Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intestinal Healing


JWood

Recommended Posts

JWood Newbie

About 6 Month ago it was suggested I had Celiacs by my Doctor. I had intestinal symptoms and most telling, rashes on my arm that were especially aggravated when I drank beer.

I cut out gluten products, but cheated a few times on an occasional breaded appetizer at an Italian Restaurant. (It was harder to give up than the beer!) My symptoms improved, my skin began to clear up, and it appeared that did a great job.

I am 27, in good shape. About two weeks ago i made a pact to stop even ingesting the smallest quantity of gluten because I felt I was getting more and more sensitive. I would probably "cheat" very minimally, (maybe one mozzerella stick if that) up until this commitment.

These last two weeks have been brutal since this decision early in the week. My intestines feel like they are in knots.

I did do some drinking on the weekends, but the Sunday after there was never a problem. (I will be cutting out the alcohol for a period of time next to isolate this variable) My job as a business owner also involves a high level of stress the past few weeks (could this be why?) I have been drinking a lot of blueberry juice for the nutrition, and eating lean meats such as chicken.

My diet is the following:

Gluten Free Cornflakers for Breakfest, skim milk, OJ, Vitamin C, Multivitamin, Blueberry Juice. i also tried this Activia Yogurt, however, the intestinal symptoms getting worse occured before this variable.

Lunch: Either I skip lunch or have a Chefs Salad with Chicken Eggs, Spinach, Vegetables, Vinegrette

Dinner: Either Chicken, Potato Pasta w/parm cheese, Steak, Spinach, Rice Pasta

I have recently been reading up on healing the intestines. Do your intestines get worse before they get better? How long does this take. on average, if you can heal your intestines, what can i eventually go back to eating.

I am intersted in peopls experiences, because things have gotten worse when i thought they would get better.

Thanks for reading...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emcmaster Collaborator

The simple answer is that your intestines aren't going to heal unless you stop cheating and stop ingesting any trace amounts of gluten.

Lisa Mentor

With your removal of most gluten, your system may be becoming more sensitive. It's often recommended that you give up dairy for a while, which will allow your system to heal. A gradual re-introduction is often successful.

If you do have Celiac (no "s"), your system is pretty beat up. Go easy, with simple foods like meat, fish, rice, potatoes, veggies and fruit. Yoplait yogurt is gluten free (aside from the crumbs and cookies), but not sure about Activia.

Get yourself a toaster just for your use and check your meds, vitamins, lotions, lipsticks/balms and shampoos. Review anything that can get into your mouth.

Good luck and hope this was helpful.

Armae Newbie

Hi Jwood, I'm sorry I don't think I can be of much help but I am in a similar position and it has been about the same time since diagnosis for me too, so it would be interesting to see what other people have to say about it.

In my experience at least, I've felt worse before I've gotten better, and I am yet to actually get better! heh

My gastroenterologist told me that the longer you have had undiagnosed, untreated celiac disease, the longer it takes for the intestines to heal, so it can take months for some or years for others, depending on the extent of intestinal damage.

Your diet (sans the beer!) sounds pretty good IMO, especially if you don't skip lunch.

Good luck!

-Armae

chasbari Apprentice

Once I went gluten free I started to feel not worse. When I went very strict paleo I began to feel better. I was crazy hungry at first and, in fact, am going through a patch where I can't get enough to eat regardless. I know that I began to feel everything in my gut once I began gluten-free including raging hunger. It had been about ten years since I had actually felt the feeling of true hunger as I was just constantly bloated. I also encountered intestinal spasms and have, on occasion general pain. I could not tolerate any alternative grains, soy, corn or dairy as I am dealing with leaky gut. I anticipate being able to slowly add things in after I give the gut time to heal. I have lost 20 pounds in the two months and the temptation is always there to dive in to a box of jelly donuts or my wife's chocolate chip cookies but my physical health is getting so much better in spite of all the challenges of dietary compliance. Good luck.

CS

ang1e0251 Contributor

My diet is the following:

Gluten Free Cornflakers for Breakfest, skim milk, OJ, Vitamin C, Multivitamin, Blueberry Juice. i also tried this Activia Yogurt, however, the intestinal symptoms getting worse occured before this variable.

Lunch: Either I skip lunch or have a Chefs Salad with Chicken Eggs, Spinach, Vegetables, Vinegrette

Dinner: Either Chicken, Potato Pasta w/parm cheese, Steak, Spinach, Rice Pasta

A couple of things I noticed. Another poster mentioned dairy. If you drop dairy, take the yogurt along with it for now. Also I know I could not tolerate fruits for several months until I healed some and you are having a lot. I don't know if that's part of the problem but it's worth a test. Like dairy, fruit can often be added back in after awhile.

The biggest red flag to me was the vinagrette. I've read that some have gluten. What are the ingredients?

MaryJones2 Enthusiast

Is Activia gluten-free? I thought they used barley in their natural flavors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
thleensd Enthusiast

Activa is not ok... most of the links I found were old, but many of them indicated that there was either cross contamination or that the flavorings are not ok! So, you should definitely replace that in your diet.

Hang in there! Most of us here have has plenty of trials with patience and frustration!

katerinoula18 Newbie

Activia contains gluten!!! Be careful! This is how I got glutened for the first time after going gluten-free and it took me a week to get over my symptoms.

  • 1 year later...
katharos Newbie

Yoplait yogurt is gluten free (aside from the crumbs and cookies), but not sure about Activia.

When I was comparing yogurts, I noticed that most say "contains live active cultures including . . ." Yoplait was a notable exception. Also, it seems to have too much other chemical junk added for my comfort. I suspect that the finished yogurt is pasteurized to stop further probiotic growth, and you're therefore not actually getting any beneficial microorganisms from yoplait. Just some food for thought.

Asher

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,806
    • Most Online (within 30 mins)
      7,748

    MoonBear
    Newest Member
    MoonBear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
    • Colleen H
      I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.