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Bosque

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GottaSki Mentor

Mom, Property Manager -- currently awaiting the results of my biopsy to confirm celiac...been gluten free for 8 days. Praying that this is the correct diagnosis after years and years of docs looking at me with that ok, dear you are either nuts or depressed expression. I know that I have told at least 6 primary docs over the years that I get depressed after being sick for months on end, not sick because I'm depressed. This past year has been the worst of all...horrible bloating, achy joints, weight gain, extreme intolerance of heat (not sure many celiac's have this?) with C, not D....finally got so frustrated I've been like a dog with a bone insisting there must be a blood test that wasn't run on me. After nearly 50 blood tests coming back NORMAL my IgA tissue transglutaminase antibody (tTG) led to the possible celiac diagnosis.


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Bosque Rookie
Mom, Property Manager -- currently awaiting the results of my biopsy to confirm celiac...been gluten free for 8 days. Praying that this is the correct diagnosis after years and years of docs looking at me with that ok, dear you are either nuts or depressed expression. I know that I have told at least 6 primary docs over the years that I get depressed after being sick for months on end, not sick because I'm depressed. This past year has been the worst of all...horrible bloating, achy joints, weight gain, extreme intolerance of heat (not sure many celiac's have this?) with C, not D....finally got so frustrated I've been like a dog with a bone insisting there must be a blood test that wasn't run on me. After nearly 50 blood tests coming back NORMAL my IgA tissue transglutaminase antibody (tTG) led to the possible celiac diagnosis.

We will all pray for you that the doctors will finally have the wisdome to heal you body. I was sick for 16-18 years before I was diagnosed. You are deffently taking the correct steps. Many times, doctors are just to overwhelmed themselves to spend the time to really listen to their patients needs.

emcmaster Collaborator

I'm the head of Accounting for a tech company.

:)

FarmCat Newbie
Thanks everyone for your input. Being on sabbatical with Celiac
Bosque Rookie
I'm up for the commune idea--and I'll do the farming! Seriously.

About 8 years ago I was laid off from my demanding, anxiety-inducing pharmaceutical industry job. I was not able to get back into the professional arena because of the brain fog and anxiety that I now know were the effects that gluten and soy have on me! I have now been working for 5 years at a part-time, low-stress (low-pay) position at my local library. Last year, after eliminating soy from my diet, I felt enough better to start a part-time business as an organic vegetable grower; I sell at the local farmer's market. This year, with gluten out of my diet as well, I feel well enough to expand. Fresh tomatoes, anyone?

I think that I would be more willing to purchase something from someone with Celiac's. Where is your farmers market? I'll take some of those tomatoes!

1morething Explorer

Hi all, I'm a sales rep. for a beverage packaging company. My territory is Eastern Canada so I travel alot. It's not easy going to restaurant. I have to say I get glutened alot. When glutened, I get the C with bloating & pains . Not very comfortable when I'm talking with customers. But at least I'm not worried about having to run to the bathroom. Sometimes I wish that was the case, cause then that would make me pay more attention and be more careful of what I eat :(

Rachel

nb-canada Apprentice

Interesting topic! I am a Purchasing Agent for a hospital. Off work due to recent diagnosis of Hypothyroid and Shingles and contemplating retirement. :D


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Nadia2009 Enthusiast
As many on here, I was misdiagnosed with Celiac
ranger Enthusiast

Thank God I retired way early. I don't know how people work with celiac. All I've done for almost 2 years is stay close to the bathroom! Before that, I had a small restaurant. When I closed it, I decided to retire and work in my garden. That worked for a couple of years - untill the Big "D" hit me. Last year, I got only half of the garden even planted. It was just too far from the house. I've been gluten free for 3 months now and much better, but still not right. I hope I can do the garden better this year- it's more important now more than ever. Not only from the health standpoint, but also because of the rotten economy. Because of my past restaurant experience, I sometimes think about a gluten free restaurant but then remember the 80 hour work week. No, thank you! I'll be happy if I can just work in my garden and maybe creat a little art. My question isn't so much about what you all do, but how do you do it with this illness?

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    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
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