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Celiac Disease In The News


celiac3270

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lbsteenwyk Explorer

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I was dismayed by Ms Edwards negative attitude toward celiac disease. I mean, I'd hardly call it a "death sentence." I also thought she made several misrepresentations about how difficult shopping is, etc. If she's hoping to build her business with this kind of "publicity" I think she'll be disappointed. I actually emailed her and expressed my concern about some of her comments.


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jaimek Enthusiast

What do you guys think of this?

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celiac3270 Collaborator

Yeah...they had about six of these articles (different newspapers/news stations, of course) and I was going to post them this morning, but didn't have time. Will put under my news thread :)

celiac3270 Collaborator

LOL...this is the thread...I didn't look at the title heading..ha, ha... :lol:

celiac3270 Collaborator

Oh, I just saw that I had that article you posted in an above reply, ibsteenwyk

ARTICLES ;)

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celiac3270 Collaborator

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mommida Enthusiast

Both of my kids were introduced wheat/gluten at the proper time to be in that window. Both of my kids are now on a gluten free diet for life.

Laura


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celiac3270 Collaborator

Yes...here are two more articles--sorry, but the past two or three days, almost all of the articles have been similar--on the wheat introduction thing:

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jaimek Enthusiast

So, I just found out that my parents fed me cereal at 2 1/2 weeks!!!! That explains a lot. I told my Mom I was protesting and that I thought she should have to follow my diet since she might have been the cause of it. ha!

celiac3270 Collaborator

Yeah <_<:) and lol in a strange way :lol:;)

celiac3270 Collaborator

I am posting this in both the Celiac Disease in the News thread and the Celiac in Toronto News Today thread because it pertains to communion, but it's also celiac disease in the news...deserves to be in both:

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Article entitled what would Jesus do? ....the question we've all been asking ourselves <_< and that I think we can make a fair assumption about.

Also pasted below since some newspapers knock articles off the internet or make you pay after a few days:

What would Jesus do?

Published in the Asbury Park Press 05/20/05

Holy Communion, a sacrament at the heart of Catholicism, begins as a joyous occasion for second-graders when they join their congregation in receiving the Holy Eucharist at the altar.

But for a little girl from Brielle, that step has been on hold. A year ago, the Diocese of Trenton said her First Holy Communion was not valid because she received a rice-based wafer, rather than a wheat-based host sanctioned by the Church. A medical condition, celiac-sprue disease, prevents her from ingesting wheat-based products

veggf Newbie

Thanks for posting the Duluth News Tribune article about the gluten-free food store/restaurant in Hayward, Wisconsin. The article has a couple of "gluten-free" errors, but is great otherwise. I've eaten food from there when I've been visiting family in the region and it was good. I hadn't had a pasty in a long time.

Guest BellyTimber
:P Who mentioned pasty! (Must learn to make them)
celiac3270 Collaborator

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(The person mentioned here, Chris, is a member at Delphi)

There's another article, but it requires you to register at a newspaper and it doesn't sound much different from the others I've posted.

celiac3270 Collaborator

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celiac3270 Collaborator
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Guest BellyTimber

Thanks celiac3270, that's a very interesting article which I missed.

A close reading proves that things aren't as good in the UK as some elsewhere like to say.

With specific regard to coeliac disease notice how many weeks it took to organise a biopsy and how many more weeks it took to get the results.

The latest guidance is that these should happen immediately, but it is scarcely done.

It's commonplace not to get a biopsy at all and no diagnosis either.

The Bradford doctor is exceptionally good compared to most here.

celiac3270 Collaborator

Sure :). A day or two ago I signed up for alerts on "coeliac" as well as "gluten" and "celiac" so that I could also post stuff for those not in North America. I'll try to put something next to those posts, such as UK or Europe or not US or something so they're easier to find:

Oops...this one is for the UK that I got, but it's a job offer, lol, which mentions "coeliac" in it....ugg.

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There was one on embryonic stem cell research and celiac disease, but they won't let me access it since it was published yesterday, not today <_<

Awhile ago, I posted about the San Francisco something article... ;) anyway, they have letters to the editor, now...found out about this from the St. Johns List Serv:

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celiac3270 Collaborator

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jenvan Collaborator

My friend found this on our local paper and sent to me. It was so cool she found it! Short article, read till the end and you'll see the connection to Celiac--

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celiac3270 Collaborator

I couldn't open two other articles because they required a subscription or membership. But the one that I could open:

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celiac3270 Collaborator

Open Original Shared Link -- gluten-free beer

Open Original Shared Link -- I read about this a few days ago. A celiac who was bicycling from CA to ME, about 4000 miles, was hit :o:(

celiac3270 Collaborator

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Guess what? Celiac referred to as an allergy? There's another topic on that, so maybe I'll provide a link to this one...

celiac3270 Collaborator

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    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
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    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
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