Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pins And Needles In Hands And Ocassionally Down Arm


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

???

I seem to breaking out in pins and needles all to frequently. Down my whole arm last night but normally happens say when im carrying a shoping bag home I get basically pins and needles till have to swap hands has anyone else encountered this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



digmom1014 Enthusiast

I get it when I sleep on one side or the other-down that sides arm. It is very annoying. I looked it up on the web and it was stated that it is a blood-flow problem. SUPPOSINGLY, a chiropractor can make an adjustment in your upper neck and fix it. I have had too many other medical problems going on right now to test the theory out.

Good luck, it is a pain but, they also stated that it is not something to be worried about.

ravenwoodglass Mentor

Those may be something called parathesias. It might help a great deal to get some sublingual B12 and start taking it daily. Celiacs don't utilize B12 very well until we are well healed and the sublingual will bypass the damaged gut and go straight into the bloodstream through the mucous membranes in the mouth. It may also help a bit with fatigue.

It would also be a good idea if you haven't had your blood sugar levels checked recently to do so. Parathesias can be one of the signs of diabetes. Other signs of diabetes are if your peeing more than normal, losing weight and feeling tired.

tarnalberry Community Regular

how are you carrying the shopping bags? any shoulder injuries, tightness, etc? the bulk of the nerves that run into the hand pass into a very small space in the shoulder, at the tip of the collarbone under the humoral head, so it is not difficult at all to pinch the nerve bundle there.

Janessa Rookie

I get that when I accidentally eat gluten and also when I eat corn

Crystal Brown Rookie

I get this too. I am not sure what correlation it has with anything, other than poor blood circulation. I remember my Orthopedic surgeon recommended holding my arm over my heart to improve blood flow. Sometimes it helps and sometimes it doesn't. I think B12 sounds like a good idea! Something that I may try.

trents Grand Master

Carpal tunnel?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
UnhappyCoeliac Enthusiast

just updating this symptoms occur when:

-Extreme tiredness I am talking close to 40 hrs of no sleep and workouts in there too

-Today while playing cricket... sorta like baseball for the americans. I gave one almighty swing of the bat ended up actually hiting the ground and got pins and needles like crazy from the impact, they were quick to subside though

And where they are most prevalent: carrying the shopping home... I like coke so I may have a two litres bottom in say two bags of shopping with assorted other stuff but on the walk home which is not one mile it is a km or so I inevitably get pins and needles and must switch hands. for them to go away..

Could it just be fatigue?

I hadnt played cricket ina while and I have hit alot of things hard with a bat before and NEVER broken out in pins and needles worried :(:angry:;):huh::o <_ :( <

edit: No disrespect Trents but I am 22 diagnosed at 21 not quite gluten free yet. I really hope what I have may not be related to what you have because I havent even hiot 30 and I am having health problems galore it depresses me and makes me angry at the same time

ravenwoodglass Mentor
just updating this symptoms occur when:

-Extreme tiredness I am talking close to 40 hrs of no sleep and workouts in there too

-Today while playing cricket... sorta like baseball for the americans. I gave one almighty swing of the bat ended up actually hiting the ground and got pins and needles like crazy from the impact, they were quick to subside though

And where they are most prevalent: carrying the shopping home... I like coke so I may have a two litres bottom in say two bags of shopping with assorted other stuff but on the walk home which is not one mile it is a km or so I inevitably get pins and needles and must switch hands. for them to go away..

Could it just be fatigue?

I hadnt played cricket ina while and I have hit alot of things hard with a bat before and NEVER broken out in pins and needles worried :(:angry:;):huh::o <_ :( <

edit: No disrespect Trents but I am 22 diagnosed at 21 not quite gluten free yet. I really hope what I have may not be related to what you have because I havent even hiot 30 and I am having health problems galore it depresses me and makes me angry at the same time

Have you been checked for diabetes? I am concerned that you are going up to 40 hours without sleep, if I read that right. You may want to consider switching to a different beverage, something without caffine and preferablly without lots of high fructose corn syrup. The more this idea shakes you the more likely it is that your addicted to the Coke which is a strong indication that it is doing damage. In addition if your issues are being caused or compounded with gluten intolerance being 'not quite gluten free' is going to keep those issues progressing. Unfortuantely being gluten free is not something we can pick and choose days for. We need to stick with the diet strictly to heal.

  • 2 weeks later...
spinsterwitch Rookie

Hello Unhappy Coeliac:

What you are experiencing is peripheral neuropathy. It is common in Celiac (or coeliac) Disease. In fact, when I get gluten it recurs and I know that the gluten has worked its way out of my system when it goes away.

Mine showed up at night when I was sleeping...in both arms and would sometimes linger for hours after I woke. I didn't even realize it was a symptom until I stopped eating gluten and it went away.

You really need to get gluten out of your diet. Once you have and you notice a dissipation of other symptoms, but that symptom persists, you may want to go see your doctor as they may want to look at other neurological issues.

Peace,

Kari

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    2. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.