Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medical Bracelets


Mysh

Recommended Posts

Mysh Rookie

I was wondering if anyone has a medical bracelet and if they have mentioned the need for Gluten free on it? What about in your wallet/purse? In your car?

It just occurred to me yesterday that I have a sticker stating that my son is non verbal and has Autism for if we are in a car accident and I started wondering about gluten-free.

Would the need for medical assistance over ride a gluten-free diagnosis?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



quietmorning01 Explorer
I was wondering if anyone has a medical bracelet and if they have mentioned the need for Gluten free on it? What about in your wallet/purse? In your car?

It just occurred to me yesterday that I have a sticker stating that my son is non verbal and has Autism for if we are in a car accident and I started wondering about gluten-free.

Would the need for medical assistance over ride a gluten-free diagnosis?

I learned that the medical card was most effective at the hospital only - EMS are in a hurry and don't have time to read stuff - they look a the bracelet/necklace and that's it. The bracelet is what talks FOR the person if they cannot talk themselves. The communication on it has to be concise with as few letters as possible. "Celiac" might be all you need to place on the bracelet.

The medical assistance goes toward priority to the air way first. . .immediate death prevention. What you would want to be clear about for care is that they don't load your child up with medications that have gluten because his body fighting severe trauma AND the gluten would not make for an easy surivor story. The EMS inform the hospital of physical condition and needs - so it is important that they are able to communicate the need for gluten free to the receiving hospital ESPECIALLY if you are unable to.

The last time I wore a bracelet, I emailed the EMS department in my city and had them list my identity with my special needs. When they pulled up my identity on the computer it was all right there. I thought that was pretty snazzy... but you have to have a city with a fairly sophisticated grid, and some cities don't have that. I don't think cities connect as of yet, either. Can't hurt to try, though.

When I wore my bracelet, I thought about not only the scene of the accident, but where I could really receive harm if I couldn't speak for myself and the things about my body that needed to have someone to speak for. I put my health condition and my allergies on the bracelet - **see medical card** across the bottom. (The most pertinant information for the EMS - and the information they MUST communicate to the doc's at the ER) The medical card (for the hospital and doctors) was a self designed three fold card folded to the size of a business card. It included my condtions, my doctor's names and phone numbers, my allergies, and my meds. I used it ALL the time.

quietmorning01 Explorer

Grief, I did it again. . . does anyone know how to delete a duped message? Sorry about that folks.

digmom1014 Enthusiast

Where did you get the bracelet? Also, are you will to share your card with us? I would love to have something in my wallet.

I also put celiac on my phone. I was taught by a paramedic that they are looking for the word ICE on most cell phones now. ICE should be your home# and the list any notations that you want emergency worker's to have.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.