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GottaSki Mentor

Mom, Property Manager -- currently awaiting the results of my biopsy to confirm celiac...been gluten free for 8 days. Praying that this is the correct diagnosis after years and years of docs looking at me with that ok, dear you are either nuts or depressed expression. I know that I have told at least 6 primary docs over the years that I get depressed after being sick for months on end, not sick because I'm depressed. This past year has been the worst of all...horrible bloating, achy joints, weight gain, extreme intolerance of heat (not sure many celiac's have this?) with C, not D....finally got so frustrated I've been like a dog with a bone insisting there must be a blood test that wasn't run on me. After nearly 50 blood tests coming back NORMAL my IgA tissue transglutaminase antibody (tTG) led to the possible celiac diagnosis.


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Bosque Rookie
Mom, Property Manager -- currently awaiting the results of my biopsy to confirm celiac...been gluten free for 8 days. Praying that this is the correct diagnosis after years and years of docs looking at me with that ok, dear you are either nuts or depressed expression. I know that I have told at least 6 primary docs over the years that I get depressed after being sick for months on end, not sick because I'm depressed. This past year has been the worst of all...horrible bloating, achy joints, weight gain, extreme intolerance of heat (not sure many celiac's have this?) with C, not D....finally got so frustrated I've been like a dog with a bone insisting there must be a blood test that wasn't run on me. After nearly 50 blood tests coming back NORMAL my IgA tissue transglutaminase antibody (tTG) led to the possible celiac diagnosis.

We will all pray for you that the doctors will finally have the wisdome to heal you body. I was sick for 16-18 years before I was diagnosed. You are deffently taking the correct steps. Many times, doctors are just to overwhelmed themselves to spend the time to really listen to their patients needs.

emcmaster Collaborator

I'm the head of Accounting for a tech company.

:)

FarmCat Newbie
Thanks everyone for your input. Being on sabbatical with Celiac
Bosque Rookie
I'm up for the commune idea--and I'll do the farming! Seriously.

About 8 years ago I was laid off from my demanding, anxiety-inducing pharmaceutical industry job. I was not able to get back into the professional arena because of the brain fog and anxiety that I now know were the effects that gluten and soy have on me! I have now been working for 5 years at a part-time, low-stress (low-pay) position at my local library. Last year, after eliminating soy from my diet, I felt enough better to start a part-time business as an organic vegetable grower; I sell at the local farmer's market. This year, with gluten out of my diet as well, I feel well enough to expand. Fresh tomatoes, anyone?

I think that I would be more willing to purchase something from someone with Celiac's. Where is your farmers market? I'll take some of those tomatoes!

1morething Explorer

Hi all, I'm a sales rep. for a beverage packaging company. My territory is Eastern Canada so I travel alot. It's not easy going to restaurant. I have to say I get glutened alot. When glutened, I get the C with bloating & pains . Not very comfortable when I'm talking with customers. But at least I'm not worried about having to run to the bathroom. Sometimes I wish that was the case, cause then that would make me pay more attention and be more careful of what I eat :(

Rachel

nb-canada Apprentice

Interesting topic! I am a Purchasing Agent for a hospital. Off work due to recent diagnosis of Hypothyroid and Shingles and contemplating retirement. :D


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Nadia2009 Enthusiast
As many on here, I was misdiagnosed with Celiac
ranger Enthusiast

Thank God I retired way early. I don't know how people work with celiac. All I've done for almost 2 years is stay close to the bathroom! Before that, I had a small restaurant. When I closed it, I decided to retire and work in my garden. That worked for a couple of years - untill the Big "D" hit me. Last year, I got only half of the garden even planted. It was just too far from the house. I've been gluten free for 3 months now and much better, but still not right. I hope I can do the garden better this year- it's more important now more than ever. Not only from the health standpoint, but also because of the rotten economy. Because of my past restaurant experience, I sometimes think about a gluten free restaurant but then remember the 80 hour work week. No, thank you! I'll be happy if I can just work in my garden and maybe creat a little art. My question isn't so much about what you all do, but how do you do it with this illness?

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    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
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