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Great Response To Gluten Free!

beanpot

By beanpot
in Coping with Celiac Disease

Recommended Posts

beanpot Apprentice
beanpot
Posted

I'm so thrilled I just have to share -- I've had my first normal BM's in 3 years after 1 1/2 weeks on this diet!! I guess the bad news is that since all my GI symptoms cleared and I also feel so much better in subtle ways like energy levels, not depressed etc. that it means I am celiac or at least gluten-sensitive. But really I don't mind the diet. Also when I told all this to my mother who has the same symptoms she seemed open to getting tested.

The only thing that is not better is sleep. I've always gotten RLS about 2 hours after dinner, but now I get it at midnight which interferes more with my sleep. My RLS has always been related to sugar, I called it "sugar jumps" when I was little.

Anyway I just had to share! Its nice to have a solution to many of the various ailments that have plagued me over the years.

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RiceGuy Collaborator
RiceGuy
Posted

So glad you're feeling better! It really is a great triumph, isn't it?!

As for the RLS, I've found certain supplements to completely resolve it. A sublingual methylcobalamin (active form of vitamin B12) and magnesium worked miracles for me. You may also find a B-complex and vitamin D3 to be very helpful to the nervous system (as are numerous other things of course). I think another is zinc.

Mtndog Collaborator
Mtndog
Posted

That's GRRRRRRRRREAT!!!!!!!

beanpot Apprentice
beanpot
Posted
  • Author

Thanks Rice Guy! I will look for this B-12 you recommend. The other supplements you mentioned I've just started, I think you recommended the magnesium for something else in another post, so I started taking it a few days ago.

I may also be low once again in iron, although I hesitate to take that because of C. I see that there is a whole section on this forum for sleep issues too, so I will investigate!

ravenwoodglass Mentor
ravenwoodglass
Posted

Glad to hear things are going well. I second the B12 and mag suggestions. Before you supplement iron do get your levels checked first though. Too much iron can be toxic.

cmom Contributor
cmom
Posted
I'm so thrilled I just have to share -- I've had my first normal BM's in 3 years after 1 1/2 weeks on this diet!! I guess the bad news is that since all my GI symptoms cleared and I also feel so much better in subtle ways like energy levels, not depressed etc. that it means I am celiac or at least gluten-sensitive. But really I don't mind the diet. Also when I told all this to my mother who has the same symptoms she seemed open to getting tested.

The only thing that is not better is sleep. I've always gotten RLS about 2 hours after dinner, but now I get it at midnight which interferes more with my sleep. My RLS has always been related to sugar, I called it "sugar jumps" when I was little.

Anyway I just had to share! Its nice to have a solution to many of the various ailments that have plagued me over the years.

I was also very excited the first time I had normal BM's! I wanted to throw a Poop Party! HAHAHA :o

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  • Posts

    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
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