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Anyone Tried Enterolab?

prayin4achange

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prayin4achange Newbie
prayin4achange
Posted

Hey everyone. I have been struggling with problems all over the place for about 7.5 years. In the past year my husband and I spent $4000 even with insurance on medical stuff!! I've been searching all through this website and finding out wonderful information. Thanks so much to everyone sharing your stories to help us newbies! :) I read something in a post from 2004 called the enterolab. I looked it up and it's quite expensive, which Im sure any tests is. Has anyone tried this? Is is accurate and worth it? If it really works I dont mind paying the money. I just dont want to be scammed or waste the money we dont have.. im sure you all understand haha..

The two tests I saw that seemed helpful to diagnois celiac are 1)Screening test for gluten sensitivity (Fecal antigliadin IgA antibody*) and 2) HLA-DQ testing from swab of inside of mouth. Would I need to have both tests or is one more accurate? Also, would you guys trust this or suggest I just go to a doctor here and ask for help. I live in Mississippi and I dont think they take it very seriously here or know much about it. Thank you.

Jenn

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Mike M Rookie
Mike M
Posted
Hey everyone. I have been struggling with problems all over the place for about 7.5 years. In the past year my husband and I spent $4000 even with insurance on medical stuff!! I've been searching all through this website and finding out wonderful information. Thanks so much to everyone sharing your stories to help us newbies! :) I read something in a post from 2004 called the enterolab. I looked it up and it's quite expensive, which Im sure any tests is. Has anyone tried this? Is is accurate and worth it? If it really works I dont mind paying the money. I just dont want to be scammed or waste the money we dont have.. im sure you all understand haha..

The two tests I saw that seemed helpful to diagnois celiac are 1)Screening test for gluten sensitivity (Fecal antigliadin IgA antibody*) and 2) HLA-DQ testing from swab of inside of mouth. Would I need to have both tests or is one more accurate? Also, would you guys trust this or suggest I just go to a doctor here and ask for help. I live in Mississippi and I dont think they take it very seriously here or know much about it. Thank you.

Jenn

Hello, I think Enterolab is another valid choice that can be used to diagnose gluten intolerance. You don't have to go for all of the testing all at once. They will keep the stool sample for up to six months. Example, you could send the sample there and just have the Fecal antigliadin IgA antibody test done. If it is positive, you may want to have other tests done that they perform, like for other food intolerance's (egg, milk,soy ect ect). You can pay as you go. If your test is positive for a gluten intolerance, I would highly suggest following up with a good GI Doctor that understands gluten issues. Keep in mind, they (Enterolab) will not give you a Celiac diagnosis. It will really help you long term to know for sure if you have an issue or not. There can be value in seeing it in "black and white" (writing). There can be times when it is natural to have doubts as you navigate a gluten free lifestyle. Hope this helps, Mike

Edit: I forgot to mention I also used them (sorry). Enterolab was my first step. I called a Doctor that I knew and told him of the positive results and he sent me to his personal GI Doc who took it from there. The positive results from Enterolab was truly a life changing moment for me. It was the answer/reason for my life long ill health that no other doctors could figure out.

Lisa Mentor
Lisa
Posted

Open Original Shared Link

You might find this link informative. It's more current than the 2004 post you mentioned. ;)

Here is some information on testing: (the serologic blood work is faily inexpensive)

Open Original Shared Link

Welcome Jenn. I'm sorry but I don't have any experience with Enterolabs personally.

Good luck!

Nancym Enthusiast
Nancym
Posted

I used them. I had decided I was gluten sensitive from a dietary trial but decided to have them test me anyway to confirm. I did turn out to be on their test too. I had the full panel done.

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    • AlwaysLearning
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      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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