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Celiac Disease In The News


celiac3270

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lbsteenwyk Explorer

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I was dismayed by Ms Edwards negative attitude toward celiac disease. I mean, I'd hardly call it a "death sentence." I also thought she made several misrepresentations about how difficult shopping is, etc. If she's hoping to build her business with this kind of "publicity" I think she'll be disappointed. I actually emailed her and expressed my concern about some of her comments.


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jaimek Enthusiast

What do you guys think of this?

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celiac3270 Collaborator

Yeah...they had about six of these articles (different newspapers/news stations, of course) and I was going to post them this morning, but didn't have time. Will put under my news thread :)

celiac3270 Collaborator

LOL...this is the thread...I didn't look at the title heading..ha, ha... :lol:

celiac3270 Collaborator

Oh, I just saw that I had that article you posted in an above reply, ibsteenwyk

ARTICLES ;)

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celiac3270 Collaborator

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mommida Enthusiast

Both of my kids were introduced wheat/gluten at the proper time to be in that window. Both of my kids are now on a gluten free diet for life.

Laura


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celiac3270 Collaborator

Yes...here are two more articles--sorry, but the past two or three days, almost all of the articles have been similar--on the wheat introduction thing:

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jaimek Enthusiast

So, I just found out that my parents fed me cereal at 2 1/2 weeks!!!! That explains a lot. I told my Mom I was protesting and that I thought she should have to follow my diet since she might have been the cause of it. ha!

celiac3270 Collaborator

Yeah <_<:) and lol in a strange way :lol:;)

celiac3270 Collaborator

I am posting this in both the Celiac Disease in the News thread and the Celiac in Toronto News Today thread because it pertains to communion, but it's also celiac disease in the news...deserves to be in both:

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Article entitled what would Jesus do? ....the question we've all been asking ourselves <_< and that I think we can make a fair assumption about.

Also pasted below since some newspapers knock articles off the internet or make you pay after a few days:

What would Jesus do?

Published in the Asbury Park Press 05/20/05

Holy Communion, a sacrament at the heart of Catholicism, begins as a joyous occasion for second-graders when they join their congregation in receiving the Holy Eucharist at the altar.

But for a little girl from Brielle, that step has been on hold. A year ago, the Diocese of Trenton said her First Holy Communion was not valid because she received a rice-based wafer, rather than a wheat-based host sanctioned by the Church. A medical condition, celiac-sprue disease, prevents her from ingesting wheat-based products

veggf Newbie

Thanks for posting the Duluth News Tribune article about the gluten-free food store/restaurant in Hayward, Wisconsin. The article has a couple of "gluten-free" errors, but is great otherwise. I've eaten food from there when I've been visiting family in the region and it was good. I hadn't had a pasty in a long time.

Guest BellyTimber
:P Who mentioned pasty! (Must learn to make them)
celiac3270 Collaborator

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(The person mentioned here, Chris, is a member at Delphi)

There's another article, but it requires you to register at a newspaper and it doesn't sound much different from the others I've posted.

celiac3270 Collaborator

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Guest BellyTimber

Thanks celiac3270, that's a very interesting article which I missed.

A close reading proves that things aren't as good in the UK as some elsewhere like to say.

With specific regard to coeliac disease notice how many weeks it took to organise a biopsy and how many more weeks it took to get the results.

The latest guidance is that these should happen immediately, but it is scarcely done.

It's commonplace not to get a biopsy at all and no diagnosis either.

The Bradford doctor is exceptionally good compared to most here.

celiac3270 Collaborator

Sure :). A day or two ago I signed up for alerts on "coeliac" as well as "gluten" and "celiac" so that I could also post stuff for those not in North America. I'll try to put something next to those posts, such as UK or Europe or not US or something so they're easier to find:

Oops...this one is for the UK that I got, but it's a job offer, lol, which mentions "coeliac" in it....ugg.

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There was one on embryonic stem cell research and celiac disease, but they won't let me access it since it was published yesterday, not today <_<

Awhile ago, I posted about the San Francisco something article... ;) anyway, they have letters to the editor, now...found out about this from the St. Johns List Serv:

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jenvan Collaborator

My friend found this on our local paper and sent to me. It was so cool she found it! Short article, read till the end and you'll see the connection to Celiac--

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celiac3270 Collaborator

I couldn't open two other articles because they required a subscription or membership. But the one that I could open:

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celiac3270 Collaborator

Open Original Shared Link -- gluten-free beer

Open Original Shared Link -- I read about this a few days ago. A celiac who was bicycling from CA to ME, about 4000 miles, was hit :o:(

celiac3270 Collaborator

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Guess what? Celiac referred to as an allergy? There's another topic on that, so maybe I'll provide a link to this one...

celiac3270 Collaborator

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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