question.

https://www.celiac.com/articles/21655/1/How...ease/Page1.html

This article ultimately recommends less than 6 mg per day. Hopefully this helps others in deciding how careful they need to be.

Tallforagirl Rookie
Tallforagirl
Posted
I'm adding this reply not because I want to start a debate on the acceptable levels of gluten consumption, but because I worry about newbies doing a search and pulling up this thread. I believe everyone needs to decide for themselves what level of gluten they find acceptable in their diet. The following article gives some insight into this question.

https://www.celiac.com/articles/21655/1/How...ease/Page1.html

This article ultimately recommends less than 6 mg per day. Hopefully this helps others in deciding how careful they need to be.

What concerns me is that there seems to be a very vocal group of people on this board who greet every newbie with a great long list of things they would never have thought they needed to worry about: telling them to chuck out all their old pots and pans, check the ingredients in their shampoo, lotion etc. I've even seen someone say that bandaids are unsafe!

Obviously as you go along you're going to find out how sensitive you are, and act accordingly. I just worry that the newbies are being whipped into a state of paranoia when they need not be. If they're not symptomatic at all it could even put them off trying to stick with the gluten-free lifestyle, because people make it sound like it's so complicated and difficult to achieve.

zero Newbie
zero
Posted
I'm adding this reply not because I want to start a debate on the acceptable levels of gluten consumption, but because I worry about newbies doing a search and pulling up this thread. I believe everyone needs to decide for themselves what level of gluten they find acceptable in their diet. The following article gives some insight into this question.

https://www.celiac.com/articles/21655/1/How...ease/Page1.html

This article ultimately recommends less than 6 mg per day. Hopefully this helps others in deciding how careful they need to be.

Thank you for the link. I don't see anything overtly contradictory in any of these studies other than reflecting the difficulty in studying this type of thing and the variability of individuals. I think the more science and the less folklore the better. The goal should always be ingesting 0 mg of gluten. But if you tell someone they need to never ingest any gluten then you are setting them up for a lot of anxiety. Everything looks like a potential source of poison. I have been there and it helped me to have the knowledge of what and how much gluten I am really up against. I can see it, I can hold it, and then I will wash my hands and go on with my life.

I am glad your feeling better caek_is_a_lie. When I get glutened it can be anything from a non-event to messing me up for a couple of days.

TES Newbie
TES
Posted

I think it might be zero tolerance for people, healing. I did it again! Yesterday, I wasn't home and I used a can opener to open my gluten free food, not thinking about the can opener contaminating food. Today, I am paying for that, symptoms not near as bad, but I do have symptoms. Bummer!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    4. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    5. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.