Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!

frecOregon

By frecOregon
in Board/Forum Technical Help

Recommended Posts

frecOregon Newbie
frecOregon
Posted

Sorry to bother you twice, but my address is on my personal profile page. I had to give it to register but it shouldn't be on my profile. I can't get it off.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.

frecOregon Newbie
frecOregon
Posted
  • Author
Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.

Thank you. I'm obviously a computer whiz. I've been wrestling with celiac.com for two months now...I missed having access!

  • 1 month later...
Snubu Newbie
Snubu
Posted

I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.

Lisa Mentor
Lisa
Posted
I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.

Try to google other names. I do not believe that you can see other's personal information. I just googled your name Snubu, I could see no personal information.

Like Peter said, your personal information is visible only to you. Not to worry.

psawyer Proficient
psawyer
Posted
I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.

You were able to see it only because the server recognized that you were looking at your own profile. It determines that by examining the content of two cookies, forums_member_id and forums_pass_hash, which are set by this board. If these cookies do not exist, or do not match the profile being displayed, then the personal information is not shown.

If you log out from here, and do the same thing again, you will not see personal information. Logging out deletes the two cookies I mentioned above.

Snubu Newbie
Snubu
Posted

Because I deleted my personal info. immediately. It was there. Possible that it was a cookie issue and I was logged in, as Peter mentioned. At any rate, I was able to delete all my data. Thanks for input.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Hello...I'm a newbie to this site as I was diagnosed celiac within the month. What caught my eye was someone's signature/tagline. While I was recently dx'd...my husband's side has both sjogren's and a grand or two with alzheimer's (sp?)

62 years? I'm 43 and recently diagnosed--good news for me after many years of unexplained illnesses. Do you have children? Are they Celiac?

My 26 (diagnosed Lupus at 13), 15 and 13 year old children, along with an 18 month old grand are undergoing testing...not so good thinking of my kids having to deal with it...although knowing at a younger age is certainly a huge advantage.

Snubu Newbie
Snubu
Posted

[Hi GottaSki,

I am a newbie too! No, I do not have children (by choice). It is definitely an advantage to be diagnosed early. Looking back at my childhood, I now clearly see the symptoms of celiac: Many headaches, always thin, after age 20 migraines from the pill and occcasionally from drinking alcohol, very severe menstrual pain every month, same weight since age 20 (have never been on a diet!). During the last 10 years other symptoms developed and finally my alternative medicine/chiropractor diagnosed celiac. I have not found a medical doctor yet that understands celiac. However, knowing now what celiac is all about, I will have patience and hope that some of the damage (neurological, intestinal, etc.) will eventually disappear and hopefully I can stay away from doctors.

Yes, my Mom has Sjoegren's, but her blood test showed negative for celiac. Either the test was wrong, or she really does not have celiac. She is 86 and she said at her age she does not want to pursue a gluten-free diet and does not really care about the celiac part. I definitely suspect my father was celiac (died of Alzheimer's) and there are many relatives on his side that have Alzheimer's, Osteoporosis and Psoriasis.

Snubu Newbie
Snubu
Posted

You are right, Peter, and I am sorry I panicked! Thanks so much for your prompt clarification.

GottaSki Mentor
GottaSki
Posted
[Hi GottaSki,

I am a newbie too! ...

Thanks for the info Snubu!

Been very sick this week...arthritis has gotten far worse since change to gluten-free. Hoping its my body adjusting while we adjust our lives and kitchen!

RoseRobin Rookie
RoseRobin
Posted

I was appalled to find all my personal information displayed on my public profile. I thought when I signed up that this would only go to the board administrator. I cannot seem to edit it/ remove it. Please let me know how I can alter this.

Jestgar Rising Star
Jestgar
Posted

You are the only one that can see it. If you go to someone else's profile and look at what's displayed, that's all that the rest of us can see on yours.

RoseRobin Rookie
RoseRobin
Posted
Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.

Thank you--Right after I sent you the message, my son pointed out exactly that information to me (that only I could see the private info while logged in). I apologize for the misunderstanding.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, I apologize. Obviously I've confused you with someone else. I have vision problems due to undiagnosed Celiac complications. Being legally blind, y'all look the same from here. You still have not said which new medication you started taking. Parathyroid disorders can affect antibody production. Bone Loss Correlated with Parathyroid...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

      during the gluten challenge I did not consume any wheat germ the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least. no anemia however the endo who ordered...
    3. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, I'm sorry you're having such a rough time. How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them. Do you pressure cook your beans? Were you pressure cooking your wheat germ? What drugs are you taking? Some immunosuppressive drugs affect IgA production. Do...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st worst 12 days of my life Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    5. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks. Even at 8000 I felt no noticeable difference. Then after...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.