Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance, And Unsupportive Family


djs89

Recommended Posts

djs89 Rookie

Hi,

Im 19, I've had health problems the past couple years with acne, fatigue, depression, poor concentration and memory, and constipation even though I ate fiber, vegetables and fruits. Sometimes the constipation problem was very severe and I nearly had to go to the hospital, but I was too embarassed to go to a doctor about it.

Lately I've been learning more about diet and nutrition, and also about gluten intolerance. I learned about it because I wanted to get rid of the acne and digestive problems. I've always been a carb addict so I probably ate a lot of gluten before, and that may have been a big part of the problem. I've tried the strictly gluten/wheat free diet for up to about a week (that was as long as I could hold out for), and the results were very positive. My skin cleared up, I felt better, I could concentrate and the most significant change was that I wasn't constipated anymore.

I'd like to go fully gluten free, but I have trouble doing the gluten free diet for very long. My family doesn't really think much of when I say that I think I'm intolerant to gluten. They just kind of ignore it. And then its hard when your parents keep offering wheat foods for dinner, like pasta and bread, and buying me my favorite gluten/wheat foods at the store to eat. My sister also doesn't think eating wheat will hurt.

I don't know if I actually have a gluten intolerance, or if its celiac disease. I haven't seen a doctor in years, usually I don't unless I have a serious problem. I am suspecting though that I have some kind of gastrointestinal problem related to consuming wheat. It seems like my digestive system just shuts down when I eat wheat foods. I would like to find out if maybe its an intolerance or celiac disease, and get a proper diagnosis but I'm afraid of colonoscopies or having the dr telling me that I have to get an invasive procedure. I also have the problem of my family not taking me seriously about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

The first step is blood tests. The doctor might then want you to have an endoscopy, but that's up to you. Do the blood tests first.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      4

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    4. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.