Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Body Temperature Issues Related To Gluten Intolerance Or Celiac?

Tim86
 Share

Recommended Posts

Tim86 Apprentice
Tim86
Posted

I have problems at night with waking up really hot, and it is difficult to cool off. I'm fine when I go to sleep...I can't use lighter blankets, or I'll be too cold when I try to fall asleep. But I frequently wake up a few hours into the night feeling hot. It isn't night sweats, because I don't get sweaty. I just feel extremly warm.

Could this be a symptom related to gluten intolerance or celiac? Does anyone else have this problem, and how quickly did it go away when you went gluten-free?

I've been gluten-free for two weeks. I've noticed an improvement in "IBS" symptoms, but no other changes yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


digmom1014 Enthusiast
digmom1014
Posted

I actually thought I was pre-menopausal because of this. I used to wake-up during the night and have to change my bedclothes. They were soaking wet! I have not had that happen to me in over a year. I'm not sure if it is because of celiac but, I hope the same happens for you when you are gluten-free for a while.

GFinDC Veteran
GFinDC
Posted

I used to have night sweats, before gluten-free and for a while after, but they stopped a while back. I think they can be related to thyroid issues and possibly diabetes also. And fever of course.

Jennifer S Newbie
Jennifer S
Posted
I have problems at night with waking up really hot, and it is difficult to cool off. I'm fine when I go to sleep...I can't use lighter blankets, or I'll be too cold when I try to fall asleep. But I frequently wake up a few hours into the night feeling hot. It isn't night sweats, because I don't get sweaty. I just feel extremly warm.

Could this be a symptom related to gluten intolerance or celiac? Does anyone else have this problem, and how quickly did it go away when you went gluten-free?

I've been gluten-free for two weeks. I've noticed an improvement in "IBS" symptoms, but no other changes yet.

I had random fevers for over a year, especially at night, and didn't usually sweat either. Now, I get bad chills anytime. I've had several minor infections that may or may not have caused them. I never did actually take my temp, so i don't know if they were true fevers or not. When my symptoms get bad, i go from chills to the fever again. A point, I am gluten free for two months, but have no diagnosis but IBS, gastritis, and peripheral neuropathy. the fever part seemed to diminish after being gluten free (the first time) for about six weeks.

Salax Contributor
Salax
Posted

I have hot/cold issues as well. In doing more research and talking with my doc, he claims that mine is linked to my Hashimoto's Disease (Thyroid). Since, the thyroid actually is the regulator of body temp, if it doesn't work properly it can cause random cold or heat spells. Mine is usually cold, but I do get hot at random. I have ruled out menopause as I am only 30, so that wouldn't make a hole lota sense for me. :D

Good luck with it. Sucks, but hopefully over time when your body finds it's "happy" place it might adjust itself accordingly.

Mtndog Collaborator
Mtndog
Posted

I struggle with night temperatures too. For me it's thyroid and Lyme but I bet as you heal your body will readjust.

When I got diagnosed with celiac my average body temp was 93! Yet, I would be hot after as little as 10 minutes n bed.

It's really frustrating, but give it some time. If it doesn't get better see your doctor.

krystal Rookie
krystal
Posted

I had to read this, as I have odd temperature issues in the last couple of years as well.

During the day, I am always too warm. I keep my house about 60 degrees and can finally wear a long-sleeved shirt, but in normal houses (70*) I need tank-tops.

However, at night I have to PILE on the blankets to the point that I can barely move, because otherwise I freeze. My alarm goes off in the morning, and I can lay there about 3 minutes before it's like someone turned on my thermostat and I have to kick off all of them. My normal body temperature is in the high 96* range, and is gradually getting lower every few months.

I never thought this could be related to celiac, and I have not yet gone gluten-free, so I can't tell you more. I have no confirmed diagnosis yet, but I'm pretty sure I'm heading down the gluten-free path.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

I've also heard it could be because of the thyroid. If you decide to get checked, ask them to check the Free T4 and Free T3 instead of just a TSH. For me, my TSH was slightly elevated, but my T3 was really low and the T4 low as well.

Some doctors will only check your TSH level which doesn't show the whole picture.

  • 1 year later...
weishy Newbie
weishy
Posted

I've also heard it could be because of the thyroid. If you decide to get checked, ask them to check the Free T4 and Free T3 instead of just a TSH. For me, my TSH was slightly elevated, but my T3 was really low and the T4 low as well.

Some doctors will only check your TSH level which doesn't show the whole picture.

i'm so glad i found this link. i'm struggling with my 3 kids who are gluten intolerant and i'm pretty darned sure they are temperature sensitive when it comes to sleeping well. when the weather gets warmer outside they sleep at 68... if they sleep at 69 degrees or even 70, all three wake up with the crankiest of all demeanors.... crying, whining, fighting (which they don't usually do if they sleep well). and at 70 they complain that it's too hot. it's very strange to me because both my husband and i sleep find with a range of temps including 70-72 with similar blankets.

does anyone recommend what to do? should i be going to get their thyroid levels checked? would it even help anything?

GFinDC Veteran
GFinDC
Posted

It might be a good idea to have their thyroid checked. I think soy is another possible cause of heat imbalances. My body was really wacky when I was eating soy.

  • 9 years later...
arcountrygirl75 Newbie
arcountrygirl75
Posted

I used to have night sweats. Now I'm having the opposite problem. I'm freezing to death. It's 81 degrees outside here and I'm sitting in front of a heater....and I'm still cold! According to my dr., I don't have Hashimoto's....I'm not so sure.

cyclinglady Grand Master
cyclinglady
Posted
(edited)
7 hours ago, arcountrygirl75 said:

I used to have night sweats. Now I'm having the opposite problem. I'm freezing to death. It's 81 degrees outside here and I'm sitting in front of a heater....and I'm still cold! According to my dr., I don't have Hashimoto's....I'm not so sure.

Did your doctor check for thyroid antibodies?  You can have Hashimoto’s (hypo) or Graves (hyper) before the rest of your thyroid lab ranges go out of wack.  Make sure more than just TSH is measured.  

What about Raynaud’s disease?  Do you ever get blue fingers or toes?  Just being exposed to air conditioning can trigger this.  

Is your celiac disease flaring/active?    You should have an annual exam to measure antibodies to help determine  dietary compliance. This can also let you know if your celiac disease is active right now.  

Finally, it could be another autoimmune disorder, but best to rule out active celiac disease first.  Talk to your doctor.  

Edited by cyclinglady
Iiv Explorer
Iiv
Posted
On 6/25/2019 at 5:52 PM, arcountrygirl75 said:

 I'm freezing to death.  

I used to be cold, always. With 80+ degrees inside I needed two thick blankets to be able to sleep. My body temperature was usually around 96,4-97,2. I was seldom allowed to touch people. I needed heat from warm baths or another body to reheat myself if it was too cold. 

Today my body temperature is around 98-98,5 and it only takes a few minutes to reheat if been cold outside. I love it. 

This change in body temperature is due to

1. extremely strict gluten free diet (no additives derived from cereals, this is difficult as it's not always labeled, but I'm hypersensitive, and learn by trial and error)

2. heaps of vitamins to boost, I quadrupled the dose of B9 (approximately 1000% rdi) and B12 (5mg/day), and some extra zinc.

(Zinc is actually a very common deficiency among people with celiac disease, one study claimed that nearly 70% of the newly diagnosed had zinc deficiency) 

I don't have iron deficiency myself. But I think this could cause freezing too due to anemia. B12 deficiency can also cause anemia, pernicious anemia. 

Try to check your vitamins and minerals, hopefully this is the cause because it's easy to adjust. 

I did eat my vitamins and B12 daily for over a decade, but it didn't help until I quadrupled my dose of the latter. 

(B12 is used in emergency if someone suffer cyanide poisoning, they inject up to 10 grams. Its also used in some countries to ease pain. It's extremely difficult to overdose, and there's no known side effects. B9 can mask b12 deficiency if overdosing, but this too has no other known side effects.) 

 

  • 4 years later...
outlander Newbie
outlander
Posted
On 3/15/2009 at 8:54 AM, Tim86 said:

I have problems at night with waking up really hot, and it is difficult to cool off. I'm fine when I go to sleep...I can't use lighter blankets, or I'll be too cold when I try to fall asleep. But I frequently wake up a few hours into the night feeling hot. It isn't night sweats, because I don't get sweaty. I just feel extremly warm.

 

Could this be a symptom related to gluten intolerance or celiac? Does anyone else have this problem, and how quickly did it go away when you went gluten-free?

 

I've been gluten-free for two weeks. I've noticed an improvement in "IBS" symptoms, but no other changes yet.

I also have this problem not sure if it menopause or celiac but it I have it all day not just at night ido take tumeric and I believe it is a thermogenic 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.